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1% Toolkit: Multi-Tiered Systems of Support (MTSS) for Students with the Most Significant Cognitive Disabilities (NCEO Tool #15)
The purpose of this tool is to provide information on the Multi-Tiered Systems of Support (MTSS) for students with the most significant cognitive disabilities for parents in the form of (a) a fact …
Published: November 2023
Project
Maryland Statewide Technical Assistance Project on Organization-Wide Positive Behavior Support
This project aims to create a common language and set of strategies for implementing positive behavior support across Maryland to increase quality of life and prevent challenging behaviors statewid…
Project
Special Projects to Advance "Learn the Signs, Act Early"
Integrates developmental monitoring using Learn the Signs, Act Early (LTSAE) checklists into the Follow Along Program—a large statewide family-serving, home-visiting program—and develops a comprehe…
RISP Data Bytes
The Data Byte series highlights one data point from the Residential Information Systems Project (RISP). Data Bytes are brief, graphical summaries of one RISP research finding, published each month …
Examining Choice and Control for People With IDD Over Time
Choice making is an important aspect of everyone’s life in terms of fully becoming an adult within a democratic society. People with intellectual and developmental disabilities (IDD) are at risk …
Published: 2023
Concerns about the Sustainability of Self-Direction
In 2020, people participating in New York State’s self-direction plan were surveyed about their experiences with self-direction. One of the goals of the survey was to learn about the concerns …
Published: 2023
Self-Directed Services: Challenges and Training Needs
In 2020, people participating in New York State’s self-direction plan were surveyed about their experiences with self-direction, including challenges people experience with self-direction, and …
Published: 2023
Training Topics to Support Self-Directed Services
In 2020, people participating in New York State’s self-direction plan were surveyed about their experiences with self-direction, including a question about training topics that they would like …
Published: 2023
Plans for Sustaining Self-Direction
In 2020, people participating in New York State’s self-direction plan were surveyed to examine the sustainability of self-directed services: how families plan to navigate a self-directed model …
Published: 2023
FYI from the Institute on Community Integration: October 2023
The Institute's monthly staff newsletter featuring news of recent activities, accomplishments, and resources. This month's first feature story is about a new survey from ICI and The Arc of the …
Published: October 2023
News
Inclusive Higher Ed Moves Forward
Published: October 2023
Project
Minnesota Inclusive Higher Education Consortium (MIHEC)
The Minnesota Inclusive Higher Education Consortium (MIHEC) is the state technical assistance center that supports the building, enhancing, and sustaining of inclusive postsecondary education …
Family and Individual Needs for Disability Supports Community Report 2023
The Family and Individual Needs for Disability Supports survey (FINDS) surveys family members of people with intellectual and developmental disabilities about their experiences providing supports …
Published: 2023
News
Squeezed: Caregivers Report Less Help, More Stress
Published: October 2023
News
Partner Update: Brynn Sexton
Published: October 2023
News
ICI Collaborates in India
Published: October 2023
News
Double Dose of Awareness
Published: October 2023
Policy Forum: Institutional Bias in Long-Term Services and Supports for People with Intellectual and Developmental Disabilities
This Policy Forum from October 3, 2023 discussed the Policy Research Brief titled, Institutional Bias in Long-Term Services and Supports for People with IDD . Slides from the presentation are …
Published: 10/3/2023
Policy Research Brief: State IDD Agencies’ Views on Self-Directed Services
Self-direction allows people with intellectual and developmental disabilities (IDD) to control most aspects of their home- and community-based services. Other names that states use for self- …
Published: September 2023
NCEO Newsletter: October 2023 issue
Effective communication is a cornerstone for fostering collaboration, understanding, and ultimately, student success. Recognizing the importance of communication, we are featuring in this newslette…
Published: October 2023
Transition to Retirement: A Guide to Inclusive Practice: Adaptations for the Current U.S. Context
The Transition to Retirement (TTR) book/eBook and video (Stancliffe et al., 2013; hereafter the TTR manual ) is an evidence-based Australian manual describing how to successfully implement the TTR …
Published: September 2023
Policy Research Brief: Adults with IDD are Given More Medications than the Rest of the Population
The term polypharmacy refers to taking five or more medicines. Each state might define polypharmacy in different ways, including how many medicines a person must be taking to be considered overmedi…
Published: September 2023
Policy Research Brief: Representation of Direct Support Workers in Popular Media
Mainstream media does not use consistent language to talk about the role of direct support workers. This inconsistency makes it difficult to communicate the value and complexity of the direct …
Published: September 2023
Policy Research Brief: The Employment Impacts of Being a Family Caregiver
Family members play essential roles in the lives of people with intellectual and developmental disabilities, including providing medical, emotional, financial, and day-to-day support. Family …
Published: September 2023
NCEO Parent Fact Sheets: Engaging Culturally and Linguistically Diverse Families (Fact Sheet #5 - Educator)
This Fact Sheet provides educators with strategies that will help them engage culturally and linguistically diverse families and their children. These strategies can help overcome the challenges …
Published: 9/21/2023
FYI from the Institute on Community Integration: September 2023
The Institute's monthly staff newsletter featuring news of recent activities, accomplishments, and resources. This month's first feature story is about the October 3 ICI Policy Forum on institution…
Published: September 2023
News
Prevalence: Extending ICI’s Research
Published: September 2023
News
Oct. 3 Forum: How Facility Bias Affects People with Disabilities
Published: September 2023
News
Identifying Autism in Rwanda
Published: September 2023
Policy Research Brief: Institutionalization Bias in Long-Term Services and Supports for People with IDD
Medicaid requires states to provide institutional services to eligible Medicaid recipients, but allows states to have waiting lists for recipients preferring home and community based services. …
Published: September 2023
News
Success, in smaller steps
Published: September 2023
Creating Social Change for English Language Learners by Improving Access to Grade-level Instruction
Book description: The recent increase in immigration patterns in the United States has meant an increase in the number of children whose first language is not English entering American schools. …Published: 2023
Where Do I Go? What Do I Do? Training Educators of Rural English Learners to Provide Accessible Instruction and Assessment
This chapter describes a federally-funded grant project to train West Virginia educators and parents on accessible assessment and instruction for K-12 English learners. West Virginia is a rural …
Published: 2023
Empowering Families Toolkit - Tool 4 Video: Understanding Test Data at SSIP Stakeholder Meetings
This video explains how the review of test data at State Systemic Improvement Plan (SSIP) stakeholder meetings by parents and other stakeholders can support the development and implementation of …
Published: 9/5/2023
Empowering Families Toolkit - Tool 3 Video: What is the SSIP, and why do it?
This video provides a family-friendly definition of the State Systemic Improvement Plan (SSIP) and explains how states, educators, and families can work together to ensure their SSIP addresses the …
Published: 9/5/2023
Empowering Families Toolkit - Tool 2 Video: What are the purposes of different tests, and how are they used in the SSIP?
This video discusses different types of tests and their objectives. It describes various test purposes, and their role in improving instruction and outcomes for students with disabilities through …
Published: 9/5/2023
Empowering Families Toolkit - Tool 1 Video: Why are assessments important, and why should students with disabilities participate in assessments? (Version 2/authentic video of a parent and her children in Spanish)
This video was designed to help families understand why assessments are a good opportunity for their children to show what they know, and for schools to better understand their children’s needs. …
Published: 9/5/2023
Empowering Families Toolkit - Tool 1 Video: Why are assessments important, and why should students with disabilities participate in assessments? (Version 2/authentic video of a parent and her children)
This video was designed to help families understand why assessments are a good opportunity for their children to show what they know, and for schools to better understand their children’s needs. …
Published: 9/5/2023
Empowering Families Toolkit - Tool 1 Video: Why are assessments important, and why should students with disabilities participate in assessments? (Version 1/professionally recorded)
This video was designed to help families understand why assessments are a good opportunity for their children to show what they know, and for schools to better understand their children’s needs. …
Published: 9/5/2023
Project
MN Act Early Ambassador
Develops and expands on the Institute's Act Early work in culturally and linguistically diverse communities. Act Early is building a national network of agencies, organizations, and professionals …
FYI from the Institute on Community Integration: August 2023
The Institute's monthly staff newsletter featuring news of recent activities, accomplishments, and resources. In this month's first feature story, ICI Director Amy Hewitt urges disparate segments …
Published: August 2023
Empowering Families Toolkit
This Empowering Families Toolkit was developed by National Center on Educational Outcomes (NCEO) to provide accessible materials for parents about topics related to assessment-related State …
Published: August 2023
News
In Ghana, Learning to End Stigma
Published: August 2023
News
Myhre Hosts ICI Celebration
Published: August 2023
News
Review: From Being to Belonging
Published: August 2023
NCEO Parent Fact Sheets: State Testing of Your Child Who is an English Learner (Parent Fact Sheet #4)
This Fact Sheet summarizes the resources that are available specifically to students who are English learners who take state tests. The more parents know about these test resources, the more they …
Published: 8/14/2023
NCEO Parent Fact Sheets: State Testing of Your Child with a Disability (Parent Fact Sheet #3)
This Fact Sheet summarizes the resources that are available specifically to students who have a disability, an Individualized Education Program (IEP), or a 504 plan when they take state tests. The …Published: 8/14/2023
NCEO Parent Fact Sheets: Participating in What your Child is Being Taught and is Learning in School (Parent Fact Sheet #2)
This Fact Sheet helps parents improve two-way communication with teachers, including guidance for families with students with disabilities and English learners. This Fact Sheet provides to help …
Published: 8/14/2023
NCEO Parent Fact Sheets: Getting Help for Your Child When Taking State Tests (Parent Fact Sheet #1)
This Fact Sheet summarizes the purpose of state tests, and describes test resources that students may need. This Fact Sheet also provides parents with tips on how to work with teachers to access …
Published: 8/14/2023
NCEO Parent Fact Sheets
A set of Fact Sheets developed by NCEO to provide accessible materials for parents about state assessments.
News
Hewitt: Impatience is a Virtue
Published: August 2023
Empowering Families Flyer #4: How is test data used at SSIP stakeholder meetings?
This flyer explains how the review of test data at State Systemic Improvement Plan (SSIP) stakeholder meetings by parents and other stakeholders can support the development and implementation of …Published: August 2023
Empowering Families Flyer #3: What is the SSIP, and why do it?
This flyer provides a family-friendly definition of the State Systemic Improvement Plan (SSIP) and explains how states, educators, and families can work together to ensure their SSIP addresses the …
Published: August 2023
Empowering Families Flyer #2: What are the purposes of the different kinds of tests?
This flyer define the different types of tests and their objectives. It describes various test purposes, and their role in improving instruction and outcomes for all students. This flyer is part …
Published: August 2023
Empowering Families Flyer #1: Why are assessments important?
This flyer was designed to help families understand why assessments are a good opportunity for their children to show what they know, and for schools to better understand their children’s needs. …
Published: August 2023
Participation and Companions for Socially Inclusive Community Activities by U.S. Adults with Intellectual and Developmental Disabilities
We investigated socially inclusive participation in mainstream community groups and religious services by U.S. adults with intellectual and developmental disabilities using weighted secondary …
Published: 2023
A Closer Look: Episode 3: Zoe Korengold from Lionsgate Academy in Shoreview, Minnesota on Supporting Students’ Psychological Health and Wellness
Two-time Frontline Initiative author Zoe Korengold, who is on the support response team (SRT) at Lionsgate Academy, reflects on how they handle situations with students who are experiencing big …
Published: 7/31/2023
A Closer Look: Episode 2: Host Chet Tschetter Talks with LeAnn Bieber about Healthcare Person-centered Profiles
Frontline Initiative author LeAnn Bieber talks about how using tools such as a Health Care Person-Centered Profile and a one-page description can make a positive difference in how a medical …
Published: 7/6/2023
A Closer Look: Episode 1: Introduction to A Closer Look
Host Chet Tschetter discusses what “A Closer Look” is and what the listeners can expect. In this podcast, we will talk with the authors of recent issues of Frontline Initiative and really dig in …
Published: 6/1/2023
A Closer Look
This podcast series is for direct support professionals and frontline supervisors who want to learn more about best practices for supporting people with intellectual disability. The series explores…
In Our Own Words: Improving Care for People with Disabilities - Part Two "Understanding"
"In Our Own Words: Improving Care for People with Disabilities" is a two-part series produced by Mid-Minnesota Legal Aid's Minnesota Disability Law Center. It is a series of insightful interviews …
Published: 2023
In Our Own Words: Improving Care for People with Disabilities - Part One "Communication"
"In Our Own Words: Improving Care for People with Disabilities" is a two-part series (Communication; Understanding) produced by Mid-Minnesota Legal Aid's Minnesota Disability Law Center. It is a …
Published: 2023
Research-Based Interventions that Work: Improving Retention and Graduation Rates for College Students with Disabilities
This poster was prepared to illustrate a project under the National Center for College Students with Disabilities (NCCSD), a collaboration between ICI and the Association on Higher Education And …
Published: 2023
Leisure Participation of Autistic Adults: An Ecological Momentary Assessment Feasibility Study
Autistic adults participate less and express lower satisfaction in leisure activities than nonautistic adults, although literature is limited. The multifaceted nature of leisure participation …
Published: 2023
The Intersection of Systemic, Child, and Evaluation Factors in the Prediction of Autism Special Education Eligibility; Examining the Role of Race and Ethnicity
Though there is evidence autism identification has been inequitable for populations who are culturally and linguistically minoritized, there is limited research that explains the issue of dispropor…
Published: 2023
Predicting Self-Injurious Behavior at Age Three Among Infant Siblings of Children with Autism
Existing research suggests that self-injurious behavior (SIB) is a relatively common interfering behavior that can occur across the lifespan of individuals with autism spectrum disorder (ASD). We …
Published: 2023
Social Inclusion of Adults with Intellectual and Developmental Disabilities: Toward Belonging
Social inclusion and exclusion are important to people with intellectual and developmental disabilities. We examine contemporary understanding of social inclusion, including sense of belonging, …
Published: 2023
FYI from the Institute on Community Integration: July 2023
The Institute's monthly staff newsletter featuring news of recent activities, accomplishments, and resources. This month's feature stories are about a new video series and an upcoming Art for All …
Published: July 2023
News
“They think I’m a troublemaker”
Published: July 2023
News
“Let’s Try a Different Way”
Published: July 2023
News
New Exhibition: my life
Published: July 2023
NCEO Brief: School Psychologists’ Role in Accommodations Decision Making (#32)
Students’ learning and achievement in schools are regularly monitored formally and informally through classroom, district, and state assessments. School psychologists have a specialized understandi…
Published: July 2023
NCEO Reports: The Relationship between Student Placement and AA-AAAS Participation Rates (#439)
This report presents the findings of a study that looked at the relationship between states’ percentage of students participating in the alternate assessment based on alternate academic achievement…
Published: June 2023
NCEO Reports: 2021-22 Participation Guidelines and Definitions for Alternate Assessments Based on Alternate Academic Achievement Standards (#440)
This report provides an update to previous analyses of the guidelines, definitions, and criteria states have developed for making decisions about alternate assessment based on alternate academic …
Published: June 2023
FYI from the Institute on Community Integration: June 2023
The Institute's monthly staff newsletter featuring news of recent activities, accomplishments, and resources. This month's feature stories are about two new publications and disability activism. …
Published: June 2023
Impact: 35th Anniversary Edition
Impact celebrates 35 years as a research-to-practice guide for the field of intellectual, developmental, and other disabilities. This issue in the Impact series features Amy Hewitt, director of …
Published: Spring 2023
News
Update: Hauff Heads to Augustana
Published: June 2023
News
Disability Civil Rights: Echoes of Activism
Published: June 2023
News
Supporting Health and Wellness: New Frontline Initiative Available Now
Published: June 2023
News
Impact, The Anniversary Issue: 35, Counting
Published: June 2023
Frontline Initiative: DSPs Supporting People's Health and Wellness
The pandemic brought direct support professionals’ role of supporting peoples’ health and wellness to the forefront. DSPs had to slow down, take more precautions, and learn new ways to maintain …
Published: Summer 2023
The Direct Support Workforce: An Examination of Direct Support Professionals and Frontline Supervisors During COVID-19
Direct support professionals (DSPs) and frontline supervisors (FLSs) have critical roles in home and community-based services for people with intellectual and developmental disabilities. Low wages …
Published: 2023
Using the Independent Monitoring for Quality Program to Examine Longitudinal Outcomes for People with Intellectual and Developmental Disabilities
The purpose of this study is to lay a foundation for illustrating the importance of longitudinal data collection by sharing the results of the Independent Monitoring for Quality (IM4Q) program in …
Published: 2023
NCEO Newsletter: June 2023 issue
In this issue, we highlight some new NCEO products, as well as several upcoming events. The first article is about two new tools that can be used to develop state and district assessment participat…
Published: June 2023
Wellness Matters for Direct Support: Episode 4: Supporting Mental Health with a Wellness Recovery Action Plan (WRAP)
Susan O’Nell, Aja Owens, and Stan Schmidt talk about mental health and the benefits of having a wellness recovery action plan. Below are links to some helpful resources and sources cited in this …
Published: November 2023
FYI from the Institute on Community Integration: May 2023
The Institute's monthly staff newsletter featuring news of recent activities, accomplishments, and resources. This month's feature stories are about ICI’s director supporting President Biden’s …
Published: May 2023
News
ICI on the (Virtual) Hill
Published: May 2023
News
MNLEND Graduates Celebrate
Published: May 2023
News
A nurse, caregiver, driver, companion, and teacher – all for $14.50/hour
Published: May 2023
News
From Pandemic’s Depths, A New Passion
Published: May 2023
The Prevalence and Characteristics of Children With Profound Autism, 15 Sites, United States, 2000-2016
Objectives: Autism spectrum disorder (autism) is a heterogeneous condition that poses challenges in describing the needs of individuals with autism and making prognoses about future outcomes. We …
Published: 2023
From Mainstream Employment to Mainstream Retirement: A Randomised Controlled Trial of a Transition to Retirement Intervention for Adults with Intellectual Disability
Background: We evaluated a transition to retirement intervention that adapted strategies used to support employment of people with intellectual disability in mainstream workplaces. The intervention…
Published: 2023
Current Services and Outcomes of Formerly Institutionalised and Never-institutionalised US Adults with Intellectual and Developmental Disabilities: A Propensity Score Matching Analysis
Background : Deinstitutionalization research shows better services and outcomes relative to institutional life but has not compared formerly institutionalised and never-institutionalised service …
Published: 2023
NCEO Brief: Gaps in the Accommodations Research Literature (#31)
Federal and state policymakers, as well as educators, rely on the accommodations research literature to evaluate how accommodations should be used to improve accessibility for students with …
Published: April 2023
1% Toolkit: Developing an Assessment Participation Action Plan: A Tool for District Leaders (NCEO Tool #14)
The purpose of this resource is to provide a tool for districts that wish to improve student assessment participation. The tool provides guidance on how district leaders can develop an assessment …
Published: April 2023
1% Toolkit: Developing an Assessment Participation Action Plan: A Tool for State Leaders (NCEO Tool #13)
The purpose of this resource is to provide a tool for states that wish to improve student assessment participation. The tool provides guidance on how state leaders can develop an assessment …
Published: April 2023
FYI from the Institute on Community Integration: April 2023
The Institute's monthly staff newsletter featuring news of recent activities, accomplishments, and resources. This month's feature stories are about new autism prevalence rates, young adults with …
Published: April 2023
News
Harnessing Uniqueness: MNLEND Fellow Leverages Neuroscience Advances to Explore Brain-Behavior Links
Published: April 2023
News
Beyond the Pay: More Reasons to End Subminimum Wages
Published: April 2023
News
Becoming: Young Adults Envision Active Futures
Published: April 2023

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