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185 results.

Using the Collective Impact Model to Organize Evidence-Based Programs to Educate Health Care Professionals About the Care Needs of Individuals with Intellectual and/or Developmental Disabilities
Background: Individuals with intellectual and/or developmental disabilities (IDDs) experience persistent health inequities, exacerbated by the systemic lack of education of health care professional…
Published: 2026
Person-Directed Staffing and Quality of Life: Links Between Staff Choice, Perceived Staff Stability and Community Participation for Individuals With IDD in the United States
Background and Aims: Direct support professionals (DSPs) are essential to individuals with intellectual and developmental disabilities (IDD), yet staff turnover remains a significant concern. This …
Published: 2026
Inclusivity in Postsecondary Preparation: Fostering Success for Each and Every Student
Background: Postsecondary enrollment has declined since 2010, with persistent racial and ethnic disparities in college access. Students of color face multiple barriers to receiving postsecondary …
Published: 2026
Exploring Quality of Life in Individuals with Intellectual and Developmental Disabilities: An Analysis of Research Studies Using National Core Indicators In-Person Survey (NCI-IPS) Data
This article presents a systematic analysis of peer-reviewed research from 2014 to 2023, focusing on the use of the National Core Indicators In-Person Survey (NCI-IPS) to explore outcomes and …
Published: 2026
Patient and Caregiver Perspectives on Neurodevelopmental and Mental Health Care for RASopathies
Plain language summary A qualitative study to understand perspectives of caregivers and people with RASopathies on their mental health care needs and treatment experiences New treatments are being …
Published: 2026
Safety, Connection, and Communication: Qualitative Insights into the Multidimensionality of Autistic Stimming
Background : Autistic stimming (e.g., repetitive movements or vocalizations) is often misunderstood or pathologized in clinical and public discourse. This study explores how Autistic adults …
Published: 2026
Technology Utilisation and Engagement in Physical Activity of Adolescents With Intellectual Disabilities: A Scoping Review
Background: Low levels of physical activity (PA) among adolescents with intellectual disabilities are a serious health concern that increases the risk for chronic health conditions. This scoping …
Published: 2026
Autism Prevalence, Co-occurring Intellectual Disability, and Support Needs Differ for Somali and Hmong Communities in Minnesota
Purpose : Previous research has documented disparities in autism prevalence and the co-occurrence of intellectual disability (ID) with autism for children from immigrant communities. The current …
Published: 2026
An Equity-Based Research Agenda to Promote Social Inclusion and Belonging for People With IDD
Having a sense of social inclusion and belonging, typically characterized by our personal relationships and community participation, is the central essence of life for most people, yet it remains …
Published: 2024
Housing and Long-Term Services and Supports for People With Intellectual or Developmental Disabilities From Racially and Culturally Minoritized Communities
This article describes research on the places people with intellectual and developmental disabilities (IDD) live and disparities in housing and long-term services and supports (LTSS) outcomes for …
Published: 2024
Implementation Drivers for Organization-Wide Positive Behavior Support: Supporting People With Intellectual and Developmental Disabilities
Organization-wide positive behavior support (OW-PBS) is a framework for improving quality of life and preventing challenging behaviors for children and adults with intellectual and developmental …
Published: 2025
A Research Agenda to Support Families of People With Intellectual and Developmental Disabilities With Intersectional Identities
Family members provide significant practical and emotional support to people with intellectual and developmental disabilities (IDD) across the lifespan. In September 2022, the State of the Science …
Published: 2024
Prevalence of Spina Bifida Across the Lifespan in the USA
Aim: To estimate the prevalence of spina bifida across the lifespan, the number of people with spina bifida by state, and variations in spina bifida prevalence by insurance type, state, and …
Published: 2026
Transition of People with Intellectual and Developmental Disabilities from School to Adulthood: A Scoping Review
Objectives : Transition from school to adulthood is important in the lives of youth with intellectual and developmental disabilities. This study seeks to identify what models, policies and trends …
Published: 2025
Telepractice-Supported Augmentative and Alternative Communication Intervention: A Systematic Review
Children with autism spectrum disorder and/or with intellectual disabilities (IDD) who experience complex communication needs often benefit from augmentative and alternative communication (AAC) …
Published: 2025
Social Determinants of Health Strand: Recommendations of the National Goals on Health Equity Working Meeting
There has been a shift in U.S. population health and wellness initiatives in the past decade from initiatives to describe health disparities to initiatives to understand and address underlying …
Published: 8/25/2025
Using Supporters to Increase Participation in Qualitative Research Interviews by People With Intellectual Disabilities
Background: Researchers need to hear directly from individuals with intellectual disabilities to better understand their experiences and perspectives. However, much inclusive research uses intervie…
Published: 2025
Characterisation of Challenging Behaviours and Associated Genetic and Neurological Features in Cardiofaciocutaneous Syndrome
Background: Challenging behaviours such as self-injury and aggression are prevalent among individuals with intellectual disability (ID), significantly impacting quality of life. Cardiofaciocutaneou…
Published: 2025
The Impact of COVID-19 on Direct Support Professionals and Frontline Supervisors Mental and Physical Health
Direct support professionals (DSPs) and frontline supervisors (FLSs) play a crucial role in the delivery of home and community-based services for people with intellectual and developmental disabili…
Published: 2025
Teacher Educators’ Perceptions of Factors Influencing Gender Mainstreaming Implementation in University Teaching 30 Years After Beijing
This study explores the perceptions of teacher educators at a public higher education institution in Alicante, Spain, regarding the implementation of gender mainstreaming (GM) in university …
Published: 2025

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