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178 results.

An Equity-Based Research Agenda to Promote Social Inclusion and Belonging for People With IDD
Having a sense of social inclusion and belonging, typically characterized by our personal relationships and community participation, is the central essence of life for most people, yet it remains …
Published: 2024
Housing and Long-Term Services and Supports for People With Intellectual or Developmental Disabilities From Racially and Culturally Minoritized Communities
This article describes research on the places people with intellectual and developmental disabilities (IDD) live and disparities in housing and long-term services and supports (LTSS) outcomes for …
Published: 2024
Implementation Drivers for Organization-Wide Positive Behavior Support: Supporting People With Intellectual and Developmental Disabilities
Organization-wide positive behavior support (OW-PBS) is a framework for improving quality of life and preventing challenging behaviors for children and adults with intellectual and developmental …
Published: 2025
A Research Agenda to Support Families of People With Intellectual and Developmental Disabilities With Intersectional Identities
Family members provide significant practical and emotional support to people with intellectual and developmental disabilities (IDD) across the lifespan. In September 2022, the State of the Science …
Published: 2024
Prevalence of Spina Bifida Across the Lifespan in the USA
Aim: To estimate the prevalence of spina bifida across the lifespan, the number of people with spina bifida by state, and variations in spina bifida prevalence by insurance type, state, and …
Published: 2026
Transition of People with Intellectual and Developmental Disabilities from School to Adulthood: A Scoping Review
Objectives : Transition from school to adulthood is important in the lives of youth with intellectual and developmental disabilities. This study seeks to identify what models, policies and trends …
Published: 2025
Telepractice-Supported Augmentative and Alternative Communication Intervention: A Systematic Review
Children with autism spectrum disorder and/or with intellectual disabilities (IDD) who experience complex communication needs often benefit from augmentative and alternative communication (AAC) …
Published: 2025
Social Determinants of Health Strand: Recommendations of the National Goals on Health Equity Working Meeting
There has been a shift in U.S. population health and wellness initiatives in the past decade from initiatives to describe health disparities to initiatives to understand and address underlying …
Published: 8/25/2025
Using Supporters to Increase Participation in Qualitative Research Interviews by People With Intellectual Disabilities
Background: Researchers need to hear directly from individuals with intellectual disabilities to better understand their experiences and perspectives. However, much inclusive research uses intervie…
Published: 2025
Characterisation of Challenging Behaviours and Associated Genetic and Neurological Features in Cardiofaciocutaneous Syndrome
Background: Challenging behaviours such as self-injury and aggression are prevalent among individuals with intellectual disability (ID), significantly impacting quality of life. Cardiofaciocutaneou…
Published: 2025
The Impact of COVID-19 on Direct Support Professionals and Frontline Supervisors Mental and Physical Health
Direct support professionals (DSPs) and frontline supervisors (FLSs) play a crucial role in the delivery of home and community-based services for people with intellectual and developmental disabili…
Published: 2025
Teacher Educators’ Perceptions of Factors Influencing Gender Mainstreaming Implementation in University Teaching 30 Years After Beijing
This study explores the perceptions of teacher educators at a public higher education institution in Alicante, Spain, regarding the implementation of gender mainstreaming (GM) in university …
Published: 2025
Examining Behavioral Interventions for Infancy and Early Toddlerhood: A Systematic Review of Intervention Effects, Parameters, and Participants
Rapid advancement is paving the way to identify children who would likely benefit from early intervention during the first years of life, prior to the onset of significant delays in development. …
Published: 2025
Caregiver Mental Health: A Review of Research Findings
The lack of adequate support services and the direct support workforce crisis means family members are providing more support for their loved ones with intellectual or developmental disabilities ( …
Published: April 2025
Prepared to Ensure Quality Education for All? A Comparative Study of Pre-service Teachers’ Self-efficacy for Inclusion in Spain and the United States
The 2030 Agenda for Sustainable Development calls for quality, inclusive education for all through Sustainable Development Goal 4 (SDG 4). Given the central role of teachers in achieving this goal …
Published: 2025
Prevalence and Early Identification of Autism Spectrum Disorder Among Children Aged 4 and 8 Years — Autism and Developmental Disabilities Monitoring Network, 16 Sites, United States, 2022
Among children aged 8 years in 2022, ASD prevalence was 32.2 per 1,000 children (one in 31) across the 16 sites, ranging from 9.7 in Texas (Laredo) to 53.1 in California. The overall observed …
Published: 2025
Self-injury and the Treatment Gap: An Interdisciplinary Exploration of Beliefs About Causal Variables and Treatment Goals Among Caregivers, Researchers, and Clinicians
Introduction: There is a gap between individuals with intellectual and developmental disabilities (IDD) who need treatment for self-injurious behavior (SIB) and those who receive it. One contributi…
Published: 2024
Interdisciplinarity and Self-injury: Toward an Inclusive Research and Treatment Paradigm
Background: Historically, the research and treatment of self-injury has been disciplinarily siloed. As a result, the behaviour is understood and treated differently among individuals with and …
Published: 2024
A Qualitative Analysis of Family Caregiver Experiences Accessing Treatment for Self-Injurious Behavior in Individuals with Intellectual and Developmental Disabilities
Introduction : There is evidence of a gap between individuals with intellectual and developmental disabilities (IDD) who need treatment for self-injurious behavior (SIB) and those who receive …
Published: 2023
The Critical Insight of Family Caregivers of Individuals with Intellectual and Developmental Disability and Severe Self-injurious Behavior
Caring for a child with self-injurious behavior (SIB) is a significant challenge, which is compounded by the lack of accessible resources to support families coping with severe SIB in autism …
Published: 2024

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