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Perspectives about adult sibling relationships: A dyadic analysis of siblings with and without intellectual and developmental disabilities
Most siblings of individuals with intellectual and developmental disabilities (IDD) report positive sibling relationships. However, extant research often only examines the perspective of the …
Published: 2019-11-01
Aging, community-based employment, mobility impairment, and retirement: National Core Indicators-Adult Community Survey data
Little is known about how, when, or why individuals with intellectual and developmental disabilities (IDD) retire. Recognizing the changing needs of older adults with IDD is critical to support …
Published: 2019-10-31
A systematic review of U.S. studies on the prevalence of intellectual or developmental disabilities since 2000
This systematic review examined 14 U.S. studies published since 2000 reporting prevalence estimates for intellectual disability (ID) or developmental disability (DD). Prevalence rates for children …
Published: 2019-10-01
Identifying people with intellectual and developmental disabilities in national population surveys
Public health and policy planning for adults with intellectual and developmental disabilities (IDD) is imperiled by the lack of ongoing national surveillance data on prevalence and health status. …
Published: 2019-10-01
What matters: Lessons learned from the implementation of PROMISE model demonstration projects
Background: PROMISE Model Demonstration Projects (MDPs) are on the front line of innovative, comprehensive supports for transition-aged youth and their families. Investments made through PROMISE …
Published: 2019-09-27
Examining the National Core Indicators' potential to monitor rights of people with intellectual and developmental disabilities according to the CRPD
The Convention on the Rights of Persons with Disabilities (CRPD) aims to change attitudes and policies toward individuals with disabilities worldwide and to foster the inclusion and independence …
Published: 2019-09-10
Factors influencing low prevalence of neurodevelopmental disabilities among US Hispanic/Latino children
Objectives: Hispanic/Latino (H/L) children have lower prevalence of neurodevelopmental disabilities (NDD) than other groups. The explanations for this are complex, but may be related to nativity, …
Published: 2019-07-01
Implementing aided augmentative communication systems with persons having complex communicative needs
Augmentative and alternative communication (AAC) systems can support communication skills for people with significant developmental disabilities who experience complex communication needs (CCNs). …
Published: 2019-06-25
Be a change agent: Tools and techniques to support organizational and individual transformation
Background: More people with disabilities are living and working in the community than ever before, including many who receive support from provider organizations and state agencies. These organiza…
Published: 2019-05-20
Fiscal stewardship, choice, and control: The context of self-directed services for people with intellectual and developmental disabilities (IDD) in the United States
Self-directed home and community based services (HCBS) waiver services and supports for people with intellectual and developmental disabilities (IDD) have become a viable and widely used method of …
Published: 2019-04-01
Putting the pieces together: Perceptions of longitudinal wraparound, systems of care, and Positive Behavior Support implementation
Positive Behavior Support (PBS) was introduced to community-based providers in Kansas in 2012 in response to a federally funded initiative to reduce the placement of youth in psychiatric facilities…
Published: 2019-03-25
Active Support training, staff assistance, and engagement of individuals with intellectual and developmental disabilities in the United States: Randomized controlled trial
Two non-U.S. quasi-experimental studies reported Active Support training was associated with increased engagement in individuals with IDD, but no randomized controlled trials (RCTs) exist. We …
Published: 2019-03-01
Psychotropic medication use for adults with autism spectrum disorder who receive services and supports through adult developmental disability services in the United States
Individuals with autism spectrum disorder (ASD) have higher rates of co-occurring diagnoses and use of psychotropic medication prescriptions than people with other developmental disabilities. Few …
Published: 2019-01-31
Weekly wage exploration of vocational rehabilitation service recipients: A quantile regression approach
Earnings of people with intellectual and developmental disability (IDD) in a labor market can be a useful indicator of the quality of employment, economic mobility, and the quality of life of …
Published: 2019
Deinstitutionalization
Most people with intellectual or developmental disabilities (ID/DD) in the United States live with family members or in homes they own or lease, alone or with friends. They receive support from …
Published: 2018
Long-Term Supports and Services
Long-term supports and services (LTSS) facilitate a person’s full participation in daily tasks such as dressing, bathing, and eating; household activities such as shopping, cooking, and cleaning; …
Published: 2018
Exploring the Role of Prevocational Services for People With Intellectual and Developmental Disabilities in Medicaid HCBS Waivers
BACKGROUND:Day and employment services provided by state intellectual and developmental disabilities (IDD) agencies, with funding from Medicaid Home and Community Based Services (HCBS), have shown …
Published: 2018
Exploring Retirement for Individuals With Intellectual and Developmental Disabilities: An Analysis of National Core Indicators Data
To begin to understand retirement, we examined age-related differences in (a) employment rates, employment hours, and rates of individual-plan employment goals; and (b) participation rates in …
Published: 2018
A Comprehensive Model of Employment Supports for Job Seekers With Intellectual and Developmental Disabilities
Interviews with 16 employment consultants-triangulated with job seekers, family members, and supervisors-revealed a model of employment supports aligned with the elements described in the literatur…
Published: 2018
Vocational Rehabilitation Service Usage and Outcomes for Individuals With Autism Spectrum Disorder
In the pursuit of improving employment outcomes for individuals with Autism Spectrum Disorder (ASD), understanding how participants are using Vocational Rehabilitation (VR), and which services …
Published: 2017

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