The objectives of our study were to (a) report how many children met an autism spectrum disorder (ASD) surveillance definition but had no clinical diagnosis of ASD in health or education records…
Background: Many individuals with intellectual and developmental disabilities (IDD) have sedentary lifestyles. Aims: (a) compare adults with IDD with the general adult population on adherence to…
This study examined whether experimental functional analyses (FAs) conducted by parents at home with coaching via telehealth would produce differentiated results, and compared these results to the…
Most siblings of individuals with intellectual and developmental disabilities (IDD) report positive sibling relationships. However, extant research often only examines the perspective of the…
Little is known about how, when, or why individuals with intellectual and developmental disabilities (IDD) retire. Recognizing the changing needs of older adults with IDD is critical to support…
This systematic review examined 14 U.S. studies published since 2000 reporting prevalence estimates for intellectual disability (ID) or developmental disability (DD). Prevalence rates for children…
Public health and policy planning for adults with intellectual and developmental disabilities (IDD) is imperiled by the lack of ongoing national surveillance data on prevalence and health status.…
Background: PROMISE Model Demonstration Projects (MDPs) are on the front line of innovative, comprehensive supports for transition-aged youth and their families. Investments made through PROMISE…
The Convention on the Rights of Persons with Disabilities (CRPD) aims to change attitudes and policies toward individuals with disabilities worldwide and to foster the inclusion and independence of…
Objectives: Hispanic/Latino (H/L) children have lower prevalence of neurodevelopmental disabilities (NDD) than other groups. The explanations for this are complex, but may be related to nativity,…
Augmentative and alternative communication (AAC) systems can support communication skills for people with significant developmental disabilities who experience complex communication needs (CCNs).…
Background: More people with disabilities are living and working in the community than ever before, including many who receive support from provider organizations and state agencies. These…
Self-directed home and community based services (HCBS) waiver services and supports for people with intellectual and developmental disabilities (IDD) have become a viable and widely used method of…
Positive Behavior Support (PBS) was introduced to community-based providers in Kansas in 2012 in response to a federally funded initiative to reduce the placement of youth in psychiatric…
Two non-U.S. quasi-experimental studies reported Active Support training was associated with increased engagement in individuals with IDD, but no randomized controlled trials (RCTs) exist. We…
Individuals with autism spectrum disorder (ASD) have higher rates of co-occurring diagnoses and use of psychotropic medication prescriptions than people with other developmental disabilities. Few…
Earnings of people with intellectual and developmental disability (IDD) in a labor market can be a useful indicator of the quality of employment, economic mobility, and the quality of life of…
Most people with intellectual or developmental disabilities (ID/DD) in the United States live with family members or in homes they own or lease, alone or with friends. They receive support from…
Long-term supports and services (LTSS) facilitate a person’s full participation in daily tasks such as dressing, bathing, and eating; household activities such as shopping, cooking, and cleaning;…
BACKGROUND:Day and employment services provided by state intellectual and developmental disabilities (IDD) agencies, with funding from Medicaid Home and Community Based Services (HCBS), have shown…
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