The Critical Insight of Family Caregivers of Individuals with Intellectual and Developmental Disability and Severe Self-injurious Behavior

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Author(s)
Caroline L Roberts, Frank J Symons
Web
Cost:
Free

Description

Caring for a child with self-injurious behavior (SIB) is a significant challenge, which is compounded by the lack of accessible resources to support families coping with severe SIB in autism spectrum disorder (ASD) and other intellectual and developmental disabilities (IDD). As Brietbart et al. discuss, the impact of SIB can be wide-ranging, profoundly influencing an individual's long-term health, their family, school environment, and community access. Although treatment options exist, including behavioral interventions, there is evidence of a disturbing gap between individuals who need treatment for SIB and those who receive it. Firsthand accounts of the lived experience of SIB offer crucial insights into why this treatment gap exists and how to close it.

Suggested Citation

Roberts, C., & Symons, F. (2024). The critical insight of family caregivers of individuals with intellectual and developmental disability and severe self‐injurious behavior. Developmental Medicine & Child Neurology. https://doi.org/10.1111/dmcn.16212

Details

Date
2024 
Type
Peer-Reviewed Article 
Publisher
Wiley

Topics

  • Community life
    • Parenting and family relationships
  • Health and safety
    • Health and wellness
  • Specific disability
    • Intellectual/developmental disability (IDD)