Sheryl A Larson

A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2016. It is based on an annual …

A brief summarizing findings from the National Health Interview Survey Disability Supplement conducted by the U.S. Bureau of the Census, National Center on Health Statistics in 1994 and 1995. It …

A brief summarizing findings from the National Health Interview Survey conducted by the U.S. Bureau of the Census, National Center on Health Statistics in 1994 and 1995. In these years, 202,560 …

A follow-up brief to issue 3(1) describing the social activities of adults with intellectual and/or developmental disabilities (ID/DD) using the National Health Interview Survey Disability Suppleme…

A brief offering a second look at the 1997-2004 National Health Interview Survey (NHIS) and its usefulness in describing the characteristics and needs of persons with intellectual or developmental …

A brief representing a departure from previous issues in the series, which have focused on the characteristics and needs of persons with intellectual or developmental disabilities (ID/DD) in the …

A brief summarizing findings from the National Health Interview Survey conducted by the U.S. Bureau of the Census, National Center on Health Statistics, in 1994 and 1995, which included a Disabilit…

A brief summarizing findings from the National Health Interview Survey on Disability conducted by the U.S. Bureau of the Census, National Center on Health Statistics in 1994 and 1995. It is an …

A brief describing the experiences with public and private health insurance coverage for people with functional limitations, people with IDD, and people who do not have IDD or functional limitation…

A brief using the 1994-1995 Child Disability Follow-Back Survey (DFS) of the National Health Interview Survey (NHIS) to examine the characteristics of children between the ages of 6 and 17 who …

A brief comparing the demographic characteristics, health status, functional limitations, and perceived disability status for adults in three groups who had mental retardation and/or developmental …

A brief describing people with mental retardation and/or developmental disabilities (MR/ DD) living in the community in terms of demographic characteristics and economic status. Those characteristi…

A brief describing people with MR/DD living in the community in terms of basic demographic characteristics, functional and other limitations, residential services history, medical services received…

A report updating information in previous National Center on Educational Outcomes (NCEO) reports that, since 2007, have annually compiled, analyzed, and summarized states' participation guidelines …

A curriculum targeting frontline supervisors and managers regarding the use of effective recruitment, retention, and training strategies. Includes Facilitator Guide and Learner Guide.

Most people with IDD, whether they get funded support or not, live with family members throughout their lives. This Policy Research Brief describes living arrangements for people with IDD, trends …

A brief reviewing U.S. studies that have measured behavioral outcomes associated with the movement of people with intellectual and/or developmental disabilities from institutions to community …

People with intellectual and developmental disabilities (IDD) often rely on long-term services and supports (LTSS) to live and work in the community or with their families. As policy reforms …

Public health and policy planning for adults with intellectual and developmental disabilities (IDD) is imperiled by the lack of ongoing national surveillance data on prevalence and health status. …

A report summarizing the results of the FAST Family Support Survey, a 2010 national Internet survey of 2,416 parents or relatives of children and youth ages 11 years to 39 years with disabilities …

A planning guide and curriculum for supervisors and agency staff focusing on socialization and skill development for all employees. Includes Program Coordinator Guide, Facilitator Guide, and …

A nationally validated set of 11 competency areas, known as the National Frontline Supervisor Competencies, guiding the work of frontline supervisors in the direct support workforce.

A set of behavioral and situational interview questions gauging the knowledge of external frontline supervisor candidates about the 11 competencies identified in the National Frontline Supervisor …

A test helping frontline supervisors and frontline supervisor candidates to evaluate their current performance level and create a self-development plan. Known as the Frontline Supervisor Assessment…

A report covering the national Internet survey that The Arc of the United States conducted in 2010 that aimed to capture the perspectives of people with intellectual and developmental disabilities …

A document and form helping Direct Support managers to determine their staff turnover and vacancy rates. This, in turn, allows them to choose retention strategies, identify reasons for agency …

A technical report describing results from a survey of state intellectual and developmental disabilities (IDD) agencies for FY 2012 on the status and trends of long-term supports and services for …

A brief providing a state-by-state summary of services supporting individuals with disabilities living in the family home. Data presented are based on the State of the States in Developmental …

A brief summarizing the results of a national study on the status of consumer-directed services for persons with intellectual or developmental disabilities. The study was conducted at the Universit…

Two non-U.S. quasi-experimental studies reported Active Support training was associated with increased engagement in individuals with IDD, but no randomized controlled trials (RCTs) exist. We …

A brief describing models, innovations, and best practices in case management and support coordination for persons with disabilities. The approaches presented were identified during a study …

A brief presenting selected findings from a study and literature review describing the experiences of Supplemental Security Income (SSI) recipients and nonrecipients and their families in relation …

A brief examining state policies regarding termination of parental rights, focusing on the extent to which states use disability status as grounds for termination.

A brief providing an overview of family support services in the states based on data gathered for the State of the States in Developmental Disabilities Project, a longitudinal study of public …

A brief examining and summarizing the research and policy issues that state policymakers may face as they consider whether to increase, reduce, or close institutions in their own states.

A brief reporting the results from a review of 38 published studies that measured behavioral outcomes associated with the movement of people with mental retardation from public institutions to …

A report describing a project that refined, tested, and delivered a "Train-the-Trainer" model to the National Training Institute for Frontline Supervisors. The project also provided a distributed...

A report examining organizational workforce outcomes; characteristics of and differences between managers, Frontline Supervisors (FLS) and Direct Support Professionals (DSPs); and workplace...

A report summarizing statistics that were gathered and analyzed for the Supporting Individuals and Families Information Systems Project (FISP). It includes information about the numbers of, and …

A report describing the experiences of Direct Support Professionals (DSPs) who worked in New Orleans between August 2005 and May 2006 - before, during, and after Hurricanes Katrina and Rita. In …

A brief summarizing the report, You Know that it's Got to be Dedication that I am Still Here: The Experiences of Direct Support Professionals During Hurricanes Katrina and Rita, and the Aftermath …

A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2014. It is based on an annual …

A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2015. It is based on an annual...

This study examined access to and quality of supports for families of adolescents with disabilities.Methodology: An online survey was completed by family members of transition-aged young adults …

Ever wonder how many people in the United States have intellectual or developmental disabilities (IDD), how many of them get publicly funded supports from state IDD agencies, or where people …

Many people with intellectual and developmental disabilities (IDD) who live in state-run facilities of 16 or more people have had previous criminal involvement. In 2019, 29% of people admitted to …

This article examines everyday choices made by 8,892 adults with intellectual and developmental disabilities (IDD) and support-related choices made by 6,179 adults with IDD receiving services from …

Nearly three-quarters of people with intellectual or developmental disabilities (IDD) who receive publicly funded support live at home with family members or in their own homes, this report from …

ICI's Residential Information Systems Project (RISP) gets information each year from state IDD agencies about the places where people with IDD live. In 1977, 247,780 people with IDD lived in large …

Historically, people with intellectual and developmental disabilities (IDD) have experienced health disparities related to several factors including: a lack of access to high quality medical care, …

Since 1982, the number of individuals with Intellectual and Developmental Disabilities (IDD) receiving services in community settings has surged, while those in Medicaid-funded IDD institutions …

In 1967, almost 200,000 people with intellectual and developmental disabilities (IDD) lived in large state institutions. Initially, those leaving state facilities moved to non-state ones. Starting …

Long-term supports and services (LTSS) facilitate a person’s full participation in daily tasks such as dressing, bathing, and eating; household activities such as shopping, cooking, and cleaning; …

The number of people known to state IDD agencies and the number receiving services increased 21% from 2013 to 2020. In 2020, 85% of the people known to state IDD agencies got one or more services …

The large, often miserable, state-run institutions that used to house people with intellectual or developmental disabilities (IDD) are closing as people with IDD increasingly live in community. …

Most people with intellectual or developmental disabilities (ID/DD) in the United States live with family members or in homes they own or lease, alone or with friends. They receive support from …

The 2014 Medicaid HCBS Final Rule aims to improve outcomes for individuals with intellectual and developmental disabilities (IDD) and enhance their rights and choices. The rule coincided with a …

This Policy Forum from February 14, 2023 discussed the Policy Research Brief titled, Overrepresentation of People with Intellectual and Developmental Disabilities Moving Between Large State-run …

The U.S. Department of Education defines physical restraints as a restriction that immobilizes or reduces the ability to move torso, arms, legs, or head freely. Because of the inherent dangers of …

This systematic review examined 14 U.S. studies published since 2000 reporting prevalence estimates for intellectual disability (ID) or developmental disability (DD). Prevalence rates for children …

This Policy Forum from June 23, 2022 discusses the recent Policy Research Brief titled, Are Large Institutions for People with Intellectual or Developmental Disabilities a Thing of the Past? …

This article reviews 43 U.S. studies assessing adaptive and challenging behavior outcomes associated with people with intellectual and developmental disabilities (IDD) who moved from institutions …

In 2020, there were an estimated 6.1 million children with intellectual disability, autism spectrum disorders, or developmental delays, of whom 11% were known to state IDD agencies. There were an …

Ever wonder how many people in the United States have intellectual or developmental disabilities (IDD), how many of them get publicly-funded supports from state IDD agencies, or where people …

This Policy Forum from November 1, 2022 discusses the recent Policy Research Brief titled, Most People with IDD Getting Long-term Supports Live with a Family Member . Slides from the presentation …

Medicaid requires states to provide institutional services to eligible Medicaid recipients, but allows states to have waiting lists for recipients preferring home and community based services. …

This Policy Forum from October 3, 2023 discussed the Policy Research Brief titled, Institutional Bias in Long-Term Services and Supports for People with IDD . Slides from the presentation are …

In 1967, 29.1% of adults with IDD in the U.S. lived in large state-run institutions, while most others resided with family. By 2020, only 0.7% lived in such facilities, with an additional 1.9% in …

Key Findings: In the United States family members are the primary providers of long-term services and supports (LTSS) for people with IDD. More than three of every four people with IDD of all ages …

This fact sheet on testing over multiple days is part of the Accommodations Toolkit published by the National Center on Educational Outcomes (NCEO). It summarizes information and research findings …

People with intellectual and developmental disabilities (IDD) typically have better lives when they live on their own, with family, or in other community-based settings compared to institutions. …

In some states, people with IDD are on waiting lists for years before they receive necessary services. However, there are different ways of measuring waitlists and who to include when reporting on …

In 2020, almost a million people with IDD received HCBS waiver services with an average per-person expenditure of $49,787. Adults often live in non-family homes, so their waiver expenditures are …

Medicaid Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IIDs) are institutions where four to 500 people live and get support. Use of these facilities is declining …

Individuals with ambulatory disabilities or mobility limitations comprise approximately 7% of the US population ages 5 and older. Persons with mobility limitations/physical disabilities are more …

Ever wonder how many people in the United States have IDD or what proportion of them received federal- or state-funded supports? The 2020 report from the Residential Information Systems Project …