RISP Data Bytes: Shift from State to Non-state Congregate IDD Settings, 1998 to 2020

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Part of the RISP Data Bytes series.
Author(s)
Sheryl A Larson, Jon Neidorf, Brian C Begin
Web
Cost:
Free

Description

In 1967, almost 200,000 people with intellectual and developmental disabilities (IDD) lived in large state institutions. Starting in 1981, the Medicaid Home and Community-Based Waiver helps people with IDD live with family or in small community homes. This Data Byte shows the decrease in people living in large state and non-state institutions between 1998 and 2020. Currently, about 85,000 people live in institutions. States should reduce this number because research shows people in smaller homes are happier and have more control over their living situation.

Details

Date
March 2025 
Type
Brief 
Publisher
Residential Information Systems Project (RISP)

Topics

  • Housing and residential services
    • Institutions and deinstitutionalization
    • Medicaid services (residential)
  • Specific disability
    • Intellectual/developmental disability (IDD)