• Researcher 5
Email
jneidorf@umn.edu

Projects

Project

Residential Information Systems Project (RISP)

Examines the status of, and longitudinal trends in, provision of institutional and home and community based long-term supports and services for people with intellectual and developmental disabiliti…

Products

Long-term Supports and Services for Persons with Intellectual or Developmental Disabilities: Status and Trends Through 2019

Ever wonder how many people in the United States have intellectual or developmental disabilities (IDD), how many of them get publicly funded supports from state IDD agencies, or where people …

Published: 2022

RISP Data Bytes: Jails, Prisons, and Large State Institutions

Many people with intellectual and developmental disabilities (IDD) who live in state-run facilities of 16 or more people have had previous criminal involvement. In 2019, 29% of people admitted to …

Published: 2024

RISP Data Bytes: More People with IDD get Services in Homes Shared by Three or Fewer People

ICI's Residential Information Systems Project (RISP) gets information each year from state IDD agencies about the places where people with IDD live. In 1977, 247,780 people with IDD lived in large …

Published: 2023

RISP Data Bytes: Changes in Spending for Long-term Services and Supports between 1982 and 2019

Since 1982, the number of individuals with Intellectual and Developmental Disabilities (IDD) receiving services in community settings has surged, while those in Medicaid-funded IDD institutions …

Published: 2024

RISP Data Bytes: Most People in Large IDD Facilities Now Live in Settings Operated by Nonstate Providers

In 1967, almost 200,000 people with intellectual and developmental disabilities (IDD) lived in large state institutions. Initially, those leaving state facilities moved to non-state ones. Starting …

Published: 2023

RISP Data Bytes: Caseloads versus People Receiving Services

The number of people known to state IDD agencies and the number receiving services increased 21% from 2013 to 2020. In 2020, 85% of the people known to state IDD agencies got one or more services …

Published: 2024

Policy Forum: Overrepresentation of People with Intellectual and Developmental Disabilities Moving Between Large State-run Institutions and the Criminal Legal System

This Policy Forum from February 14, 2023 discussed the Policy Research Brief titled, Overrepresentation of People with Intellectual and Developmental Disabilities Moving Between Large State-run …

Published: 2/14/2023

Policy Research Brief: Overrepresentation of People with Intellectual and Developmental Disabilities Moving Between Large State-run Institutions and the Criminal Legal System

People with intellectual and developmental disabilities (IDD) are overrepresented in the criminal legal system. Further, many people with IDD move between large state-run institutions and the …Published: January 2023

RISP Data Bytes: Prevalence of Intellectual and Developmental Disabilities in the U.S.

In 2020, there were an estimated 6.1 million children with intellectual disability, autism spectrum disorders, or developmental delays, of whom 11% were known to state IDD agencies. There were an …

Published: September 2024

Long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2018

Ever wonder how many people in the United States have intellectual or developmental disabilities (IDD), how many of them get publicly-funded supports from state IDD agencies, or where people …

Published: 2021

Policy Research Brief: State IDD Agencies’ Views on Self-Directed Services

Self-direction allows people with intellectual and developmental disabilities (IDD) to control most aspects of their home- and community-based services. Other names that states use for self- …

Published: September 2023

RISP Data Bytes: Institutionalized Adults with IDD, 1967 to 2020

In 1967, 29.1% of adults with IDD in the U.S. lived in large state-run institutions, while most others resided with family. By 2020, only 0.7% lived in such facilities, with an additional 1.9% in …

Published: 2024

RISP Data Bytes: Estimated Annual Per Person Medicaid Expenditures by Living Arrangement for Adults with IDD, FY 2020

People with intellectual and developmental disabilities (IDD) typically have better lives when they live on their own, with family, or in other community-based settings compared to institutions. …

Published: October 2024

RISP Data Bytes: People with IDD Waiting for HCBS Waiver-Funded Supports in 2020

In some states, people with IDD are on waiting lists for years before they receive necessary services. However, there are different ways of measuring waitlists and who to include when reporting on …

Published: November 2024

RISP Data Bytes: Expenditures Per Person by Age in 2020

In 2020, almost a million people with IDD received HCBS waiver services with an average per-person expenditure of $49,787. Adults often live in non-family homes, so their waiver expenditures are …

Published: August 2024

RISP Data Bytes: Fewer People with IDD Live in ICF/IIDs, But Progress is Not Equal

Medicaid Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IIDs) are institutions where four to 500 people live and get support. Use of these facilities is declining …

Published: 2024