Examines the status of, and longitudinal trends in, provision of institutional and home and community based long-term supports and services for people with intellectual and developmental disabilities (IDD). The project, which began in 1977, collects annual data from state IDD agencies about state and non-state operated services, residential setting types and sizes, Medicaid and other funding authorities, and recipient age. It describes state and national trends in where LTSS recipients live, examines the impact of Medicaid and other Federal policies on state systems, and informs research, legislation, litigation, and policy.
In 1967, 29.1% of adults with IDD in the U.S. lived in large state-run institutions, while most others resided with family. By 2021, only 0.7% lived in such facilities, with an additional 0.8% in …
A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2016. It is based on an annual …
Since the 1960s, living arrangements for people with intellectual or developmental disabilities (IDD) have shifted from institutions to smaller, community-based settings, supported by Medicaid …
A website presenting the Study of Medicaid Funded In-home and Residential Long-term Supports and Services for Persons with Intellectual or Developmental Disabilities project (RISP), which gathers,...
A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2014. It is based on an annual …
A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2015. It is based on an annual...
Many people with intellectual and developmental disabilities (IDD) who live in state-run facilities of 16 or more people have had previous criminal involvement. In 2023, 19% of people admitted to …
The number of people known to state IDD agencies and the number receiving services increased 21% from 2013 to 2020. In 2020, 85% of the people known to state IDD agencies got one or more services …
The 2014 Medicaid HCBS Final Rule aims to improve outcomes for individuals with intellectual and developmental disabilities (IDD) and enhance their rights and choices. The rule coincided with a …
Funding for support for people with intellectual and developmental disabilities (IDD) comes from a variety of funding sources called funding authorities. In 2020, every state and the District of …
People with intellectual and developmental disabilities (IDD) typically have better lives when they live on their own, with family, or in other community-based settings compared to institutions. …
In some states, people with IDD are on waiting lists for years before they receive necessary services. However, there are different ways of measuring waitlists and who to include when reporting on …
In 2020, almost a million people with IDD received HCBS waiver services with an average per-person expenditure of $49,787. Adults often live in non-family homes, so their waiver expenditures are …
In 1982, almost all long-term supports and services (LTSS) for people with intellectual and developmental disabilities (IDD) were provided in institutions licensed as Medicaid Intermediate Care …
Since the 1960s, living arrangements for people with intellectual or developmental disabilities (IDD) have shifted from institutions to smaller, community-based settings supported by Medicaid Home …
Medicaid Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IIDs) are institutions where four to 500 people live and get support. Use of these facilities is declining …
In 1967, almost 200,000 people with intellectual and developmental disabilities (IDD) lived in large state institutions. Starting in 1981, the Medicaid Home and Community-Based Waiver helps people …
Every year, the number of people with intellectual and developmental disabilities (IDD) receiving long-term supports and services (LTSS) grows. However, there are still people with IDD on waiting …
Since 1982, the number of individuals with Intellectual and Developmental Disabilities (IDD) receiving services in community settings has surged, while those in Medicaid-funded IDD institutions …
In 2021, almost a million people with IDD received HCBS waiver services with an average per-person expenditure of $51,835. Adults often live in non-family homes, so their waiver expenditures are …
Using data from the Residential Information Systems Project (RISP) is a powerful way to tell the story of residential services for people with intellectual and developmental disabilities (IDD). It …
In 2020, there were an estimated 6.1 million children with intellectual disability, autism spectrum disorders, or developmental delays, of whom 11% were known to state IDD agencies. There were an …
As a Project of National Significance, RISP provides critical and unique insights about residential supports to people with IDD across the United States, but RISP collects other data too. While …
Published: October 2025
Topics
Community life
Community supports and services
Person-centered planning and practices
Quality outcomes
Housing and residential services
Community group residential
Consumer/self-directed services
Family supports/in-home services
Institutions and deinstitutionalization
Medicaid services (residential)
Specific disability
Intellectual/developmental disability (IDD)
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