In-Home and Residential Long-Term Supports and Services for Persons with Intellectual or Developmental Disabilities: Status and Trends Through 2016


A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2016. It is based on an annual nationwide survey of directors of state intellectual and developmental disability agencies and large state residential facilities conducted by the National Residential Information Systems Project (RISP) at the Research and Training Center on Community Living. The report presents data on individualized and congregate settings, utilization and expenditures for Medicaid's Home and Community-Based Waiver (HCBS) and Medicaid's Intermediate Care Facilities for Individuals with Intellectual Disabilities program, national longitudinal trends in the utilization of and expenditures for long-term services and supports, and services and supports provided in state-operated facilities serving 16 or more people with intellectual and developmental disabilities.


RISP: National Residential Information Systems Project: Data Collection and Information Dissemination on Residential and In Home Services for People with Intellectual and Developmental Disabilities (RISP)
Research and Training Center on Community Living (RTC-CL)


  • Community life
    • Community supports and services
    • Housing and residential services
      • Community group residential
        • Consumer/self-directed services
          • Family supports/in-home services
            • Housing access
              • Institutions and deinstitutionalization
                • Medicaid services (residential)
                • Specific disability
                  • Intellectual/developmental disability (IDD)
                    • Multiple disabilities
                    • Specific life stage
                      • Adults
                        • Children