Long-term Supports and Services for Persons with Intellectual or Developmental Disabilities: Status and Trends Through 2019


Ever wonder how many people in the United States have intellectual or developmental disabilities (IDD), how many of them get publicly funded supports from state IDD agencies, or where people getting supports live? The 2022 report from the Residential Information Systems Project (RISP) describes Medicaid- and state-funded long-term supports and services for people with IDD of all ages. It includes both annual national and state-level data as well as key trends from 1977 through 2019. The report is used by researchers to provide a context for their research articles. It is used by policymakers and advocates to inform national and state policy. Digital copies of the report are available at https://risp.umn.edu/. The RISP website includes state profiles, downloadable infographics, and customizable tables and graphs.

Suggested Citation

Larson, S. A., Neidorf, J., Pettingell, S., & Sowers, M. (2022). Long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2019. Minneapolis: University of Minnesota, Institute on Community Integration.


Research and Training Center on Community Living (RTC-CL)


  • Housing and residential services
    • Community group residential
    • Consumer/self-directed services
    • Family supports/in-home services