Policy Research Brief: Most People with IDD Getting Long-term Supports Live with a Family Member


Most people with IDD, whether they get funded support or not, live with family members throughout their lives. This Policy Research Brief describes living arrangements for people with IDD, trends in Medicaid HCBS funding for people living with families, state variations in the proportion of service recipients with IDD living with families, and challenges for family caregivers. Continued investments are needed to support people with IDD and the families with whom they live.

Suggested Citation

Genjang, N., Anderson, L. L., & Larson, S. A. (2022). Policy Research Brief: Most people with IDD getting long-term supports live with a family member (Vol. 29, Issue 3). University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration. https://publications.ici.umn.edu/community-living/prb/29-3/main


October 2022 
Volume 29, Number 3
Institute on Community Integration, University of Minnesota


  • Housing and residential services
    • Family supports/in-home services
  • Specific disability
    • Intellectual/developmental disability (IDD)