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The Prevalence and Characteristics of Children With Profound Autism, 15 Sites, United States, 2000-2016
Objectives: Autism spectrum disorder (autism) is a heterogeneous condition that poses challenges in describing the needs of individuals with autism and making prognoses about future outcomes. We …
Published: 2023
From Mainstream Employment to Mainstream Retirement: A Randomised Controlled Trial of a Transition to Retirement Intervention for Adults with Intellectual Disability
Background: We evaluated a transition to retirement intervention that adapted strategies used to support employment of people with intellectual disability in mainstream workplaces. The intervention…
Published: 2023
Current Services and Outcomes of Formerly Institutionalised and Never-institutionalised US Adults with Intellectual and Developmental Disabilities: A Propensity Score Matching Analysis
Background : Deinstitutionalization research shows better services and outcomes relative to institutional life but has not compared formerly institutionalised and never-institutionalised service …
Published: 2023
Editorial: Improving the Quality of Outcome Measurement for Adults with Disabilities Receiving Community-based Services
This special issue of Frontiers in Rehabilitation Sciences: Disability, Rehabilitation, and Inclusion is designed to fill this gap in understanding the current landscape of measurement approaches …
Published: 2023
Teaching Requesting to Individuals with Rett Syndrome Using Alternative Augmentative Communication (AAC) Through Caregiver Coaching via Telehealth
Rett syndrome is a severe neurodevelopmental disorder that results in both motor and language skill regression with a wide range of severity in symptom presentation. Communication intervention may …
Published: 2023
Early Identification of Autism Spectrum Disorder Among Children Aged 4 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020
Description of system: The Autism and Developmental Disabilities Monitoring Network is an active surveillance program that estimates prevalence and characteristics of ASD and monitors timing of …
Published: 2023
Disability-Inclusive Education, Development, and Dialectics: Complex Cases in Bhutan
Disability-inclusive education and development have become priorities for global governance organizations over the past decade and have thus introduced new complexities to existing development …
Published: 2023
Transition to Retirement: The Lived Experiences of Adults with Intellectual Disabilities
Background : Adults with intellectual disabilities are living longer and experiencing retirement. However, research about retirement experiences is limited. Method : This qualitative study used …
Published: 2023
Media Review: Dreams of Birds Flying in the Sky directed by Arun Bhattarai and produced by Matthew Schuelka. Fora Films, 2021. 58 minutes.
The use of film as both a methodological research tool and a research dissemination tool can significantly affect our multimedia and digital age. Evidence and my own experiences support this …
Published: 2023
Direct Support Professionals and COVID-19 Vaccination: A Comparison of Vaccinated and Unvaccinated Direct Support Professionals
Direct support professionals (DSPs) may be at increased risk of contracting COVID-19 due to the proximal nature of their work. In response to the pandemic a three-wave study was launched to …
Published: 2023
Statewide County-level Autism Spectrum Disorder Prevalence Estimates — Seven U.S. States, 2018
Purpose: Autism spectrum disorder (ASD) prevalence information is necessary for identifying community needs such as addressing disparities in identification and services. Methods: Seven Autism and …
Published: 2023
Promoting Family Engagement and Early Identification of Developmental Delays: The Role of Act Early Ambassadors
Early identification of developmental delays in young children is a national priority. Yet, a significant number of children do not receive timely developmental monitoring and screening as part of …
Published: 2022
Direct Support Professional and Frontline Supervisor Perspectives on Work-Life in a Pandemic
Direct support professionals (DSPs) and frontline supervisors (FLSs) play an invaluable role in delivering home and community-based services to people with intellectual and developmental disabiliti…
Published: 12/1/2022
Caregiver-Implemented Communication Interventions for Children Identified as Having Language Impairment 0 Through 48 Months of Age: A Scoping Review
Purpose: Caregiver-implemented interventions are frequently used to support the early communication of young children with language impairment. Although there are numerous studies and meta-analyses…
Published: 2022
Community Employment, Facility-based Work, and Day Activities for Working Age People with Intellectual and Developmental Disability
Background: Individuals with Intellectual and Developmental Disability (IDD) participate in a variety of day/employment activities including community-based activities and work and facility-based …
Published: 2022
‘If and When?’: The Beliefs and Experiences of Community Living Staff in Supporting Older People with Intellectual Disability to Know about Dying
Background: The aim of this study was to explore the way in which community living staff engaged with people with intellectual disability (ID) about dying and death. Method: Guided by grounded …
Published: 2012
Workforce: Goals for Research and Innovation
Across the United States, there is growing demand for a competent and stable workforce able to effectively support the health and community lives of individuals with intellectual and developmental …
Published: 2015
Competency-Based Training and Worker Turnover in Community Supports for People With IDD: Results From a Group Randomized Controlled Study
Turnover among direct support professionals (DSPs) in community support settings for individuals with intellectual and developmental disabilities (IDD) has been regarded as a challenge since …
Published: 2015
Contextual Factors Associated with Implementing Active Support in Community Group Homes in the United States: A Qualitative Investigation
Although numerous studies in the U.K. and Australia have shown that Active Support (AS) is an effective intervention in increasing staff assistance and engagement for people with intellectual and …
Published: 2017
The Effects of a Competency-based Training Intervention for Direct Support Professionals on Site-level Outcomes, Learner Outcomes, and Service Recipient Outcomes
Introduction: This study, informed by the literature, tested this assumption that competency-based training aimed to help to reduce direct support professional (DSP) turnover in residential and …
Published: 2019

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