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Transition of People with Intellectual and Developmental Disabilities from School to Adulthood: A Scoping Review
Objectives : Transition from school to adulthood is important in the lives of youth with intellectual and developmental disabilities. This study seeks to identify what models, policies and trends …
Published: 9/27/2025
Telepractice-Supported Augmentative and Alternative Communication Intervention: A Systematic Review
Children with autism spectrum disorder and/or with intellectual disabilities (IDD) who experience complex communication needs often benefit from augmentative and alternative communication (AAC) …
Published: 2025
Social Determinants of Health Strand: Recommendations of the National Goals on Health Equity Working Meeting
There has been a shift in U.S. population health and wellness initiatives in the past decade from initiatives to describe health disparities to initiatives to understand and address underlying …
Published: 8/25/2025
Using Supporters to Increase Participation in Qualitative Research Interviews by People With Intellectual Disabilities
Background: Researchers need to hear directly from individuals with intellectual disabilities to better understand their experiences and perspectives. However, much inclusive research uses intervie…
Published: 2025
Characterisation of Challenging Behaviours and Associated Genetic and Neurological Features in Cardiofaciocutaneous Syndrome
Background: Challenging behaviours such as self-injury and aggression are prevalent among individuals with intellectual disability (ID), significantly impacting quality of life. Cardiofaciocutaneou…
Published: 2025
The Impact of COVID-19 on Direct Support Professionals and Frontline Supervisors Mental and Physical Health
Direct support professionals (DSPs) and frontline supervisors (FLSs) play a crucial role in the delivery of home and community-based services for people with intellectual and developmental disabili…
Published: 2025
Teacher Educators’ Perceptions of Factors Influencing Gender Mainstreaming Implementation in University Teaching 30 Years After Beijing
This study explores the perceptions of teacher educators at a public higher education institution in Alicante, Spain, regarding the implementation of gender mainstreaming (GM) in university …
Published: 2025
Examining Behavioral Interventions for Infancy and Early Toddlerhood: A Systematic Review of Intervention Effects, Parameters, and Participants
Rapid advancement is paving the way to identify children who would likely benefit from early intervention during the first years of life, prior to the onset of significant delays in development. …
Published: 2025
Caregiver Mental Health: A Review of Research Findings
The lack of adequate support services and the direct support workforce crisis means family members are providing more support for their loved ones with intellectual or developmental disabilities ( …
Published: April 2025
Prepared to Ensure Quality Education for All? A Comparative Study of Pre-service Teachers’ Self-efficacy for Inclusion in Spain and the United States
The 2030 Agenda for Sustainable Development calls for quality, inclusive education for all through Sustainable Development Goal 4 (SDG 4). Given the central role of teachers in achieving this goal …
Published: 2025
Prevalence and Early Identification of Autism Spectrum Disorder Among Children Aged 4 and 8 Years — Autism and Developmental Disabilities Monitoring Network, 16 Sites, United States, 2022
Among children aged 8 years in 2022, ASD prevalence was 32.2 per 1,000 children (one in 31) across the 16 sites, ranging from 9.7 in Texas (Laredo) to 53.1 in California. The overall observed …
Published: 2025
Self-injury and the Treatment Gap: An Interdisciplinary Exploration of Beliefs About Causal Variables and Treatment Goals Among Caregivers, Researchers, and Clinicians
Introduction: There is a gap between individuals with intellectual and developmental disabilities (IDD) who need treatment for self-injurious behavior (SIB) and those who receive it. One contributi…
Published: 2024
Interdisciplinarity and Self-injury: Toward an Inclusive Research and Treatment Paradigm
Background: Historically, the research and treatment of self-injury has been disciplinarily siloed. As a result, the behaviour is understood and treated differently among individuals with and …
Published: 2024
A Qualitative Analysis of Family Caregiver Experiences Accessing Treatment for Self-Injurious Behavior in Individuals with Intellectual and Developmental Disabilities
Introduction : There is evidence of a gap between individuals with intellectual and developmental disabilities (IDD) who need treatment for self-injurious behavior (SIB) and those who receive …
Published: 2023
The Critical Insight of Family Caregivers of Individuals with Intellectual and Developmental Disability and Severe Self-injurious Behavior
Caring for a child with self-injurious behavior (SIB) is a significant challenge, which is compounded by the lack of accessible resources to support families coping with severe SIB in autism …
Published: 2024
Self-injurious Behavior in Individuals with Intellectual and Developmental Disabilities: An Interdisciplinary Family Systems Review
This conceptual review paper takes an interdisciplinary approach to the study of self-injury in families. The overall goal is to begin integrating siloed bodies of knowledge from empirical work …
Published: 2023
A Meta-Analysis of Treatment for Self-Injurious Behavior in Children and Adolescents With Intellectual and Developmental Disabilities
Self-injurious behavior (SIB) among children and youth with developmental disabilities has not diminished in prevalence despite the availability of effective interventions, and the impact on …
Published: 2024
Latine Voices to Inform Early Intervention Practice: Espero que Nos Escuchen
Latine families constitute a large and growing population with approximately one-quarter of U.S. children identified as having a Latine background ( Annie E. Casey Foundation, 2024 ). Although …
Published: 2025
Social vulnerability and the prevalence of autism spectrum disorder among 8-year-old children, Autism and Developmental Disabilities Monitoring Network, 2020
Purpose: The Autism and Developmental Disabilities Monitoring (ADDM) Network estimates the prevalence of autism spectrum disorder (ASD) throughout the United States. Reports through 2010 found …
Published: 2025
Examining Behavioral Interventions for Infancy and Early Toddlerhood: A Systematic Review
Rapid advancement is paving the way to identify children who would likely benefit from early intervention during the first years of life, prior to the onset of significant delays in development. …
Published: 2025
Modifying Quantitative Sensory Testing to Investigate Tactile Sensory Function and Behavioral Reactivity in Children with Intellectual and Developmental Disabilities: Establishing Feasibility and Testing Sex, Autism, and Self-injury Effects
Sensory reactivity differences are common across neurodevelopmental disorders (NDDs), however very few studies specifically examine tactile or pain responses in children with NNDs, especially …
Published: 2025
Executive function is associated with behaviour problems in children and adolescents with cerebral palsy and intellectual disability
Background: Children and adolescents with cerebral palsy (CP) commonly have behaviour problems. The present study aimed to determine which of the most common clinical features experienced by …
Published: 2025
Participation in Mainstream Community Groups by Older U.S. Adults with Intellectual and Developmental Disabilities: A Multiple Case Study
Background : Adults with intellectual and developmental disabilities want to be included in all aspects of community life, but social inclusion continues to be very limited. Method : We used a …
Published: 2024
If Not Us, Then Who? The Role of Human Resource Development in Supporting Employment for People with Disabilities
The purpose of this article is to challenge human resource development (HRD) professionals to acknowledge and accept their role in supporting the employment of people with disabilities and to …
Published: 2024
Regional Differences in Autism and Intellectual Disability Risk Associated with Cesarean Section Delivery
Prior epidemiological studies investigating the association between delivery mode (i.e., vaginal birth and cesarean section [C-section]) and autism spectrum disorder (ASD) and intellectual disabili…
Published: 2024
Retirement of Workers with Intellectual and Developmental Disabilities
We examine the retirement of workers with intellectual and developmental disabilities (IDD) in developed countries, with research predominantly from North America and Australia. We propose that …
Published: 2024
Trends in Privacy of Adults With Intellectual and Developmental Disabilities Before and After the Home and Community-Based Services Final Rule
In 2014, the Centers for Medicare & Medicaid Services (CMS) launched the Home and Community-Based Services (HCBS) Final Rule intended to improve the quality of HCBS for people with disabilities. …
Published: 9/14/2024
Advances and Gaps in Policy, Practice, and Research in Transition for Students with Intellectual and Developmental Disabilities Across Four Countries
The difficulties faced by youth with intellectual and developmental disabilities (IDD) and their families as they move into adulthood are widely documented. The aim of the paper is to explore the …
Published: 2024
Interventions Used with the Direct Support Workforce in Home and Community-Based Settings: A Scoping Review
This scoping review fills the gap on key characteristics of interventions and trainings for direct support workforce (DSW) of adults across disabilities and aging adults. We included quantitative …
Published: 2024
Transitional Challenges: Psychotropic Medication and Residential Setting Among Young Adults with Intellectual Disabilities
As youth with intellectual and developmental disabilities (IDD) are transitioning from the school systems and special education supports, many of them are moving into the adult service system (e.g …
Published: 2024
Direct Support Professionals: Diversity, Disparities, and Deepening Crisis
In the United States, direct support professionals (DSPs) support people with intellectual and developmental disabilities (IDD) so they can live in the community. Thirty years of deinstitutionaliza…
Published: 6/1/2024
Community Testing Practices for Autism within the Autism and Developmental Disabilities Monitoring Network
Background : No data exist at the population level on what tests are used to aid in the diagnosis of autism spectrum disorder in community practice. Objectives: To describe autism spectrum disorder…
Published: 2024
Using Mixed Methods to Evaluate Modified Schema-Based Instruction in General Education Classrooms
In this convergent mixed methods design study, single-subject and qualitative data were collected concurrently to provide an in-depth picture of the impact of a modified schema-based instructional …
Published: 2024
Separate School Placement for Students With Extensive Support Needs and the Potential Impact of Locale and Charter School Enrollment
Separate school placements persist for students with extensive support needs (ESN) despite longstanding federal mandates for all students with disabilities to be educated in the least restrictive …
Published: 2024
Postschool Goal Expectations for Youth With Intellectual and Developmental Disabilities
Using National Longitudinal Transition Study 2012 data, this study explored parent and youth expectations in the areas of postsecondary education, employment, independent living, and financial …
Published: 2024
Health Professionals' Education Related to People with Intellectual and Developmental Disabilities: A Scoping Review
Background: People with intellectual and developmental disabilities are among the most underserved in an inequitable healthcare system. Methods: Using Arksey and O'Malley's methodology and a …
Published: 2024
Teaching Requesting to Individuals with Rett Syndrome Using Alternative Augmentative Communication (AAC) Through Caregiver Coaching via Telehealth
Rett syndrome is a severe neurodevelopmental disorder that results in both motor and language skill regression with a wide range of severity in symptom presentation. Communication intervention may …
Published: 2023
Health and Wellbeing Outcomes Associated with Loneliness for People with Disability: A Scoping Review
Background: Loneliness is a significant public health concern due to its detrimental impact on health and wellbeing. Despite people with disability reporting higher levels of loneliness than the …
Published: 2023
Using the Independent Monitoring for Quality (IM4Q) Program to Examine Employment in Integrated Settings in the Community for People with IDD over Time
Background : Community-based employment is a key step for many adults with intellectual and developmental disabilities (IDD), a group prone to high unemployment, poverty, and dependency. It is …
Published: 2023
How Did Employment Consultants Adjust and Innovate Services to Respond to the COVID-19 Pandemic?
Background: The onset of the COVID-19 pandemic forced an immediate change to the delivery of employment supports and services for jobseekers and workers with intellectual and developmental disabili…
Published: 2023
Retirement and People with Intellectual Disability in the Australian Context
This paper examines retirement by older workers with intellectual disability. Much research and intervention about retirement and intellectual disability in the last decade or so emanates from …
Published: 2023
Examining Choice and Control for People With IDD Over Time
Choice making is an important aspect of everyone’s life in terms of fully becoming an adult within a democratic society. People with intellectual and developmental disabilities (IDD) are at risk …
Published: 2023
Participation and Companions for Socially Inclusive Community Activities by U.S. Adults with Intellectual and Developmental Disabilities
We investigated socially inclusive participation in mainstream community groups and religious services by U.S. adults with intellectual and developmental disabilities using weighted secondary …
Published: 2023
Leisure Participation of Autistic Adults: An Ecological Momentary Assessment Feasibility Study
Autistic adults participate less and express lower satisfaction in leisure activities than nonautistic adults, although literature is limited. The multifaceted nature of leisure participation …
Published: 2023
The Intersection of Systemic, Child, and Evaluation Factors in the Prediction of Autism Special Education Eligibility; Examining the Role of Race and Ethnicity
Though there is evidence autism identification has been inequitable for populations who are culturally and linguistically minoritized, there is limited research that explains the issue of dispropor…
Published: 2023
Predicting Self-Injurious Behavior at Age Three Among Infant Siblings of Children with Autism
Existing research suggests that self-injurious behavior (SIB) is a relatively common interfering behavior that can occur across the lifespan of individuals with autism spectrum disorder (ASD). We …
Published: 2023
Social Inclusion of Adults with Intellectual and Developmental Disabilities: Toward Belonging
Social inclusion and exclusion are important to people with intellectual and developmental disabilities. We examine contemporary understanding of social inclusion, including sense of belonging, …
Published: 2023
The Direct Support Workforce: An Examination of Direct Support Professionals and Frontline Supervisors During COVID-19
Direct support professionals (DSPs) and frontline supervisors (FLSs) have critical roles in home and community-based services for people with intellectual and developmental disabilities. Low wages …
Published: 2023
Using the Independent Monitoring for Quality Program to Examine Longitudinal Outcomes for People with Intellectual and Developmental Disabilities
The purpose of this study is to lay a foundation for illustrating the importance of longitudinal data collection by sharing the results of the Independent Monitoring for Quality (IM4Q) program in …
Published: 2023
The Prevalence and Characteristics of Children With Profound Autism, 15 Sites, United States, 2000-2016
Objectives: Autism spectrum disorder (autism) is a heterogeneous condition that poses challenges in describing the needs of individuals with autism and making prognoses about future outcomes. We …
Published: 2023
From Mainstream Employment to Mainstream Retirement: A Randomised Controlled Trial of a Transition to Retirement Intervention for Adults with Intellectual Disability
Background: We evaluated a transition to retirement intervention that adapted strategies used to support employment of people with intellectual disability in mainstream workplaces. The intervention…
Published: 2023
Current Services and Outcomes of Formerly Institutionalised and Never-institutionalised US Adults with Intellectual and Developmental Disabilities: A Propensity Score Matching Analysis
Background : Deinstitutionalization research shows better services and outcomes relative to institutional life but has not compared formerly institutionalised and never-institutionalised service …
Published: 2023
Editorial: Improving the Quality of Outcome Measurement for Adults with Disabilities Receiving Community-based Services
This special issue of Frontiers in Rehabilitation Sciences: Disability, Rehabilitation, and Inclusion is designed to fill this gap in understanding the current landscape of measurement approaches …
Published: 2023
Teaching Requesting to Individuals with Rett Syndrome Using Alternative Augmentative Communication (AAC) Through Caregiver Coaching via Telehealth
Rett syndrome is a severe neurodevelopmental disorder that results in both motor and language skill regression with a wide range of severity in symptom presentation. Communication intervention may …
Published: 2023
Early Identification of Autism Spectrum Disorder Among Children Aged 4 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020
Description of system: The Autism and Developmental Disabilities Monitoring Network is an active surveillance program that estimates prevalence and characteristics of ASD and monitors timing of …
Published: 2023
Disability-Inclusive Education, Development, and Dialectics: Complex Cases in Bhutan
Disability-inclusive education and development have become priorities for global governance organizations over the past decade and have thus introduced new complexities to existing development …
Published: 2023
Transition to Retirement: The Lived Experiences of Adults with Intellectual Disabilities
Background : Adults with intellectual disabilities are living longer and experiencing retirement. However, research about retirement experiences is limited. Method : This qualitative study used …
Published: 2023
Media Review: Dreams of Birds Flying in the Sky directed by Arun Bhattarai and produced by Matthew Schuelka. Fora Films, 2021. 58 minutes.
The use of film as both a methodological research tool and a research dissemination tool can significantly affect our multimedia and digital age. Evidence and my own experiences support this …
Published: 2023
Direct Support Professionals and COVID-19 Vaccination: A Comparison of Vaccinated and Unvaccinated Direct Support Professionals
Direct support professionals (DSPs) may be at increased risk of contracting COVID-19 due to the proximal nature of their work. In response to the pandemic a three-wave study was launched to …
Published: 2023
Statewide County-level Autism Spectrum Disorder Prevalence Estimates — Seven U.S. States, 2018
Purpose: Autism spectrum disorder (ASD) prevalence information is necessary for identifying community needs such as addressing disparities in identification and services. Methods: Seven Autism and …
Published: 2023
Promoting Family Engagement and Early Identification of Developmental Delays: The Role of Act Early Ambassadors
Early identification of developmental delays in young children is a national priority. Yet, a significant number of children do not receive timely developmental monitoring and screening as part of …
Published: 2022
Direct Support Professional and Frontline Supervisor Perspectives on Work-Life in a Pandemic
Direct support professionals (DSPs) and frontline supervisors (FLSs) play an invaluable role in delivering home and community-based services to people with intellectual and developmental disabiliti…
Published: 12/1/2022
Caregiver-Implemented Communication Interventions for Children Identified as Having Language Impairment 0 Through 48 Months of Age: A Scoping Review
Purpose: Caregiver-implemented interventions are frequently used to support the early communication of young children with language impairment. Although there are numerous studies and meta-analyses…
Published: 2022
Community Employment, Facility-based Work, and Day Activities for Working Age People with Intellectual and Developmental Disability
Background: Individuals with Intellectual and Developmental Disability (IDD) participate in a variety of day/employment activities including community-based activities and work and facility-based …
Published: 2022
‘If and When?’: The Beliefs and Experiences of Community Living Staff in Supporting Older People with Intellectual Disability to Know about Dying
Background: The aim of this study was to explore the way in which community living staff engaged with people with intellectual disability (ID) about dying and death. Method: Guided by grounded …
Published: 2012
Workforce: Goals for Research and Innovation
Across the United States, there is growing demand for a competent and stable workforce able to effectively support the health and community lives of individuals with intellectual and developmental …
Published: 2015
Competency-Based Training and Worker Turnover in Community Supports for People With IDD: Results From a Group Randomized Controlled Study
Turnover among direct support professionals (DSPs) in community support settings for individuals with intellectual and developmental disabilities (IDD) has been regarded as a challenge since …
Published: 2015
Contextual Factors Associated with Implementing Active Support in Community Group Homes in the United States: A Qualitative Investigation
Although numerous studies in the U.K. and Australia have shown that Active Support (AS) is an effective intervention in increasing staff assistance and engagement for people with intellectual and …
Published: 2017
The Effects of a Competency-based Training Intervention for Direct Support Professionals on Site-level Outcomes, Learner Outcomes, and Service Recipient Outcomes
Introduction: This study, informed by the literature, tested this assumption that competency-based training aimed to help to reduce direct support professional (DSP) turnover in residential and …
Published: 2019
National Core Indicators Staff Stability Survey Data
Introduction: The authors used NCI Staff Stability data from over 1400 providers in 20 states and Washington, DC collected in 2016 to look at organizational and state-level predictors of 1) DSP …
Published: 2019
2018 New York State Workforce Credentialing
Introduction: Direct Support Professionals (DSPs) are vital supports for people with IDD. Five competency-based credentialing programs, designed to teach the skills, knowledge, and attitudes …
Published: 2019
Conclusion to the Special Issue: Understanding the Direct Support Workforce in the United States
This special issue sheds light on the needs of the direct support professionals (DSPs), as well the possibilities when positive practices are implemented. A commitment to quality services and …
Published: 2020
Introduction to the Special Issue: Understanding the Direct Support Workforce in the United States
This special issue on the direct support workforce highlights the critical role of the direct support workforce in the quality of life of people with intellectual and developmental disabilities ( …
Published: 06/01/2020
The Impact of the COVID-19 Related School Closure on the Mental Health and Well-Being of Children with SEN and Their Parents in Algeria
The COVID-19 pandemic has changed our lives and affected different nations in different ways. In Algeria, education has been hit hard by the lockdown as schools embarked on a total closure to stop …
Published: 2022
Community Participation and Staying Home if You Want: US Adults with Intellectual and Developmental Disabilities
Background: Requiring adults with intellectual and developmental disabilities to go on community outings with co-residents and staff is contrary to community-living policy's focus on person …
Published: 2022
A Systematic Review of Risk for the Development and Persistence of Self-injurious Behavior in Intellectual and Developmental Disabilities
Self-injurious behavior (SIB) by individuals with intellectual and developmental disabilities including autism (I/DD) is among the most clinically disturbing, socially costly, and scientifically …
Published: 2022
Incentives, Wages, and Retention Among Direct Support Professionals: National Core Indicators Staff Stability Survey
Direct support professionals (DSPs) provide a range of supports in a variety of settings to people with intellectual and developmental disabilities (IDD) who count on these supports to live, work, …
Published: 4/15/2022
Functional Performance and the Allen Cognitive Level Screen for Adults With Mental Illness: A Scoping Review
Importance: Research involving the use of the Allen Cognitive Level Screen (ACLS) in mental health practice has been available for more than 40 years, yet there has been no comprehensive synthesis …
Published: 3/1/2022
Patterns of Special Education Eligibility and Age of First Autism Spectrum Disorder (ASD) Identification Among US Children with ASD
The study examined timing of autism spectrum disorder (ASD) identification in education versus health settings for 8-year-old children with ASD identified through records-based surveillance. The …
Published: 2/25/2022
Sensory Features in Autism: Findings From a Large Population-based Surveillance System
Sensory features (i.e., atypical responses to sensory stimuli) are included in the current diagnostic criteria for autism spectrum disorder. Yet, large population-based studies have not examined …
Published: 1/18/2022
Youth and Parent Participation in Transition Planning in the U.S.A.: Findings from the National Longitudinal Transition Study 2012 (NLTS 2012)
The purpose of this study was to use data from the United States' National Longitudinal Transition Study 2012 (NLTS 2012) to present descriptive information on youth and parent participation and …
Published: 2022
Mothers and Fathers with Intellectual and Developmental Disabilities Who Use US Disability Services: Prevalence and Living Arrangements
Background: Little information is available on the prevalence of mothers and fathers with intellectual and developmental disabilities among US disability-service users. Child removal is a key …
Published: 2022
Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years: Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018
Description of System: The Autism and Developmental Disabilities Monitoring (ADDM) Network conducts active surveillance of ASD. This report focuses on the prevalence and characteristics of ASD …
Published: 2021
Early Identification of Autism Spectrum Disorder Among Children Aged 4 Years: Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2018
Description of System: The Autism and Developmental Disabilities Monitoring Network is an active surveillance program that estimates ASD prevalence and monitors timing of ASD identification among …
Published: 2021
Fair and Equitable Grading for ALL Students in Inclusive Settings
Grading is a common practice in general education settings. Few teachers, however, are clear about how they should grade students with significant cognitive disabilities when those students are …
Published: 11/10/2021
Parents’ Beliefs Regarding Shared Reading with Infants and Toddlers
Parent beliefs about reading to young children—and factors related to such beliefs—affect a child’s reading skill. But, little is known about parent beliefs about reading to infants and toddlers. …
Published: 2021
Supervisory and Administrative Staff's Perspectives of Self-directed Supports for People with Intellectual and Developmental Disabilities
Background: Self-directed supports (SDS) are a model of disability service delivery that focuses on supporting increased decision-making authority and budget autonomy for people with disabilities …
Published: 2021
Supporting Aided Augmentative and Alternative Communication Interventions for Individuals With Complex Communication Needs via Telepractice: A Tutorial
People who experience complex communication needs often benefit from interventions involving augmentative and alternative communication (AAC). However, barriers often prevent people from accessing …
Published: 10/19/2021
Predictors of Annual and Early Separations Among Direct Support Professionals: National Core Indicators Staff Stability Survey
Direct support professionals (DSPs) provide a broad range of supports in a variety of settings to people with intellectual and developmental disabilities (IDD) that enables people to live, work, …
Published: 9/1/2021
Educational outcomes of a cohort of children with autism who received early intensive behavioral intervention
Early Intensive Behavioral Intervention (EIBI) can be effective for supporting skill acquisition among children with autism spectrum disorder (ASD). Few studies have followed children with ASD, …
Published: 2021
An Analysis of Disability Groupings and Transition Planning Experiences
One important aspect of special education research that makes it complex is the variability of the disability categories being studied. This study used the context of individualized education …
Published: 7/2/2021
Accessibility Planning for Postsecondary Entrance and Placement Exams for Deaf Students
Postsecondary entrance and placement tests provide critical information that shapes the trajectory of the transition from secondary to postsecondary education. Test accommodations can play an …
Published: 6/21/2021
Disability, Loneliness and Health in the UK: Cross-sectional Survey
Background: Research has suggested that exposure to loneliness can have a powerful detrimental impact on health, including mental health. Addressing socially determined health inequity requires …
Published: 2021
Policy implications, eligibility, and demographic characteristics of people with intellectual disability who access self-directed funding in the United States
This study identifies factors (state of residence, personal characteristics, and living situation) associated with access to self-directed funding (SDF) for adults with intellectual disability in …
Published: 4/1/2021
Policy priorities for the intellectual and developmental disabilities community
The Biden administration can make a tremendous difference in the lives of millions of people with disabilities, and their families and communities, by prioritizing home and community-based services…
Published: 3/23/2021
Specialist palliative care staff’s varying experiences of talking with people with intellectual disability about their dying and death: A thematic analysis of in-depth interviews
Background : The cognitive and communication challenges experienced by people with intellectual disability present difficulties for health professionals, particularly in the face of illness and …
Published: 3/23/2021
Exploring Predictors of Bullying and Victimization of Students with Autism Spectrum Disorder (ASD): Findings from NLTS 2012
Research suggests that bullying victimization occurs at higher rates among students with autism spectrum disorder (ASD) than among their typically-developing peers. This study used data from the …
Published: 2/19/2021
The impact of disability on employment and financial security following the outbreak of the 2020 COVID-19 pandemic in the UK
Background: The coronavirus disease 2019 (COVID-19) pandemic may have a greater impact on people with disabilities than non-disabled people. Our aim was to compare the short-term impact of the …
Published: 2/9/2021
Loneliness, social support, social isolation and wellbeing among working age adults with and without disability: Cross-sectional study
Background: Loneliness is significantly related to health and wellbeing. However, there is little information on the prevalence of loneliness among people with disability or the association …
Published: 2021-01-01
Does talking about end of life with adults with intellectual disability cause emotional discomfort or psychological harm?
Background Caregivers often avoid involving people with intellectual disability in end‐of‐life discussions and activities. One reason is fear that the person may become upset or psychologically …
Published: 12/17/2020

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