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RISP Data Bytes: Fewer People with IDD Live in ICF/IIDs, But Progress is Not Equal: Data from FY 2021
Medicaid Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICFs/IID) are institutions where seven or more people live and get support. Use of these facilities is declinin…
Published: April 2026
Boldly Challenging Ableism: Season 2, Episode 5: The Red Tape of Accessible Living with Nick Wilkie (Part 1 of 2)
Katrina Simons welcomes Nick Wilkie to the podcast to bond over their shared experiences with disability and life in St. Paul. They explore Nick’s role at the Metropolitan Center for Independent …
Published: 3/29/2026
Boldly Challenging Ableism: Season 2, Episode 4: Navigating Neurodiversity and Self Advocacy with Adam Ruff
Katrina Simon sits down with Adam Ruff from Advocating Change Together to talk about his journey and work in the disability community. They dive into the personal side of being neurodivergent and …
Published: 3/22/2026
Boldly Challenging Ableism: Season 2, Episode 3: Faith, Mental Health, and Finding Your Voice with Guest Joe Carr
Katrina is joined by disability advocate Joe Carr. Joe gets real about the often-overlooked connection between mental health and disability. He opens up about his personal journey, from the …
Published: 3/15/2026
Patient and Caregiver Perspectives on Neurodevelopmental and Mental Health Care for RASopathies
Plain language summary A qualitative study to understand perspectives of caregivers and people with RASopathies on their mental health care needs and treatment experiences New treatments are being …
Published: 2026
MIHEC Learning Community Webinars: Charting the LifeCourse: Person-Centered Planning and Transition
Jonathan Lidgus is SUCCEED Director at the University of Missouri - St. Louis (UMSL). Lidgus and a UMSL student tell how Charting the LifeCourse supports meaningful, person-centered planning in …
Published: March 2026
FYI from the Institute on Community Integration: March 2026
The Institute's monthly staff newsletter features news of recent activities, accomplishments, and resources. This month's first feature story is about using teleoutreach to connect with isolated …
Published: March 2026
News
TeleOutreach Connects Rural, Military Families
Published: March 2026
News
New Report: Spina Bifida
Published: March 2026
News
Boldly Goes to Season 2
Published: March 2026
News
Widening the Disability Lens
Published: March 2026
Momentum: Spring 2026
This issue of Momentum opens with Jacob, who starts college in August 2026 and wants to work in construction or health sciences. The News section features grantee updates and summaries of recent …
Published: Spring 2026
Safety, Connection, and Communication: Qualitative Insights into the Multidimensionality of Autistic Stimming
Background : Autistic stimming (e.g., repetitive movements or vocalizations) is often misunderstood or pathologized in clinical and public discourse. This study explores how Autistic adults …
Published: 2026
Rethinking What Works: March 2026
This issue of Rethinking What Works spotlights the transformation of a provider in a small town. The newsletter also contains details about upcoming trainings, Social Security work incentives, and …
Published: March 2026
Boldly Challenging Ableism: Season 2, Episode 2: Fighting for Better Air Travel Standards with Rob Wudlick
This week, we feature Rob Wudlick, an industrial engineer and dedicated advocate for spinal cord injury research. Rob joins Katrina Simons to share the frustrating reality of air travel for …
Published: 3/8/2026
Boldly Challenging Ableism: Season 2, Episode 1: Raising Team Felix with Haley Brunelle and the Magic of AAC
Starting off season two, Katrina chats with her friend Haley Brunelle about her journey as a “medical mom” to her incredible eight-year-old son, Felix. They dive into the world of augmentative and …
Published: 3/1/2026
Evaluation of Georgia DBHDD-Funded Direct Support Professional Certification Pilots: Final Report, December 2025
Georgia launched three yearlong pilot programs in January 2024 to support direct support professionals (DSPs) in earning competency-based certifications at no cost. Each pilot offered about 50 …
Published: December 2025
MTI Quarterly Trainings: Peer-to-Peer Mentorship as a Strategy for Employment Service Providers
Transitioning to competitive integrated employment and exploring job options can feel overwhelming for individuals, families, and those who support them. This quarterly training highlights The Arc …
Published: 3/4/2026
RISP Data Bytes: More People with IDD get Services in Individualized Settings in 2021 than in 2001
Since 2001, the number of people with intellectual or developmental disabilities (IDD) living in small community homes supported by Medicaid Home and Community-Based Services (HCBS) grew. Between …Published: March 2026
NCEO APR Snapshot Briefs: 2022-2023 APR Snapshot 32: State Assessment Participation, Performance, and Assigned Accommodations for Students Receiving Special Education Services (#32)
This report provides a snapshot of the participation and performance of grade 8 students receiving special education services on statewide reading/language arts and mathematics assessments for …Published: March 2026
MIHEC Learning Community Webinars: Parent Perspectives of Inclusive Higher Education
Recorded February 10, 2026, this webinar features a panel of four parents discussing family experiences with inclusive higher education for students with intellectual and developmental disabilities…
Published: February 2026
NCEO Reports: A Summary of the Research on the Effects of K–12 Test Accommodations: 2024 (#453)
This report summarizes research on testing accommodations for K–12 students with disabilities from 2024. The data shows a clear move toward qualitative studies of how schools use these tools, and …
Published: February 2026
NCEO Style Guidelines: A Reference Tool for Writing Reports, APA Style, and NCEO Publication Specifications
This style guide was developed to help NCEO and related projects staff prepare the final copy of their documents. This style guide provides directions for creating heading levels, tables, figures, …
Published: February 2026
NCEO Editing Checklist
This checklist is a tool for NCEO and related projects staff to use while drafting their writing. Links to more information on topics like writing to specific reading levels, making heading levels …
Published: February 2026
Technology Utilisation and Engagement in Physical Activity of Adolescents With Intellectual Disabilities: A Scoping Review
Background: Low levels of physical activity (PA) among adolescents with intellectual disabilities are a serious health concern that increases the risk for chronic health conditions. This scoping …
Published: 2026
FYI from the Institute on Community Integration: February 2026
The Institute's monthly staff newsletter features news of recent activities, accomplishments, and resources. This month's first feature story was written by Dupree Edwards, an ICI staff member who …
Published: February 2026
Impact: Plain Language
Plain language is more than a writing style or accessibility tool. It is an essential part of belonging and participating in the community. It is disability justice. As a knowledge translation …
Published: Winter 2025-26
News
The Language of Inclusion
Published: February 2026
News
Inclusion Starts at Home
Published: February 2026
News
When ICE Targets DSPs, the Disability Community Feels It
Published: 2/12/2026
Long-Term Supports and Services for Persons with Intellectual or Developmental Disabilities: Status and Trends 2021
Nearly two-thirds of people with intellectual or developmental disabilities (IDD) who receive paid services live at home with family members or in their own homes, this report from the Residential …
Published: 2026
Direct Support Leadership Lens
The Direct Support Leadership Lens is an ongoing series of high-level, interactive discussions designed for executive leaders and decision-makers navigating the complexities of the workforce …
News
MNLEND: Connections, Advocacy, Research
Published: February 2026
Evaluation of OPWDD-Funded American Rescue Plan Act Workforce Projects
This report presents findings from ICI's evaluation of New York State Office for People With Developmental Disabilities (OPWDD) Workforce Development Grants funded through the American Rescue Plan …
Published: 2025
Autism Prevalence, Co-occurring Intellectual Disability, and Support Needs Differ for Somali and Hmong Communities in Minnesota
Purpose : Previous research has documented disparities in autism prevalence and the co-occurrence of intellectual disability (ID) with autism for children from immigrant communities. The current …
Published: 2026
Rethinking What Works: February 2026
This issue of Rethinking What Works provides an update on MTI's pilot project assisting job seekers with high support needs. The newsletter also contains details about upcoming trainings, benefits …
Published: February 2026
An Equity-Based Research Agenda to Promote Social Inclusion and Belonging for People With IDD
Having a sense of social inclusion and belonging, typically characterized by our personal relationships and community participation, is the central essence of life for most people, yet it remains …
Published: 2024
Housing and Long-Term Services and Supports for People With Intellectual or Developmental Disabilities From Racially and Culturally Minoritized Communities
This article describes research on the places people with intellectual and developmental disabilities (IDD) live and disparities in housing and long-term services and supports (LTSS) outcomes for …
Published: 2024
Implementation Drivers for Organization-Wide Positive Behavior Support: Supporting People With Intellectual and Developmental Disabilities
Organization-wide positive behavior support (OW-PBS) is a framework for improving quality of life and preventing challenging behaviors for children and adults with intellectual and developmental …
Published: 2025
A Research Agenda to Support Families of People With Intellectual and Developmental Disabilities With Intersectional Identities
Family members provide significant practical and emotional support to people with intellectual and developmental disabilities (IDD) across the lifespan. In September 2022, the State of the Science …
Published: 2024
Prevalence of Spina Bifida Across the Lifespan in the USA
Aim: To estimate the prevalence of spina bifida across the lifespan, the number of people with spina bifida by state, and variations in spina bifida prevalence by insurance type, state, and …
Published: 2026
NCEO Newsletter: February 2026 issue
This February issue of NCEO’s newsletter focuses on two new resources, a timely past product, and a popular section of our website. The new resources are NCEO’s 17th Survey of States where NCEO …Published: February 2026
FYI from the Institute on Community Integration: January 2026
The Institute's monthly staff newsletter features news of recent activities, accomplishments, and resources. This month's first feature story is about ICI researchers documenting the experiences …Published: January 2026
News
Making Change: Community Living in the 21st Century
Published: January 2026
News
Leading in Challenging Times
Published: January 2026
News
John Sauer: Advancing Inclusion Through Systems Change
Published: January 2026
Rethinking What Works: January 2026
This issue of Rethinking What Works highlights the integration of benefits planning into employment services. The newsletter also contains information about upcoming trainings, a benefits planning …
Published: January 2026
FYI from the Institute on Community Integration: December 2025
The Institute's monthly staff newsletter features news of recent activities, accomplishments, and resources. This month's first feature story is about new modules that ICI's TIES Center designed …
Published: December 2025
News
Unbounded Spirit: Remembering John G. Smith
Published: December 2025
News
A Model of Self-Determination
Published: December 2025
News
“I Have More to Do”
Published: December 2025
News
Filling a Gap: New Training for Parapros
Published: December 2025
Momentum: Winter 2025-26
This issue of Momentum opens with Betsy, a prospective college student who wants to become a gym teacher and coach. The News section features grantee updates, takeaways from MIHEC's 2025 needs …
Published: Winter 2025-26
Rethinking What Works: December 2025
This issue of Rethinking What Works spotlights MTI's Leadership Essentials for Middle Managers course. The newsletter also contains information about Supplemental Security Income for workers with …
Published: December 2025
RISP Data Bytes: Medicaid HCBS Expenditures Per Person by Age in FY 2021
In 2021, almost a million people with IDD received HCBS waiver services with an average per-person expenditure of $51,835. Adults often live in non-family homes, so their waiver expenditures are …
Published: December 2025
MTI Quarterly Trainings: Transportation Solutions for Community Engagement and Employment
Transportation is a critical part of the employment process and is key to accessing one’s community. For many provider agencies, navigating transportation, or the lack thereof, is identified as a …
Published: 11/20/2025
FYI from the Institute on Community Integration: November 2025
The Institute's monthly staff newsletter features news of recent activities, accomplishments, and resources. This month's first feature story is about new modules and related resources that ICI …
Published: November 2025
News
Two UCEDDs Unite: A New Partnership to Strengthen New Jersey’s Direct Support Workforce
Published: November 2025
At a Crossroads: The Intersection of AT, AAC, and AI in the Education of Learners with Varied Needs
This report summarizes the key discussions and findings from a forum held on June 25, 2025, in Denver, Colorado. Organized jointly by the Assessment, Standards, and Education for Students with …
Published: November 2025
News
Global Reach Summit Spotlights Complex Disability Needs
Published: November 2025
News
Aging: Changing Support Needs
Published: November 2025
News
New Behavioral Health Resources Launched
Published: November 2025
RISP Data Bytes: Institutionalized Adults with IDD, 1967 to 2021
In 1967, 29.1% of adults with IDD in the U.S. lived in large state-run institutions, while most others resided with family. By 2021, only 0.7% lived in such facilities, with an additional 0.8% in …
Published: November 2025
Frontline Initiative: Supporting People as They Age
When direct support professionals (DSPs) support people, each life stage presents different opportunities and challenges. As people age, their decisions and bodies may change. DSPs' frequent …
Published: Fall 2025
Rethinking What Works: November 2025
This issue of Rethinking What Works spotlights MTI at MN APSE's annual conference and features a story from the field about a peer mentor helping a friend find a job. The newsletter also contains …
Published: November 2025
NCEO State Surveys: 2025 Survey of States: Trends and Issues in Statewide Assessment of Students with Disabilities
This report summarizes the seventeenth survey of states by NCEO, collecting over three decades of data on the participation and performance of students with disabilities in statewide assessments. …
Published: November 2025
Transition of People with Intellectual and Developmental Disabilities from School to Adulthood: A Scoping Review
Objectives : Transition from school to adulthood is important in the lives of youth with intellectual and developmental disabilities. This study seeks to identify what models, policies and trends …
Published: 2025
A Closer Look: Episode 11: Dupree Edwards Talks About the DSP Who Wouldn't Give Up on Him
Dupree once struggled with tasks like cooking, cleaning, and daily living skills. He felt DSPs gave up on him, but things started to get better when Miss Gail came into the picture. She taught …
Published: 5/13/2025
Impact: 40 Big Ideas
What big ideas have most shaped the lives of people with intellectual and other developmental disabilities? To mark its 40th anniversary, the Institute on Community Integration polled self-advocate…
Published: Fall 2025
FYI from the Institute on Community Integration: October 2025
The Institute's monthly staff newsletter featuring news of recent activities, accomplishments, and resources. This month's first feature story is about ICI's 40th anniversary event, at which …
Published: October 2025
News
ICI: 40 Years of Community Living
Published: October 2025
NCEO Newsletter: October 2025 issue
This October issue of NCEO’s newsletter focuses on renewal, highlighting NCEO's 35-year history, commitment to innovation, and future partnerships.Published: October 2025
RISP Data Bytes: Behind the Numbers at RISP
As a Project of National Significance, RISP provides critical and unique insights about residential supports to people with IDD across the United States, but RISP collects other data too. While …
Published: October 2025
News
MNLEND Alum Looks Back
Published: October 2025
News
40 Big Ideas in Disability
Published: October 2025
News
Elevating the Direct Support Profession
Published: October 2025
Boldly Challenging Ableism: Season 1, Episode 18: Michael Sack on Keeping the Twin Cities Accessible and Disability Advocate Ed Bartz
Michael Sack talks to us about his work with the city of Minneapolis in getting and keeping the community accessible. Then a conversation with disability advocate Ed Bartz.
Published: 10/12/2025
Boldly Challenging Ableism: Season 1, Episode 17: Artist and Self-Advocate Thomas Robinson
On this episode of Boldly Challenging Ableism, host Katrina Simons speaks with artist and self-advocate Thomas Robinson. Thomas shares his journey as a leader in disability advocacy and how art …
Published: 10/6/2025
Boldly Challenging Ableism: Season 1, Episode 16: Renáta Tichá, Research Associate, ICI at the U of MN
Renáta Tichá is a research associate at the Institute on Community Integration at the University of Minnesota. Renáta talks with Katrina about her research work around transitioning to adult …
Published: 10/6/2025
Telepractice-Supported Augmentative and Alternative Communication Intervention: A Systematic Review
Children with autism spectrum disorder and/or with intellectual disabilities (IDD) who experience complex communication needs often benefit from augmentative and alternative communication (AAC) …
Published: 2025
Rethinking What Works: October 2025
This issue of Rethinking What Works spotlights October as National Disability Employment Awareness Month, featuring a story from the field. The newsletter also contains upcoming trainings, resource…
Published: October 2025
NCEO Reports: A Historical Review of Alternate Assessment and 1% Cap (#450)
The history of alternate assessments and the 1.0 percent participation cap on state-level participation rates is deeply rooted in federal education legislation. From 1994 to 2025, federal legislati…
Published: October 2025
Boldly Challenging Ableism: Season 1, Episode 15: Rebelling Against Ableism with BJ Stasio
BJ Stasio is Advocate for the New York Office for People with Developmental Disabilities. An activist, he talks to us about his life of advocacy work—and about being a rebel.
Published: 9/23/2025
Boldly Challenging Ableism: Season 1, Episode 14: Amy Hewitt, Director, Institute on Community Integration
Amy Hewitt joins us to discuss the direct support care crisis and why it’s an “everyone” problem.
Published: 9/23/2025
NCEO Reports: State Discussion Guide for Communicating SSIP Data with Stakeholders (#452)
Federal law requires states to engage stakeholders in the State Performance Plan/Annual Performance Report (SPP/APR), especially for the State Systemic Improvement Plan (SSIP). …Published: September 2025
NCEO Reports: A Summary of the Research on the Effects of K–12 Test Accommodations: 2023 (#451)
This report presents a synthesis of the research literature published in 2023 on testing accommodations for U.S. elementary and secondary students with disabilities.Published: September 2025
FYI from the Institute on Community Integration: September 2025
This month's first feature story is about a disability rights roundtable recently hosted by a member of Congress, at which ICI staff and parents spoke. The second story concerns an upcoming …
Published: September 2025
News
Fostering Futures
Published: September 2025
News
MIHEC Conference: Transformation
Published: September 2025
News
Morrison Hosts Disability Rights Roundtable
Published: September 2025
Momentum: Fall 2025
This issue of Momentum opens with Kal-el Spears, a prospective college student from Red Lake. The News section features an inclusive higher education needs assessment and a visit to the University …
Published: Fall 2025
RISP Data Bytes: RISP Data in the Media: Telling the Story of IDD Services
Using data from the Residential Information Systems Project (RISP) is a powerful way to tell the story of residential services for people with intellectual and developmental disabilities (IDD). It …
Published: September 2025
Rethinking What Works: September 2025
This issue of Rethinking What Works spotlights the upcoming MN APSE conference, which MTI is sponsoring, and MTI's latest Quarterly Training on provider transformation. The newsletter concludes …
Published: September 2025
Social Determinants of Health Strand: Recommendations of the National Goals on Health Equity Working Meeting
There has been a shift in U.S. population health and wellness initiatives in the past decade from initiatives to describe health disparities to initiatives to understand and address underlying …
Published: 8/25/2025
MTI Quarterly Trainings: Staying the Course: Navigating the Ups and Downs of Provider Transformation
Before the Minnesota Transformation Initiative (MTI) took shape, several provider organizations across the state received support for their transformation efforts through the 2018-20 Minnesota …
Published: 8/14/2025
Rhode Island Statewide Workforce Initiative
People with intellectual and developmental disabilities (IDD) who want to live and work in their communities need committed direct support professionals, but this workforce is chronically underpaid…
Boldly Challenging Ableism: Season 1, Episode 12: Jen Sommerness on Ableism in Education
Katrina is joined by Jen Sommerness, a research associate at the TIES Center at the Institute on Community Integration. Jen discusses ableism in schools and making education meaningful for every …
Published: 8/24/2025
Boldly Challenging Ableism: Season 1, Episode 11: Katherine McLaughlin, Founder and CEO, Elevatus Training
Katherine McLaughlin joins us to talk about sex and disability. She also shares why involving people living with disabilities in sex education is important.
Published: 8/17/2025
FYI from the Institute on Community Integration: August 2025
The Institute's monthly staff newsletter features news of recent activities, accomplishments, and resources. This month's first feature story is about last month's successful Disability Pride …
Published: August 2025
News
NCEO Celebrates 35 Years
Published: August 2025

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