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Roger J. Stancliffe PhD is a Senior Research Associate at the University of Minnesota's Institute on Community Integration. He holds a conjoint appointment as Professor Emeritus of Intellectual Disability at the University of Sydney in Australia. Previously, he was a Senior Research Fellow at the Centre for Disability Studies (1997-2007) in Sydney. He has maintained an ongoing collaboration with disability researchers at the University of Minnesota since 1994.
Stancliffe's research focuses on making a difference in the everyday lives of people with intellectual and developmental disability (IDD). His current work is on aging with IDD and focuses on retirement and end-of-life issues. He has published over 200 research articles, chapters, and books. His most recent book is Choice, preference, and disability: Promoting self-determination across the lifespan (2021). He was Editor of the Journal of Intellectual & Developmental Disability from 2003 to 2008 and is a Consulting Editor to two international research journals on intellectual disability. Stancliffe is a regular at national and international conferences and has presented on five continents. He is a Fellow of the American Association on Intellectual and Developmental Disabilities (AAIDD) and the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD). He is the recipient of the 2011 AAIDD Research Award and the 2019 Centre for Disability Studies Lifetime Achievement Award.
Although numerous studies in the U.K. and Australia have shown that Active Support (AS) is an effective intervention in increasing staff assistance and engagement for people with intellectual and …
Background: Many individuals with intellectual and developmental disabilities (IDD) have sedentary lifestyles. Aims: (a) compare adults with IDD with the general adult population on adherence to …
Background: Many children and adults with Autism Spectrum Disorder (ASD) need services and support across their lifespans. Currently many residential and community living supports are delivered …
Background : Deinstitutionalization research shows better services and outcomes relative to institutional life but has not compared formerly institutionalised and never-institutionalised service …
Background: The aim of this study was to explore the way in which community living staff engaged with people with intellectual disability (ID) about dying and death. Method: Guided by grounded …
This issue in the Impact series focuses on transition in a global context. Preparing for life after high school—whether that means college, work, or simply living in the community—varies greatly …
Two non-U.S. quasi-experimental studies reported Active Support training was associated with increased engagement in individuals with IDD, but no randomized controlled trials (RCTs) exist. We …
A brief reviewing available research on the costs and outcomes of community service provision for people with intellectual disabilities (or "mental retardation") and developmental disabilities, …
Background: Requiring adults with intellectual and developmental disabilities to go on community outings with co-residents and staff is contrary to community-living policy's focus on person …
The difficulties faced by youth with intellectual and developmental disabilities (IDD) and their families as they move into adulthood are widely documented. The aim of the paper is to explore the …
Background Caregivers often avoid involving people with intellectual disability in end‐of‐life discussions and activities. One reason is fear that the person may become upset or psychologically …
A report summarizing the results of a project that compared two different methods of promoting greater social inclusion between individuals with intellectual and/or developmental disabilities...
To begin to understand retirement, we examined age-related differences in (a) employment rates, employment hours, and rates of individual-plan employment goals; and (b) participation rates in …
We investigated socially inclusive participation in mainstream community groups and religious services by U.S. adults with intellectual and developmental disabilities using weighted secondary …
Importance: Research involving the use of the Allen Cognitive Level Screen (ACLS) in mental health practice has been available for more than 40 years, yet there has been no comprehensive synthesis …
This study identifies factors (state of residence, personal characteristics, and living situation) associated with access to self-directed funding (SDF) for adults with intellectual disability in …
This article examines everyday choices made by 8,892 adults with intellectual and developmental disabilities (IDD) and support-related choices made by 6,179 adults with IDD receiving services from …
Background: Loneliness is a significant public health concern due to its detrimental impact on health and wellbeing. Despite people with disability reporting higher levels of loneliness than the …
Background: Research has suggested that exposure to loneliness can have a powerful detrimental impact on health, including mental health. Addressing socially determined health inequity requires …
This concluding chapter brings together the key points offered by the book’s contributors and aims to rally collective thinking and action towards the future. Ensuring that people with intellectual…
We examine the retirement of workers with intellectual and developmental disabilities (IDD) in developed countries, with research predominantly from North America and Australia. We propose that …
Background: Many children and adults with Autism Spectrum Disorder (ASD) need services and support across their lifespans. Currently many residential and community living supports are delivered …
This book examines choice and preference in the lives of people with disability, focusing on people with intellectual and developmental disabilities. It provides an overview of choice and examines …
As more individuals with intellectual/developmental disabilities are physically included in community life, in schools, neighborhoods, jobs, recreation, and congregations, the challenge of going …
The Transition to Retirement (TTR) book/eBook and video (Stancliffe et al., 2013; hereafter the TTR manual ) is an evidence-based Australian manual describing how to successfully implement the TTR …
Background: The coronavirus disease 2019 (COVID-19) pandemic may have a greater impact on people with disabilities than non-disabled people. Our aim was to compare the short-term impact of the …
This special issue of Intellectual and Developmental Disabilities (IDD) provides summary reviews of and expert commentaries on what is known, what points of debate exist, and what remains unknown …
Background: Individuals with Intellectual and Developmental Disability (IDD) participate in a variety of day/employment activities including community-based activities and work and facility-based …
Objective. We identified trends in the receipt of preventive health care by adults with intellectual and developmental disabilities by type of residential setting. Methods. We used data from the …
Background : Adults with intellectual disabilities are living longer and experiencing retirement. However, research about retirement experiences is limited. Method : This qualitative study used …
Social inclusion and exclusion are important to people with intellectual and developmental disabilities. We examine contemporary understanding of social inclusion, including sense of belonging, …
The Convention on the Rights of Persons with Disabilities (CRPD) aims to change attitudes and policies toward individuals with disabilities worldwide and to foster the inclusion and independence …
Background: Researchers need to hear directly from individuals with intellectual disabilities to better understand their experiences and perspectives. However, much inclusive research uses intervie…
This chapter examines contemporary research about end of life with a particular emphasis on people with intellectual disabilities and their experiences, rather than the views of others such as …
Background : The cognitive and communication challenges experienced by people with intellectual disability present difficulties for health professionals, particularly in the face of illness and …
Background : Adults with intellectual and developmental disabilities want to be included in all aspects of community life, but social inclusion continues to be very limited. Method : We used a …
This chapter briefly outlines Western funeral practices and then describes how funeral participation is important to successful grieving and meaning making of others’ death. It examines research …
An issue in the Impact series exploring retirement, aging, and end-of-life decisions for people with intellectual, developmental, and other disabilities. These considerations are becoming more...
Little is known about how, when, or why individuals with intellectual and developmental disabilities (IDD) retire. Recognizing the changing needs of older adults with IDD is critical to support …
This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and …
In 2014, the Centers for Medicare & Medicaid Services (CMS) launched the Home and Community-Based Services (HCBS) Final Rule intended to improve the quality of HCBS for people with disabilities. …
As youth with intellectual and developmental disabilities (IDD) are transitioning from the school systems and special education supports, many of them are moving into the adult service system (e.g …
This paper examines retirement by older workers with intellectual disability. Much research and intervention about retirement and intellectual disability in the last decade or so emanates from …
Background: Little information is available on the prevalence of mothers and fathers with intellectual and developmental disabilities among US disability-service users. Child removal is a key …
The importance of health-promoting neighborhoods has long been recognized, and characteristics of local built environments are among the social determinants of health. People with disability are …
This article examines two methodological issues regarding ways of obtaining and analyzing outcome data for people with intellectual disabilities: (a) self-report and proxy-report data and (b) …
Little is known about how, when, or why individuals with intellectual and developmental disabilities (IDD) retire. Recognizing the changing needs of older adults with IDD is critical to support …
Background: Children and adolescents with cerebral palsy (CP) commonly have behaviour problems. The present study aimed to determine which of the most common clinical features experienced by …
Employment in the community continues to be a major barrier for many people with disabilities in the United States. Analyzing the 2008–09 National Core Indicators Adult Consumer Survey, this study …
Background: We evaluated a transition to retirement intervention that adapted strategies used to support employment of people with intellectual disability in mainstream workplaces. The intervention…
Background: Loneliness is significantly related to health and wellbeing. However, there is little information on the prevalence of loneliness among people with disability or the association …
This manual explores the transition to retirement for people with disability, particularly intellectual disability. The prospect of retirement unsettles most people. It's a major transition in …
Published: 2013
Topics
Community life
Aging and retirement
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