University of Sydney [Australia]
  • Professor of Intellectual Disability
Email
roger.stancliffe@sydney.edu.au
Phone
61-2-9351-9984
Fax
61-2-9351-9197
Address
C42 - Cumberland Campus
The University of Sydney
Lidcombe
NSW 2141 Australia

ICI partner staff

Roger Stancliffe is Professor of Intellectual Disability at The University of Sydney, Faculty of Health Sciences and leads the Disability Services stream at the University of Sydney's Centre for Disability Research and Policy. Previously, he was a Senior Research Fellow at the Centre for Developmental Disability Studies (1997-2007) in Sydney, Australia, and a Research Associate at the University of Minnesota in Minneapolis, USA.

His research interests include choice, self-determination, community living, retirement and community participation, Active Support, physical activity, individual planning, deinstitutionalization, and cost effectiveness of services. He has published over 120 research articles and chapters.

His most recent book is Costs and Outcomes of Community Services for People with Intellectual Disabilities (2005). He was editor of the Journal of Intellectual & Developmental Disability from 2003 to 2008 and is a consulting editor to six international research journals on intellectual disability.

He is a regular presenter at national and international conferences on intellectual disability. He is a Fellow of the American Association on Intellectual and Developmental Disabilities (AAIDD) and the International Association for the Scientific Study of Intellectual Disability (IASSID), and is the recipient of the 2011 AAIDD Research Award.

In 2010, with colleagues from the University of Minnesota, he was awarded the NARRTC (formerly National Association of Rehabilitation Research and Training Centers) Best Paper Award for the most outstanding research paper published in 2009 by researchers from the 38 RRTCs in universities across the United States.

Curriculum Vitae (pdf)

Projects

Project

National Core Indicators Field Initiated Projects Program: Advance Exploration of Factors Affecting Quality of Life Outcomes of Adults with Intellectual Disabilities

Uses the data sets from the National Core Indicators (NCI) Program with the expertise of the project team to advance disability and rehabilitation research and disseminate and translate results…

Project

Active Support Interventions and Their Effect on Increased Participation of Persons With Disabilities [Archived]

Conducts a longitudinal, randomized control study to examine the impact of Active Support (AS) interventions in 20 group homes in Minnesota. AS is an organizational intervention that enables Direct…

Project

National Core Indicators Multi-State Study of Service Outcomes and Their Predictors [Archived]

Analyzes data from 25 states and 4 sub-state regions on more than 12,000 randomly sampled individuals with developmental disabilities to examine lifestyles and service outcomes, and individual…

Project

Research and Training Center on Community Living (RTC-CL)

Conducts a wide range of research, training, and technical assistance and dissemination projects related to community supports under its center grant and related project funding. The RTC-CL is…

Project

QualityMall.org Web Site on Person-Centered Services for Persons with Developmental Disabilities

Provides resources and information on leading-edge, person-centered supports for use by individuals with disabilities, families, advocates, government officials, and service providers, in a wide…

Products

Factors Associated With Meeting Physical Activity Guidelines by Adults With Intellectual and Developmental Disabilities

Background: Many individuals with intellectual and developmental disabilities (IDD) have sedentary lifestyles. Aims: (a) compare adults with IDD with the general adult population on adherence to…

Published: 2019

Characteristics of Adults with Autism Spectrum Disorder who use Residential Services and Supports Through Adult Developmental Disability Services in the United States

Background: Many children and adults with Autism Spectrum Disorder (ASD) need services and support across their lifespans. Currently many residential and community living supports are delivered…

Published: 2016

Active Support training, staff assistance, and engagement of individuals with intellectual and developmental disabilities in the United States: Randomized controlled trial

Two non-U.S. quasi-experimental studies reported Active Support training was associated with increased engagement in individuals with IDD, but no randomized controlled trials (RCTs) exist. We…

Published: 2019-03-01

Policy Research Brief: Costs and Outcomes of Community Services for Persons with Intellectual and Developmental Disabilities

A brief reviewing available research on the costs and outcomes of community service provision for people with intellectual disabilities (or "mental retardation") and developmental disabilities,…

Published: May 2004

Does talking about end of life with adults with intellectual disability cause emotional discomfort or psychological harm?

Background Caregivers often avoid involving people with intellectual disability in end‐of‐life discussions and activities. One reason is fear that the person may become upset or psychologically…

Published: 12/17/2020

Promoting Relationships with Community Members: What are the Best Strategies?

A report summarizing the results of a project that compared two different methods of promoting greater social inclusion between individuals with intellectual and/or developmental disabilities...

Published: August 2015

Exploring Retirement for Individuals With Intellectual and Developmental Disabilities: An Analysis of National Core Indicators Data

To begin to understand retirement, we examined age-related differences in (a) employment rates, employment hours, and rates of individual-plan employment goals; and (b) participation rates in…

Published: 2018

Policy implications, eligibility, and demographic characteristics of people with intellectual disability who access self-directed funding in the United States

This study identifies factors (state of residence, personal characteristics, and living situation) associated with access to self-directed funding (SDF) for adults with intellectual disability in…

Published: 4/1/2021

Correlates of Everyday Choice and Support-Related Choice for 8,892 Randomly Sampled Adults With Intellectual and Developmental Disabilities in 19 States

This article examines everyday choices made by 8,892 adults with intellectual and developmental disabilities (IDD) and support-related choices made by 6,179 adults with IDD receiving services from…

Published: 2012

Disability, Loneliness and Health in the UK: Cross-sectional Survey

Background: Research has suggested that exposure to loneliness can have a powerful detrimental impact on health, including mental health. Addressing socially determined health inequity requires…

Published: 2021

Characteristics of Adults with Autism Spectrum Disorder who use Residential Services and Supports Through Adult Developmental Disability Services in the United States

Background: Many children and adults with Autism Spectrum Disorder (ASD) need services and support across their lifespans. Currently many residential and community living supports are delivered…

Published: 2017

Choice, preference, and disability: Promoting self-determination across the lifespan

This book examines choice and preference in the lives of people with disability, focusing on people with intellectual and developmental disabilities. It provides an overview of choice and examines…

Published: 2/12/2021

Social Inclusion and Community Participation of Individuals With Intellectual/Developmental Disabilities

As more individuals with intellectual/developmental disabilities are physically included in community life, in schools, neighborhoods, jobs, recreation, and congregations, the challenge of going…

Published: 2013

The impact of disability on employment and financial security following the outbreak of the 2020 COVID-19 pandemic in the UK

Background: The coronavirus disease 2019 (COVID-19) pandemic may have a greater impact on people with disabilities than non-disabled people. Our aim was to compare the short-term impact of the 2020…

Published: 2/9/2021

Community Living and Participation: Embracing the Complexity and Forging Forward

This special issue of Intellectual and Developmental Disabilities (IDD) provides summary reviews of and expert commentaries on what is known, what points of debate exist, and what remains unknown…

Published: 2013

Place of residence and preventive health care for intellectual and developmental disabilities services recipients in 20 states

Objective. We identified trends in the receipt of preventive health care by adults with intellectual and developmental disabilities by type of residential setting. Methods. We used data from the…

Published: 2012

Examining the National Core Indicators' potential to monitor rights of people with intellectual and developmental disabilities according to the CRPD

The Convention on the Rights of Persons with Disabilities (CRPD) aims to change attitudes and policies toward individuals with disabilities worldwide and to foster the inclusion and independence of…

Published: 2019-09-10

Specialist palliative care staff’s varying experiences of talking with people with intellectual disability about their dying and death: A thematic analysis of in-depth interviews

Background : The cognitive and communication challenges experienced by people with intellectual disability present difficulties for health professionals, particularly in the face of illness and…

Published: 3/23/2021

Aging, community-based employment, mobility impairment, and retirement: National Core Indicators-Adult Community Survey data

Little is known about how, when, or why individuals with intellectual and developmental disabilities (IDD) retire. Recognizing the changing needs of older adults with IDD is critical to support…

Published: 2019-10-31

Area-level associations between built environment characteristics and disability prevalence in Australia: An ecological analysis

The importance of health-promoting neighborhoods has long been recognized, and characteristics of local built environments are among the social determinants of health. People with disability are…

Published: 2020-10-26

Issues Concerning Self-Report Data and Population-Based Data Sets Involving People With Intellectual Disabilities

This article examines two methodological issues regarding ways of obtaining and analyzing outcome data for people with intellectual disabilities: (a) self-report and proxy-report data and (b)…

Published: 2013

Aging, Community-Based Employment, Mobility Impairment, and Retirement: National Core Indicators-Adult Community Survey Data

Little is known about how, when, or why individuals with intellectual and developmental disabilities (IDD) retire. Recognizing the changing needs of older adults with IDD is critical to support…

Published: 2019

Employment in the Community for People with and without Autism: A Comparative Analysis

Employment in the community continues to be a major barrier for many people with disabilities in the United States. Analyzing the 2008–09 National Core Indicators Adult Consumer Survey, this study…

Published: 2016

Loneliness, social support, social isolation and wellbeing among working age adults with and without disability: Cross-sectional study

Background: Loneliness is significantly related to health and wellbeing. However, there is little information on the prevalence of loneliness among people with disability or the association between…

Published: 2021-01-01

Transition to Retirement: A Guide to Inclusive Practice

This resource guide explores the transition to retirement for people with disability, particularly intellectual disability. The prospect of retirement unsettles most people. It's a major transition…

Published: 2013

Topics

  • Community life
    • Aging and retirement