End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice

Roger J Stancliffe, Michele Y Wiese, Philip McCallion, Mary McCarron


This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics are situated in everyday community settings, palliative care, hospice and disability services.

The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive responses supported by research evidence and practice examples. Personal real-world stories ground the topics in lived experience and together with practical resources, aim to support research translation to practice.

The book is applicable to readers from the disability field, as well as mainstream health professionals who assist people with disability in emergency care, palliative care or planning at the end of life.

Suggested Citation

Stancliffe, R. J., Wiese, M. Y., McCallion, P., & McCarron, M. (Eds.). (2022). End of life and people with intellectual and developmental disability: Contemporary issues, challenges, experiences and practice (1st ed.). Palgrave Macmillan. https://doi.org/10.1007/978-3-030-98697-1


Palgrave Macmillan