Issues Concerning Self-Report Data and Population-Based Data Sets Involving People With Intellectual Disabilities

Author(s)
Roger Stancliffe

Issues Concerning Self-Report Data and Population-Based Data Sets Involving People With Intellectual Disabilities

Description

This article examines two methodological issues regarding ways of obtaining and analyzing outcome data for people with intellectual disabilities: (a) self-report and proxy-report data and (b) analysis of population-based data sets. Some people with intellectual disabilities have difficulties with self-reporting due to problems of understanding and communication. However, there are serious doubts about the validity of proxy data for subjective issues. One important challenge with secondary analysis of population-based data sets is the difficulty of accurately identifying survey participants with intellectual disabilities. In both areas examined, it is important to recognize these constraints when interpreting research based on such data.

Suggested Citation

Issues Concerning Self-Report Data and Population-Based Data Sets Involving People With Intellectual Disabilities. (2013). Intellectual and Developmental Disabilities, 51(5), 333–348. https://doi.org/10.1352/1934-9556-51.5.333

Details

Date
2013-10-01 
Type
Peer-reviewed article 
Edition
Volume 51, Number 5
Contact
Roger Stancliffe roger.stancliffe@sydney.edu.au or 61-2-9351-9984
Publisher
American Association on Intellectual and Developmental Disabilities