RISP: Study of Medicaid Funded In-home and Residential Long-term Supports and Services for Persons with Intellectual or Developmental Disabilities (RISP)

Gathers, maintains, and analyzes longitudinal data on Medicaid funded residential and in-home supports for people with intellectual and developmental disabilities.

More specifically, the project:

  • Gathers and maintains annual statistics and longitudinal trend data on Medicaid and state funded residential and in-home supports for people with disabilities with an annual report published online;

  • Collaborates with the National Association of public and private developmental disabilities agencies (APDDA) to conduct a biannual survey of public residential facilities to report status and trends in populations, funding, costs, and closures;

  • Collaborates with Human Services Research Institute (HSRI) and Association of Public and Private Developmental Disabilities Administrators (APDDA) to analyze quality outcome data from surveys of adults in 35 states in the National Core Indicators project;

  • Conducts literature reviews, case studies, state level policy studies, and secondary analyses of extant data sets regarding key policy and program issues in residential and community supports; and

  • Provides ongoing assistance to individuals, government agencies, public and private organizations, media outlets and others on residential and community supports for people with intellectual and developmental disabilities.

  • Publishes annual reports on the status and trends in residential and community living supports, the interactive chart gallery where people can select the variables and data that interest them and produce a customized report, as well as special reports on policies related to individual and family supports.

  • Maintains the Quality Mall.org Web site which indexes information about innovation in community support and collaborates with the Self-Advocacy Online Web site to translate research findings into a format accessible to people with intellectual and developmental disabilities. Other RISP publications include Policy Research Brief (published collaboratively with the Research and Training Center on Community Living) and Community Services Reporter (published by NASDDDS).

A supplement to the RISP Project continues the activities of the Supporting Individuals and Families Information Systems Project which collects, analyzes and reports on data about Medicaid funded services provided to adults and children living in the home of a family member or their own home. through September 2017.