• Project Coordinator
Email
hall0342@umn.edu
Phone
+1 612-625-9700
Address
Institute On Community Integration
Masonic Inst For The Developing Brain [map]
2025 E River Pkwy
Rm 1-329Ao
Minneapolis, MN 55414-3604

Libby is an early career researcher at the Institute on Community Integration (ICI), University of Minnesota. In her role, she manages the CDC-funded Minnesota-Autism and Developmental Disability Monitoring (ADDM) Network project, which identifies the prevalence of autism. She also manages evaluations of policies and programs that promote the inclusion of people with intellectual and developmental disabilities in the community. She is pursuing a PhD in Evaluation Studies, with the goal of evaluating policies and programs that promote the inclusion of people with intellectual and developmental disabilities.

Curriculum Vitae (pdf)

Projects

Project

Minnesota Autism and Developmental Disabilities Monitoring Network (MN-ADDM)

Participates in a national network that increases knowledge about the population of children with Autism Spectrum Disorder (ASD) and other developmental disabilities in the U.S., comparing how …

Project

Research and Training Center on Community Living (RTC-CL)

Conducts a wide range of research, training, and technical assistance and dissemination projects related to community supports under its center grant and related project funding. The RTC-CL is …

Project

Special Projects to Advance "Learn the Signs, Act Early"

Integrates developmental monitoring using Learn the Signs, Act Early (LTSAE) checklists into the Follow Along Program—a large statewide family-serving, home-visiting program—and develops a comprehe…

Project

TeleOutreach Center

The TeleOutreach Center at the Masonic Institute for the Developing Brain brings together researchers, clinical pediatric providers, and developmental specialists to use technology to understand …

Project

Spina Bifida and Muscular Dystrophy Prevalence Project

There is only limited data about the prevalence of Spina Bifida (SB) and Muscular Dystrophy (MD) in the United States. Using publicly-available data sets and/or other data sources, this project …

Project

Self-Directed Supports with Independent Support Services

Evaluated a New York approach to self-directed supports and analyzed national trends in self-directed supports. The project examined how families navigate a self-directed approach when the primary …

Products

Direct Support Professionals and the COVID-19 Vaccine

This 11-minute webinar addresses COVID-19 vaccinations for direct support professionals. Topics include: The reasons why people with intellectual and developmental disabilities are more vulnerable …

Published: 2/24/2022

Characteristics of Adults with Autism Spectrum Disorder who use Residential Services and Supports Through Adult Developmental Disability Services in the United States

Background: Many children and adults with Autism Spectrum Disorder (ASD) need services and support across their lifespans. Currently many residential and community living supports are delivered …

Published: 2016

Supporting Individuals with Intellectual or Developmental Disabilities and their Families: Status and Trends Through 2012

A technical report describing results from a survey of state intellectual and developmental disabilities (IDD) agencies for FY 2012 on the status and trends of long-term supports and services for …

Published: 2014

Supporting Individuals with Intellectual or Developmental Disabilities and their Families: Status and Trends through 2014

A report summarizing statistics that were gathered and analyzed for the Supporting Individuals and Families Information Systems Project (FISP). It includes information about the numbers of, and …

Published: 2016

In-Home and Residential Long-Term Supports and Services for Persons with Intellectual or Developmental Disabilities: Status and Trends through 2014

A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2014. It is based on an annual …

Published: 2017

Statewide County-level Autism Spectrum Disorder Prevalence Estimates — Seven U.S. States, 2018

Purpose: Autism spectrum disorder (ASD) prevalence information is necessary for identifying community needs such as addressing disparities in identification and services. Methods: Seven Autism and …

Published: 2023

Early Identification of Autism Spectrum Disorder Among Children Aged 4 Years: Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2018

Description of System: The Autism and Developmental Disabilities Monitoring Network is an active surveillance program that estimates ASD prevalence and monitors timing of ASD identification among …

Published: 2021

Characteristics of Adults with Autism Spectrum Disorder who use Residential Services and Supports Through Adult Developmental Disability Services in the United States

Background: Many children and adults with Autism Spectrum Disorder (ASD) need services and support across their lifespans. Currently many residential and community living supports are delivered …

Published: 2017

2020 Evaluation of Experiences with Self Direction in New York State: A Focus on Sustainability

In 2020, people participating in New York State’s self-direction plan were surveyed about their experiences with self-direction. The primary goal of the survey was to examine the sustainability of …

Published: 2021

Parents’ Beliefs Regarding Shared Reading with Infants and Toddlers

Parent beliefs about reading to young children—and factors related to such beliefs—affect a child’s reading skill. But, little is known about parent beliefs about reading to infants and toddlers. …

Published: 2021

Plans for Sustaining Self-Direction

In 2020, people participating in New York State’s self-direction plan were surveyed to examine the sustainability of self-directed services: how families plan to navigate a self-directed model …

Published: 2023

Self-Directed Services: Challenges and Training Needs

In 2020, people participating in New York State’s self-direction plan were surveyed about their experiences with self-direction, including challenges people experience with self-direction, and …

Published: 2023

Early Identification of Autism Spectrum Disorder Among Children Aged 4 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020

Description of system: The Autism and Developmental Disabilities Monitoring Network is an active surveillance program that estimates prevalence and characteristics of ASD and monitors timing of …

Published: 2023

Policy Research Brief: State IDD Agencies’ Views on Self-Directed Services

Self-direction allows people with intellectual and developmental disabilities (IDD) to control most aspects of their home- and community-based services. Other names that states use for self- …

Published: September 2023

Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years: Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018

Description of System: The Autism and Developmental Disabilities Monitoring (ADDM) Network conducts active surveillance of ASD. This report focuses on the prevalence and characteristics of ASD …

Published: 2021

Training Topics to Support Self-Directed Services

In 2020, people participating in New York State’s self-direction plan were surveyed about their experiences with self-direction, including a question about training topics that they would like …

Published: 2023

Prevalence of autism spectrum disorder among children aged 8 years: Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2016

Description of System: The Autism and Developmental Disabilities Monitoring (ADDM) Network is an active surveillance program that provides estimates of the prevalence of ASD among children aged 8 …

Published: 2020-03-27

Concerns about the Sustainability of Self-Direction

In 2020, people participating in New York State’s self-direction plan were surveyed about their experiences with self-direction. One of the goals of the survey was to learn about the concerns …

Published: 2023