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Factors influencing low prevalence of neurodevelopmental disabilities among US Hispanic/Latino children
Objectives: Hispanic/Latino (H/L) children have lower prevalence of neurodevelopmental disabilities (NDD) than other groups. The explanations for this are complex, but may be related to nativity, …
Published: 2019-07-01
Implementing aided augmentative communication systems with persons having complex communicative needs
Augmentative and alternative communication (AAC) systems can support communication skills for people with significant developmental disabilities who experience complex communication needs (CCNs). …
Published: 2019-06-25
Be a change agent: Tools and techniques to support organizational and individual transformation
Background: More people with disabilities are living and working in the community than ever before, including many who receive support from provider organizations and state agencies. These organiza…
Published: 2019-05-20
Fiscal stewardship, choice, and control: The context of self-directed services for people with intellectual and developmental disabilities (IDD) in the United States
Self-directed home and community based services (HCBS) waiver services and supports for people with intellectual and developmental disabilities (IDD) have become a viable and widely used method of …
Published: 2019-04-01
Putting the pieces together: Perceptions of longitudinal wraparound, systems of care, and Positive Behavior Support implementation
Positive Behavior Support (PBS) was introduced to community-based providers in Kansas in 2012 in response to a federally funded initiative to reduce the placement of youth in psychiatric facilities…
Published: 2019-03-25
Active Support training, staff assistance, and engagement of individuals with intellectual and developmental disabilities in the United States: Randomized controlled trial
Two non-U.S. quasi-experimental studies reported Active Support training was associated with increased engagement in individuals with IDD, but no randomized controlled trials (RCTs) exist. We …
Published: 2019-03-01
Psychotropic medication use for adults with autism spectrum disorder who receive services and supports through adult developmental disability services in the United States
Individuals with autism spectrum disorder (ASD) have higher rates of co-occurring diagnoses and use of psychotropic medication prescriptions than people with other developmental disabilities. Few …
Published: 2019-01-31
Weekly wage exploration of vocational rehabilitation service recipients: A quantile regression approach
Earnings of people with intellectual and developmental disability (IDD) in a labor market can be a useful indicator of the quality of employment, economic mobility, and the quality of life of …
Published: 2019
Exploring the Role of Prevocational Services for People With Intellectual and Developmental Disabilities in Medicaid HCBS Waivers
BACKGROUND:Day and employment services provided by state intellectual and developmental disabilities (IDD) agencies, with funding from Medicaid Home and Community Based Services (HCBS), have shown …
Published: 2018
Exploring Retirement for Individuals With Intellectual and Developmental Disabilities: An Analysis of National Core Indicators Data
To begin to understand retirement, we examined age-related differences in (a) employment rates, employment hours, and rates of individual-plan employment goals; and (b) participation rates in …
Published: 2018
A Comprehensive Model of Employment Supports for Job Seekers With Intellectual and Developmental Disabilities
Interviews with 16 employment consultants-triangulated with job seekers, family members, and supervisors-revealed a model of employment supports aligned with the elements described in the literatur…
Published: 2018
Vocational Rehabilitation Service Usage and Outcomes for Individuals With Autism Spectrum Disorder
In the pursuit of improving employment outcomes for individuals with Autism Spectrum Disorder (ASD), understanding how participants are using Vocational Rehabilitation (VR), and which services …
Published: 2017
Phenotypic Characteristics of Autism Spectrum Disorder in a Diverse Sample of Somali and Other Children
The potential for culture to impact diagnosis of autism spectrum disorder (ASD) is high, yet remains largely unstudied. This study examined differences across racial/ethnic groups in ASD symptoms, …
Published: 07/08/2017
Moving toward an inclusive education system: Lessons from the U.S. and their potential application in the Czech Republic and other Central and Eastern European countries
In this article, we present the historical and current developments of inclusive education (IE) in the U.S. in the context of recent changes toward a more inclusive approach to education (IE) in …
Published: 2017
Characteristics of Adults with Autism Spectrum Disorder who use Residential Services and Supports Through Adult Developmental Disability Services in the United States
Background: Many children and adults with Autism Spectrum Disorder (ASD) need services and support across their lifespans. Currently many residential and community living supports are delivered …
Published: 2017
Food Insecurity Among Young Adults With Intellectual and Developmental Disabilities in the United States: Evidence From the National Health Interview Survey
People with intellectual or developmental disabilities (IDD) face higher levels of poverty than others, which can lead to concerns regarding areas of well-being, such as food security. Young …
Published: 2016-11-01
More Job Services Better Employment Outcomes: Increasing Job Attainment for People With IDD
Job search, job placement, and on-the-job supports are valuable services provided to many people with intellectual and developmental disabilities (IDD) to obtain work in the community. Investigatin…
Published: 2016-10-01
Employment in the Community for People with and without Autism: A Comparative Analysis
Employment in the community continues to be a major barrier for many people with disabilities in the United States. Analyzing the 2008–09 National Core Indicators Adult Consumer Survey, this study …
Published: 2016
Setting National Goals in Research, Practice and Policy
Published: 2016
Employment and Economic Self-Sufficiency: 2015 National Goals for Research, Policy, and Practice
Employment in general workforce and economic self-sufficiency continue to be the exceptions for people with intellectual and developmental disabilities (IDD), rather than the norm. Research, …
Published: 2015
Introduction to the Special Issue: National Goals 2015
In August 2015, the Research and Training Center on Community Living at the University of Minnesota, the Rehabilitation Research and Training Center on Developmental Disabilities and Health at the …
Published: 2015
Toward 2025: Promoting Valued Outcomes for People With IDD Through National Goals 2015
This special issue of Inclusion provided details on outcomes of the National Goals 2015 Conference, held August 2015. The individual articles reflected on knowledge to date, discussed points of …
Published: 2015
Long-Term Services and Supports
People with intellectual and developmental disabilities (IDD) often rely on long-term services and supports (LTSS) to live and work in the community or with their families. As policy reforms …
Published: 2015
National Research Goals for Social Inclusion of Persons With Intellectual/Developmental Disabilities
As more individuals with intellectual/developmental disabilities are physically included in community life, in schools, neighborhoods, jobs, recreation, and congregations, the challenge of going …
Published: 2015
The Negative Effects of Public Benefits on Individual Employment: A Multi-Level Analysis of Work Hours
Public benefits are widely used by people with intellectual and development disabilities (IDD) as crucial financial supports. Using Rehabilitation Service Administration 911 and Annual Review …
Published: 2015-10-01
Building Community Capacity to Advance Employment: Putting Faith to Work
The percentage of people with disabilities who are employed continues to be critically low. The existing services and supports infrastructure faces many constraints, including its limited capacity …
Published: 2014
Involvement of Children With Autism Spectrum Disorder (ASD) in the Child Protection System
The present study provides information about children with autism spectrum disorder (ASD) who are involved in the child protection system in a large, Midwestern state. Findings revealed that …
Published: 2014
Unmet needs and quality of support for parents of transition aged youth: Differences by disability group, age and household income
This study examined access to and quality of supports for families of adolescents with disabilities.Methodology: An online survey was completed by family members of transition-aged young adults …
Published: 2013-12-27
Families of Individuals With Intellectual and Developmental Disabilities: Policy, Funding, Services, and Experiences
Families are critical in the provision of lifelong support to individuals with intellectual and developmental disabilities (IDD). Today, more people with IDD receive long-term services and supports…
Published: 2013-10-01
Issues Concerning Self-Report Data and Population-Based Data Sets Involving People With Intellectual Disabilities
This article examines two methodological issues regarding ways of obtaining and analyzing outcome data for people with intellectual disabilities: (a) self-report and proxy-report data and (b) …
Published: 2013
Observations of Academic Instruction for Students With Significant Intellectual Disability: Three States, Thirty-Nine Classrooms, One View
As part of the validation process for alternate assessments, 39 classroom observations were conducted to gather data about current practices in providing academic instruction to students with …
Published: 2013
Self-Determination and Choice
Promoting self-determination and choice opportunities for people with intellectual and developmental disabilities has become best practice in the field. This article reviews the research and …
Published: 2013
Social Inclusion and Community Participation of Individuals With Intellectual/Developmental Disabilities
As more individuals with intellectual/developmental disabilities are physically included in community life, in schools, neighborhoods, jobs, recreation, and congregations, the challenge of going …
Published: 2013
The State of the Science of employment and economic self-sufficiency for people with intellectual and developmental disabilities
Employment, career advancement, and financial independence are highly valued in the United States. As expectations, they are often instilled at a young age and incentivized throughout adulthood. …
Published: 2013
The State of the Science of Health and Wellness for Adults With Intellectual and Developmental Disabilities
Historically, people with intellectual and developmental disabilities (IDD) have experienced health disparities related to several factors including: a lack of access to high quality medical care, …
Published: 2013
Community Living
In the United States, people with intellectual and developmental disabilities (IDD) are granted certain assurances and protections related to community living through public laws and related …
Published: 2013
Economic and Programmatic Indicators Explain Vocational Rehabilitation Employment Rates of Persons With Cognitive Disabilities
This national study investigated state economic health and state Vocational Rehabilitation (VR) services for persons with cognitive disabilities. Using 2004 to 2010 extant data from the Rehabilitat…
Published: 2013
The courage to bridge worlds
This article describes the two worlds of "services" and "community," decrying their separation and the results of that separation in the lives of individuals affected by disability.
Published: 2013-01-01
Place of residence and preventive health care for intellectual and developmental disabilities services recipients in 20 states
Objective. We identified trends in the receipt of preventive health care by adults with intellectual and developmental disabilities by type of residential setting. Methods. We used data from the …
Published: 2012
Implementation of Job Development Practices
We investigated the extent to which employment consultants implemented job development practices recommended in the literature when assisting job seekers with intellectual or developmental disabili…
Published: 2012
Improving the Employment Outcomes of Job Seekers With Intellectual and Developmental Disabilities: A Training and Mentoring Intervention for Employment Consultants
The purpose of this study was to validate a training curriculum for employment consultants who assisted job seekers with intellectual or developmental disabilities in finding individual paid …
Published: 2012
Accessible Congregations Campaign: Follow-Up Survey of Impact on Individuals With Intellectual/Developmental Disabilities (ID/DD)
The National Organization on Disability's Accessible Congregations Campaign (ACC) was a national effort in the United States to increase congregational inclusion of people with disabilities. This …
Published: 2012
Achieving Change Through Public Policy Activities
Published: 2016
Autism Spectrum Disorder (ASD) Prevalence in Somali and Non-Somali children
The current study presents results from an autism spectrum disorder (ASD) public health surveillance project conducted in Minneapolis. The study was designed to compare ASD prevalence in Somali …
Published: 2016
BeFrienders: Impact of a Social Ministry Program on Relationships for Individuals With Intellectual/Developmental Disabilities (I/DD)
Representatives of a nationally widespread social ministry were surveyed to determine if such an effort had an impact on the social inclusion of individuals with intellectual/developmental disabili…
Published: 2013
Behavioral Outcomes of Moving From Institutional to Community Living for People With Intellectual and Developmental Disabilities: U.S. Studies From 1977 to 2010
This article reviews 43 U.S. studies assessing adaptive and challenging behavior outcomes associated with people with intellectual and developmental disabilities (IDD) who moved from institutions …
Published: 2012
Building economic opportunity through community development
Employment outcomes for people with disabilities continue to be significantly worse than those without disabilities. Government-based employment services and supports continue to face...
Published: 2015
Changing the Message: Employment as a Means Out of Poverty
Poverty is deep-rooted issue that has challenged society throughout history. It is a complex and multilayered problem that requires a reflexive look at inequity across social, cultural, economic, …
Published: 2016
Community Living and Participation: Embracing the Complexity and Forging Forward
This special issue of Intellectual and Developmental Disabilities (IDD) provides summary reviews of and expert commentaries on what is known, what points of debate exist, and what remains unknown …
Published: 2013
Correlates of Everyday Choice and Support-Related Choice for 8,892 Randomly Sampled Adults With Intellectual and Developmental Disabilities in 19 States
This article examines everyday choices made by 8,892 adults with intellectual and developmental disabilities (IDD) and support-related choices made by 6,179 adults with IDD receiving services from …
Published: 2012
Direct support workforce supporting individuals with IDD: Current wages, benefits, and stability
Direct support professionals (DSPs) and frontline supervisors (FLSs) play an integral role in the lives of people with intellectual and developmental disabilities (IDD) and are often the individual…
Published: 2014
Presidential Address, 2014 Embracing complexity: Community inclusion, participation, and citizenship
A couple of years ago, Mike Wehmeyer set a new precedent by issuing the presidential address at the beginning of his term, rather than at the end. So, thank you Mike for establishing this tradition…
Published: 2014

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