State of the Science 2022
The "2022 State of the Science Conference on Community Living: Engaging persons with intellectual and developmental disabilities from underserved racial, ethnic, linguistic, and cultural groups in research” was an invitation-only event hosted by ICI’s Research and Training Center on Community Living in September 2022. The two-day event brought together persons with IDD and current and emerging researchers who led stakeholder groups in topic strands focused on community living. Participants critically examined community living as experienced by persons with IDD across underserved and marginalized racial, ethnic, linguistic, and cultural groups to determine what we know, what we don’t know, and what we need to know. Together, participants developed and prioritized research recommendations with the greatest potential to affect evolving policy and practice to address the gaps in the areas of direct support workforce, social inclusion, family support, employment, living arrangements, and criminal justice.
Recommendations and future research questions developed by each strand are available here.
Below are short video summaries of each of the research strands and personal perspectives on each topic by individuals with lived experience with disability. Impact: Feature Issue on Engaging Communities Underrepresented in Disability Research explores these topics through in-depth articles, personal stories, and program profiles.
Research strand: Family Support
Sandra Magaña, PhD, is the executive director of the Texas Center for Disability Studies, University of Texas at Austin. Read her article, One Size Doesn't Fit All Families, in Impact.
Family Support - Sandy Magaña, PhD: https://www.youtube.com/embed/YUf6vuds9G4
Leonard Boston is a parent and a board member of Parent to Parent USA. Read his story, Access and Awareness, in Impact.
Family Support - Leonard Boston: https://www.youtube.com/embed/M1srsjbRUH8
Research strand: Social Inclusion
Matt Bogenschutz, PhD, is an associate professor in the School of Social Work at Virginia Commonwealth University. Read his article, Contexts in Social Inclusion and Belonging, in Impact.
Social Inclusion - Matt Bogenschutz, PhD: https://www.youtube.com/embed/FcEipDVxRsw
Angela West, MS, is a multicultural specialist at Virginia Commonwealth University. Read her article, Two Cultures, One Challenge in Impact.
Social Inclusion - Angela West, MS: https://www.youtube.com/embed/JjNkOyxvZFo
Research strand: Living Arrangements
Joe Caldwell, PhD, is a senior scientist at the Lurie Institute for Disability Policy, Brandeis University. Read his article, The Importance of Home, in Impact.
Living Arrangements - Joe Caldwell, PhD: https://www.youtube.com/embed/x8JPldF3bCk
Greg Robinson, MPH, is ... Read his story, Coming Home: Why I'm Fighting for Others' Freedom, in Impact.
Living Arrangements - Greg Robinson, MPH: https://www.youtube.com/embed/gbq6EKbVmCQ
Research strand: Employment
John Butterworth, PhD, is a senior research fellow at the Institute on Community Inclusion, UMass Boston. Read his article, Employment: The Multiplier Effect, in Impact.
Employment - John Butterworth, PhD: https://www.youtube.com/embed/-MkxTP_-D3A
Ajani Lewis-McGhee works at Allianz Life Insurance and is a board member of MN-APSE. Read his story, A Job to Finish, in Impact.
Employment - Ajani Lewis-McGhee: https://www.youtube.com/embed/0JZAi78MPog
Research strand: Criminal Justice
Beverly Frantz, PhD, is director of the Criminal Justice Project at Temple University’s Institute on Disabilities. Read her story, Criminal Justice: Why Is This Happening?, co-authored with Roger Stancliffe, in Impact.
Criminal Justice - Beverly Frantz, PhD: https://www.youtube.com/embed/dHuJlt6QIys
Debbie Robinson is the executive director of Speaking for Ourselves. Read her article, MY Perspective: We Need to do More, in Impact.
Criminal Justice - Debbie Robinson: https://www.youtube.com/embed/XIaT4cFQMnc
Research strand: Direct Support Workforce
Carol Britton Laws, PhD, is associate clinical professor at the Institute on Human Development and Disability, University of Georgia. Read her article, Workforce: Bearing the Cost of Inclusion, in Impact.
Workforce - Carol Britton Laws, PhD: https://www.youtube.com/embed/ntIxW32bwNs