Research Brief 8: Employment Outcomes and Paid Leave for Caregivers of Children with Intellectual or Developmental Disabilities


A brief examining a Family and Individual Needs for Disability Supports (FINDS) survey subsample of 388 caregivers of minor children with intellectual and/or developmental disabilities (IDD), ages 0-17. The FINDS survey was conducted in 2017 by ICI's Research and Training Center on Community Living (RTC-CL) and The Arc of the United States. All parents face challenges balancing work, child-rearing, and family responsibilities. However, the brief concludes that parents of children with IDD often perform caregiving duties related to their child's disability beyond what is typical for child-rearing. Caring for children with IDD can have negative impacts on work, and ultimately the family's economic health.


Fall 2018 
University of Illinois Chicago
The Arc of the United States
Research and Training Center on Community Living (RTC-CL)


  • Community life
    • Parenting and family relationships
  • Specific life stage
    • Children
    • Adults
  • Specific disability
    • Intellectual/developmental disability (IDD)