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Feature Issue on Enhancing Quality and Coordination of Health Care for Persons with Chronic Illness and/or Disabilities
Published by the Institute on Community Integration (UCEDD) and the Research and Training Center on Community Living, College of Education and Human Development, University of Minnesota • Volume 18• Number 1• Winter 2005
From the Editors
For individuals with disabilities and/or chronic illnesses who have complex health care and other support needs, it is too often the case that they must navigate complex service systems largely on their own, trying to identify and put together all the pieces of the services and supports they require. The outcome is often fragmented, with the individual or family exhausted, frustrated, and experiencing significant and even life-threatening unmet needs.
Throughout the country, growing numbers of individuals with complex medical and support needs are receiving health care and other human services with the assistance of care coordination programs. Though care coordination is in its infancy as a practice, the experience of these individuals and their care providers suggests that it’s promising in not only improving effectiveness of care and quality of life, but it may also prove more cost-effective through its ability to help individuals access appropriate and preventive care before conditions escalate. This issue of Impact highlights several of these programs, and individuals whose lives have been changed, even saved, by them. It also describes system-level issues and options for further exploration by those shaping service policies and systems in our country.
What's Inside
Overview Articles
Caring for Sarah: A Mother’s Story
Costs, Options, and Inclusion: Issues in Health Care for People with Disabilities
Self-Direction and Accountability in Health Systems for People with Disabilities
Disability, Culture, and Health Disparities
Applying Cultural Competence to Disability (sidebar)
Health Care Coordination for Persons with Disabilities: Its Meaning and Importance
Comprehensive Service Coordination Organizations: A New Health Care Model
Strategies for Meeting the Needs of Persons Moving Out of Nursing Homes
Children with Special Needs: Integrating Health Care and Family Support
Program and Personal Profiles
Care Coordination in the Transition Years: Gillette’s Lifetime Specialty Healthcare
Meeting Social Service and Health Care Needs in NYC: Independence Care System
“Without Independence Care System, I’d be Dead.” (sidebar)
Coordinated Care for Children in D.C.: Health Services for Children with Special Needs, Inc.
Improving Care Coordination Through Medical Summaries: Utah’s CFS Project
Medical Summaries From a Physician’s Perspective (sidebar)
Care Coordination for Children with Complex Medical Needs: U Special Kids
A New Approach to Health Care Delivery in Minnesota: The AXIS Model
Integrated Health and Long-Term Care Services: The Wisconsin Partnership Program
A New Approach to Evaluating Support Effectiveness: Florida’s Delmarva Foundation
Promoting Healthy Lives: The National Center on Physical Activity and Disability
Resources
Publication Information
Managing Editor: Vicki Gaylord
Issue Editors:
Brian Abery Institute on Community Integration University of Minnesota
- Rhonda Cady
- Institute on Community Integration University of Minnesota
Erin Simunds Institute on Community Integration University of Minnesota
- Susan E. Palsbo
- National Rehabilitation Hospital and George Mason University
- Institute on Community Integration University of Minnesota
Impact is published quarterly by the Institute on Community Integration (UCEDD), and the Research and Training Center on Community Living, College of Education and Human Development, University of Minnesota. This issue was supported, in part, by Grant #90DD0579 from the Administration on Developmental Disabilities, US Department of Health and Human Services; and Grant #H133B031116 from the National Institute on Disability and Rehabilitation Research, US Department of Education.
The opinions expressed are those of the authors and do not necessarily reflect the views of the Institute, College, University, or their funding sources.For additional copies or information contact:
Institute on Community Integration University of Minnesota 109 Pattee Hall, 150 Pillsbury Drive SE Minneapolis, MN 55455 612/624-4512 icipub@umn.edu
Impact is available in alternative formats upon request.
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Retrieved from the Web site of the Institute on Community Integration, University of Minnesota (http://ici.umn.edu). Citation: Gaylord, V., Abery, B., Cady, R., Simunds, E., & Palsbo, S. (Eds.). (2005). Impact: Feature Issue on Enhancing Quality and Coordination of Health Care for Persons with Chronic Illness and/or Disabilities 18(1). Minneapolis: University of Minnesota, Institute on Community Integration. Available at http://ici.umn.edu/products/impact/181/default.html.
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Hard copies of Impact are available from the Publications Office of the Institute on Community Integration. The first copy of this issue is free; additional copies are $4 each. You can request copies by phone at 612/624-4512 or e-mail at icipub@umn.edu, or you can fax or mail us an order form. See our listing of other issues of Impact for more information.
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