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Feature Issue on Enhancing Quality and Coordination of Health Care for Persons with Chronic Illness and/or DisabilitiesPublished by the Institute on Community Integration (UCEDD) and the Research and Training Center on Community Living, College of Education and Human Development, University of Minnesota • Volume 18• Number 1• Winter 2005From the EditorsFor individuals with disabilities and/or chronic illnesses who have complex health care and other support needs, it is too often the case that they must navigate complex service systems largely on their own, trying to identify and put together all the pieces of the services and supports they require. The outcome is often fragmented, with the individual or family exhausted, frustrated, and experiencing significant and even life-threatening unmet needs. Throughout the country, growing numbers of individuals with complex medical and support needs are receiving health care and other human services with the assistance of care coordination programs. Though care coordination is in its infancy as a practice, the experience of these individuals and their care providers suggests that it’s promising in not only improving effectiveness of care and quality of life, but it may also prove more cost-effective through its ability to help individuals access appropriate and preventive care before conditions escalate. This issue of Impact highlights several of these programs, and individuals whose lives have been changed, even saved, by them. It also describes system-level issues and options for further exploration by those shaping service policies and systems in our country. What's InsideOverview Articles Caring for Sarah: A Mother’s Story Costs, Options, and Inclusion: Issues in Health Care for People with Disabilities Self-Direction and Accountability in Health Systems for People with Disabilities Disability, Culture, and Health Disparities Applying Cultural Competence to Disability (sidebar) Health Care Coordination for Persons with Disabilities: Its Meaning and Importance Comprehensive Service Coordination Organizations: A New Health Care Model Strategies for Meeting the Needs of Persons Moving Out of Nursing Homes Children with Special Needs: Integrating Health Care and Family Support
Care Coordination in the Transition Years: Gillette’s Lifetime Specialty Healthcare Meeting Social Service and Health Care Needs in NYC: Independence Care System “Without Independence Care System, I’d be Dead.” (sidebar) Coordinated Care for Children in D.C.: Health Services for Children with Special Needs, Inc. Improving Care Coordination Through Medical Summaries: Utah’s CFS Project Medical Summaries From a Physician’s Perspective (sidebar) Care Coordination for Children with Complex Medical Needs: U Special Kids A New Approach to Health Care Delivery in Minnesota: The AXIS Model Integrated Health and Long-Term Care Services: The Wisconsin Partnership Program A New Approach to Evaluating Support Effectiveness: Florida’s Delmarva Foundation Promoting Healthy Lives: The National Center on Physical Activity and Disability
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