Family supports/in-home services
Family supports/in-home services are services provided to people with disabilities in their home that they own or rent or in a home owned or rented by a family member. Includes semi-independent living services (SILS), home health, personal care, Medicaid Home and Community Based Services (waiver), and consumer/self-directed services.
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- An Independent Assessment of the Region 10 Quality Assurance Commission Voice Review Program (2008)
A report on the VOICE program, a person-centered quality assurance system that emphasizes self-determination created by the Region 10 Quality Assurance Commission in Southeast Minnesota.
Cost: Free Delivery format: PDF - DirectCourse (2004)
Offers a suite of competency-based, online curricula for professionals providing services to people with intellectual, developmental, physical, and psychiatric disabilities, and to older adults....
- Family & Individual Needs for Disability Support (FINDS) Community Report 2017 (2018)
A report presenting the results of the Family & Individual Needs for Disability Supports (FINDS) survey, launched in 2017 by ICI's Research and Training Center on Community Living in collaboration...
Cost: Free Delivery format: PDF - Find, Choose and Keep Great DSPs (2006)
A pair of easy-to-use toolkits helping families and people with disabilities find quality, caring, and committeed Direct Support Professionals (DSPs). There are two different versions of the...
Cost: Free - $30.00 Delivery format: PDF, Print - FINDS [2010] National Survey (2011) [Archived]
A report covering the national Internet survey that The Arc of the United States conducted in 2010 that aimed to capture the perspectives of people with intellectual and developmental disabilities...
Cost: Free Delivery format: PDF - FSRTC Research Brief 8: Family Caregivers of Family Members with IDD Differ from Other Caregivers in the Kinds and Duration of Supports They Provide (2018)
A brief comparing caregiving experiences of family caregivers for adults with intellectual and developmental disabilities (IDD) with those of caregivers who responded to the Caregiving in the U.S....
Cost: Free Delivery format: PDF - HCBS Outcome Framework Results (2017)
A webinar for policymakers and family members on the results of the process used to validate the National Quality Forum HCBS Outcome Framework.
Cost: Free Delivery format: Online - In-Home and Residential Long-Term Supports and Services for Persons with Intellectual or Developmental Disabilities: Status and Trends Through 2016 (2018)
A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2016. It is based on an annual...
Cost: Free Delivery format: Online - LEND Fact Sheet: Family Caregivers of Children with Special Health Care Needs: The Need for Caregiver Support as Truly Family-Centered Care (2013)
A fact sheet describing the need to support family caregivers as they take care of children with special health care needs. The fact sheet presents needs, facts, and solutions to supporting family...
Cost: Free Delivery format: PDF - Of the Community: Eight Stories of Community Living, Participation, and Inclusion (2015)
A film telling the stories of eight individuals with disabilities who have vibrant lives in which they live and participate in their communities in the ways they choose. Their stories illustrate...
Cost: $3.99 - $19.99 Delivery format: Online - Quality Mall (2004)
An interactive database providing an online clearinghouse of over 3,500 resources from around the country related to person-centered services and supports for persons with intellectual and...
Cost: Free Delivery format: Online - Rehabilitation and Research Training Center on Outcome Measurement (RTC-OM) Website (2017)
A website presenting the Rehabilitation and Research Training Center on Outcome Measurement, which evaluates measures of the quality of life experienced by people with disabilities as a result of...
Cost: Free Delivery format: Online - State of the Science: Theories, Concepts, and Evidence Guiding Policy and Practice in Community Living and Participation for People with Intellectual Disabilities (2013)
A set of online video presentations from the July 2012 conference, State of the Science: Outcomes for People with Intellectual and Developmental Disabilities in Halifax, Nova Scotia. Experts in...
Cost: Free Delivery format: Online - Study of Medicaid Funded In-home and Residential Long-term Supports and Services for Persons with Intellectual or Developmental Disabilities (RISP) Website (2018)
A website presenting the Study of Medicaid Funded In-home and Residential Long-term Supports and Services for Persons with Intellectual or Developmental Disabilities project (RISP), which gathers,...
Cost: Free Delivery format: Online - Supporting Individuals and Families Information Systems Project (FISP) Website (2012)
A website presenting documents and resources from this project that gathers data to help federal and state agencies understand the current status and emerging trends in supporting families and...
Cost: Free Delivery format: Online - Supporting Individuals with Intellectual or Developmental Disabilities and their Families: Status and Trends Through 2012 (2014) [Archived]
A technical report describing results from a survey of state intellectual and developmental disabilities (IDD) agencies for FY 2012 on the status and trends of long-term supports and services for...
Cost: Free Delivery format: PDF - Supporting Individuals with Intellectual or Developmental Disabilities and their Families: Status and Trends through 2014 (2016) [Archived]
A report summarizing statistics that were gathered and analyzed for the Supporting Individuals and Families Information Systems Project (FISP). It includes information about the numbers of, and...
Cost: Free Delivery format: Online, PDF - The Effectiveness of Engaging Parents and Family Members to Expand the Social Inclusion of Adults with Intellectual/Developmental Disabilities Living with Families (2018)
A report detailing the methods and findings of a social inclusion study. Since most individuals with intellectual and/or developmental disabilities live at home, engaging families in social...
Cost: Free Delivery format: PDF - Through Asking the Right Questions... You Can Reach Your Destination (1999) [Archived]
A pocket guide containing questions for families and persons with disabilities to ask as they interview residential service providers and decide which are best suited to meet their support needs.
Cost: Free Delivery format: Online - Valuing Lives: Wolf Wolfensberger and the Principle of Normalization (2016)
A film documenting the social paradigm shift triggered by Wolf Wolfensberger, a professor and change agent who, in the early 1970s, popularized and expanded the principle of normalization of people...
Cost: $3.99 - $24.99 Delivery format: Online - Impact (2000 – 2019)Latest: Feature Issue on Inclusive Education for K-8 Students with the Most Significant Cognitive Disabilities
A newsletter series containing strategies, research, and success stories in specific focus areas related to persons with intellectual, developmental, and other disabilities. It provides practical...
Cost: Free Delivery format: Email subscription, Print subscription - National Goals in Research, Policy, and Practice (2016)Latest: Justice for people with intellectual and developmental disabilities
A series of videos and accompanying briefs that grew out of the National Goals in Research, Policy, and Practice working meeting held in Washington, DC, in 2015. Participants summarized the current...