• Research Associate
  • Director, Early Intervention
Email
hall0440@umn.edu
Phone
+1 612-626-1721
Address
Institute On Community Integration
Masonic Inst For The Developing Brain [map]
2025 E River Pkwy
Rm 1-334
Minneapolis, MN 55414-3604

Jennifer Hall-Lande, Ph.D., is a Psychologist and Research Associate at the Institute on Community Integration (UCEDD) at the University of Minnesota. Dr. Hall-Lande does clinical work in child development, including early identification of Autism Spectrum Disorder (ASD) and other neurodevelopmental disabilities. Dr. Hall-Lande conducts research in Autism Spectrum Disorder (ASD) and Intellectual Disability (ID) prevalence and identification of developmental delays and disabilities. She is additionally an investigator on the Autism and Developmental Disabilities Monitoring (ADDM) Network and has led many “Learn the Signs. Act Early.” projects.  Dr. Hall-Lande was selected to serve as CDC’s Act Early Ambassador in Minnesota from 2014-2018. In this role, Dr. Hall-Lande promotes early developmental monitoring, early developmental screening, and early intervention. Dr. Hall-Lande is also a former LEND (Leadership in Neurodevelopmental Disabilities) Fellow and remains actively involved as a faculty mentor in the Minnesota LEND program.

Dr. Hall-Lande’s principal research and community outreach activities focus on early screening, assessment, and interventions for children at risk for developmental delays and developmental disabilities. Dr. Hall-Lande has a specific interest in community outreach and training around developmental screening in universal access environments such as in childcare settings and Early Childhood Family Education (ECFE) programs. Further, Dr. Hall-Lande has a strong professional interest in outreach to culturally diverse communities, with an end goal of increasing screening rates and reducing the age of diagnosis for children from diverse and currently underserved communities. Additional areas of focus have been ASD prevalence rates in diverse populations and policy issues around ASD waivers for both children and adults. She has served as a co-leader of the statewide Minnesota Act Early team for the past five years. Through her Act Early work, she has built many strong and sustained professional partnerships and valuable community connections.

Curriculum Vitae (pdf)

Projects

Project

MN Act Early Ambassador

Develops and expands on the Institute's Act Early work in culturally and linguistically diverse communities. Act Early is building a national network of agencies, organizations, and professionals …

Project

DirectCourse

Offers a suite of competency-based, online curricula for professionals providing services to people with intellectual, developmental, physical, and psychiatric disabilities, and to older adults....

Project

Minnesota Autism and Developmental Disabilities Monitoring Network (MN-ADDM)

Participates in a national network that increases knowledge about the population of children with Autism Spectrum Disorder (ASD) and other developmental disabilities in the U.S., comparing how …

Project

MN Act Early Project

Developed and expanded on the MN Help Me Grow and the Institute's Act Early work in culturally and linguistically diverse communities. Act Early helped build a national network of agencies, …

Project

ICI Engaged Department Grant Program [Archived]

Creates an infrastructure to grow and develop ongoing community engagement, and to facilitate new initiatives and promote engaged learning on community based action research. In doing so, ICI …

Project

Research and Training Center on Community Living Diversity Fellowships [Archived]

Aims to (1) increase the knowledge and capacity of disability within a community-based organization (CBO) that serves diverse and/or underrepresented families, and (2) inform ICI about how to …

Project

Building Healthy Children and Strong Families: Increasing Access to Early Developmental Screening and Early Intervention [Archived]

Evaluates the early identification of child developmental delays and the implementation of intervention services that optimize child and family well-being in Hennepin County, Minnesota. One in …

Project

Research and Training Center on Community Living (RTC-CL)

Conducts a wide range of research, training, and technical assistance and dissemination projects related to community supports under its center grant and related project funding. The RTC-CL is …

Project

Special Projects to Advance "Learn the Signs, Act Early"

Integrates developmental monitoring using Learn the Signs, Act Early (LTSAE) checklists into the Follow Along Program—a large statewide family-serving, home-visiting program—and develops a comprehe…

Project

TeleOutreach Center

The TeleOutreach Center at the Masonic Institute for the Developing Brain brings together researchers, clinical pediatric providers, and developmental specialists to use technology to understand …

Project

Project SCOPE: Supporting Children of the Opioid Epidemic

ICI's MNLEND program created a network of partner organizations across Minnesota to enhance developmental screening, monitoring, and education for families dealing with the effects of opioid …

Project

Day Support Consulting

Provided specialized consultation on integrated day services and staff training for MRCI, Inc., an employment provider. ICI developed new tools for staff training to support increased community …

Project

Spina Bifida and Muscular Dystrophy Prevalence Project

There is only limited data about the prevalence of Spina Bifida (SB) and Muscular Dystrophy (MD) in the United States. Using publicly-available data sets and/or other data sources, this project …

Project

Self-Directed Supports with Independent Support Services

Evaluated a New York approach to self-directed supports and analyzed national trends in self-directed supports. The project examined how families navigate a self-directed approach when the primary …

Project

Autism Intervention Research Network On Physical Health (AIR-P)

ICI investigators are part of a national research network formed to improve the physical health and well-being of children and adults with autism. The multidisciplinary team, called the Autism …

Project

Bridging Barriers to Intervention Access for Waitlisted Children with ASD and Their Families

This research project is creating a randomized control trial to learn how to improve outcomes for children with autism spectrum disorder (ASD) who are waitlisted for diagnostic evaluation or …

Project

COVID-19 Vaccine Access and Confidence Among People with Disabilities

This project facilitated COVID-19 vaccine conversations among people with disabilities, their families, and communities. The team identified barriers to vaccine accessibility, increased vaccine …

Products

Direct Support Professionals and the COVID-19 Vaccine

This 11-minute webinar addresses COVID-19 vaccinations for direct support professionals. Topics include: The reasons why people with intellectual and developmental disabilities are more vulnerable …

Published: 2/24/2022

Characteristics of Adults with Autism Spectrum Disorder who use Residential Services and Supports Through Adult Developmental Disability Services in the United States

Background: Many children and adults with Autism Spectrum Disorder (ASD) need services and support across their lifespans. Currently many residential and community living supports are delivered …

Published: 2016

Patterns of Special Education Eligibility and Age of First Autism Spectrum Disorder (ASD) Identification Among US Children with ASD

The study examined timing of autism spectrum disorder (ASD) identification in education versus health settings for 8-year-old children with ASD identified through records-based surveillance. The …

Published: 2/25/2022

NCEO English Language Learners (ELLs) with Disabilities Reports: Confronting the Unique Challenges of Including English Language Learners with Disabilities in Statewide Assessments (#9)

This year 2005 report describes the challenges states have in including English learners with disabilities in statewide assessments and the solutions they have identified.

Published: June 2005

NCEO English Language Learners (ELLs) with Disabilities Reports: Policymaker Perspectives on the Inclusion of English Language Learners with Disabilities in Statewide Assessments (#8)

This year 2005 report describes how states are including English learners with disabilities in statewide assessments and supporting local schools in communicating their results to parents.

Published: August 2005

Policy Research Brief: A National Review of Home and Community Based Services (HCBS) for Individuals with Autism Spectrum Disorders

A brief reporting findings of a study that gathered data in 2009-2010 about how people with autism spectrum disorders (ASD) are being served across states in Home and Community Based Services ( …

Published: December 2011

A Report on Early Intervention Services for Minnesota's Children with Autism Spectrum Disorders

A report summarizing the activities and findings of a project funded by the Minnesota Department of Human Services (DHS), and conducted by the University of Minnesota's Research and Training Center...

Published: 2012

Policy Research Brief: Implementation of Consumer-Directed Services for Persons With Intellectual or Developmental Disabilities - A National Study

A brief summarizing the results of a national study on the status of consumer-directed services for persons with intellectual or developmental disabilities. The study was conducted at the Universit…

Published: January 2009

You Know That it's Got to be Dedication That I am Still Here: The Experiences of Direct Support Professionals During Hurricanes Katrina and Rita, and Aftermath

A report describing the experiences of Direct Support Professionals (DSPs) who worked in New Orleans between August 2005 and May 2006 - before, during, and after Hurricanes Katrina and Rita. In …

Published: 2007

Higher Ground: The Dedication of Direct Support Professionals During and After Hurricanes Katrina and Rita (Brief)

A brief summarizing the report, You Know that it's Got to be Dedication that I am Still Here: The Experiences of Direct Support Professionals During Hurricanes Katrina and Rita, and the Aftermath …

Published: 2007

Policy Research Brief: State of the States in Self-Direction for Individuals with Intellectual and Developmental Disabilities (2015)

A brief describing how self-directed long-term services and supports (LTSS) are currently implemented in the United States. Self-direction provides individuals with intellectual and/or...

Published: 2017

Statewide County-level Autism Spectrum Disorder Prevalence Estimates — Seven U.S. States, 2018

Purpose: Autism spectrum disorder (ASD) prevalence information is necessary for identifying community needs such as addressing disparities in identification and services. Methods: Seven Autism and …

Published: 2023

COVID-19 Impacts on MN Early Childhood Systems

Filled with infographics, photos, and graphs, this brief summarizes COVID-19's impact on MN Early Childhood Systems. The brief shows that early childhood screenings, referrals, well-child visits, …

Published: 2022

Early Identification of Autism Spectrum Disorder Among Children Aged 4 Years: Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2018

Description of System: The Autism and Developmental Disabilities Monitoring Network is an active surveillance program that estimates ASD prevalence and monitors timing of ASD identification among …

Published: 2021

Characteristics of Adults with Autism Spectrum Disorder who use Residential Services and Supports Through Adult Developmental Disability Services in the United States

Background: Many children and adults with Autism Spectrum Disorder (ASD) need services and support across their lifespans. Currently many residential and community living supports are delivered …

Published: 2017

2020 Evaluation of Experiences with Self Direction in New York State: A Focus on Sustainability

In 2020, people participating in New York State’s self-direction plan were surveyed about their experiences with self-direction. The primary goal of the survey was to examine the sustainability of …

Published: 2021

Parents’ Beliefs Regarding Shared Reading with Infants and Toddlers

Parent beliefs about reading to young children—and factors related to such beliefs—affect a child’s reading skill. But, little is known about parent beliefs about reading to infants and toddlers. …

Published: 2021

Plans for Sustaining Self-Direction

In 2020, people participating in New York State’s self-direction plan were surveyed to examine the sustainability of self-directed services: how families plan to navigate a self-directed model …

Published: 2023

Help Me Grow MN and MN Act Early Project Partnership

This final report of the Help Me Grow MN and MN Act Early Project Partnership tells how the collaborative project connected Help Me Grow MN resources with Minnesota’s culturally- and linguistically…

Published: 2020-09-30

Prevalence of intellectual disability among eight-year-old children from selected communities in the United States, 2014

Background: Children with intellectual disability (ID), characterized by impairments in intellectual functioning and adaptive behavior, benefit from early identification and access to services. …

Published: 2020-11-15

A systematic review of U.S. studies on the prevalence of intellectual or developmental disabilities since 2000

This systematic review examined 14 U.S. studies published since 2000 reporting prevalence estimates for intellectual disability (ID) or developmental disability (DD). Prevalence rates for children …

Published: 2019-10-01

Psychotropic medication use for adults with autism spectrum disorder who receive services and supports through adult developmental disability services in the United States

Individuals with autism spectrum disorder (ASD) have higher rates of co-occurring diagnoses and use of psychotropic medication prescriptions than people with other developmental disabilities. Few …

Published: 2019-01-31

Disparities in documented diagnoses of autism spectrum disorder based on demographic, individual, and service factors

The objectives of our study were to (a) report how many children met an autism spectrum disorder (ASD) surveillance definition but had no clinical diagnosis of ASD in health or education records …

Published: 2019-12-23

Fiscal stewardship, choice, and control: The context of self-directed services for people with intellectual and developmental disabilities (IDD) in the United States

Self-directed home and community based services (HCBS) waiver services and supports for people with intellectual and developmental disabilities (IDD) have become a viable and widely used method of …

Published: 2019-04-01

Involvement of Children With Autism Spectrum Disorder (ASD) in the Child Protection System

The present study provides information about children with autism spectrum disorder (ASD) who are involved in the child protection system in a large, Midwestern state. Findings revealed that …

Published: 2014

Self-Directed Services: Challenges and Training Needs

In 2020, people participating in New York State’s self-direction plan were surveyed about their experiences with self-direction, including challenges people experience with self-direction, and …

Published: 2023

Supervisory and Administrative Staff's Perspectives of Self-directed Supports for People with Intellectual and Developmental Disabilities

Background: Self-directed supports (SDS) are a model of disability service delivery that focuses on supporting increased decision-making authority and budget autonomy for people with disabilities …

Published: 2021

Early Identification of Autism Spectrum Disorder Among Children Aged 4 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020

Description of system: The Autism and Developmental Disabilities Monitoring Network is an active surveillance program that estimates prevalence and characteristics of ASD and monitors timing of …

Published: 2023

The Intersection of Systemic, Child, and Evaluation Factors in the Prediction of Autism Special Education Eligibility; Examining the Role of Race and Ethnicity

Though there is evidence autism identification has been inequitable for populations who are culturally and linguistically minoritized, there is limited research that explains the issue of dispropor…

Published: 2023

Policy Research Brief: State IDD Agencies’ Views on Self-Directed Services

Self-direction allows people with intellectual and developmental disabilities (IDD) to control most aspects of their home- and community-based services. Other names that states use for self- …

Published: September 2023

Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years: Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018

Description of System: The Autism and Developmental Disabilities Monitoring (ADDM) Network conducts active surveillance of ASD. This report focuses on the prevalence and characteristics of ASD …

Published: 2021

Training Topics to Support Self-Directed Services

In 2020, people participating in New York State’s self-direction plan were surveyed about their experiences with self-direction, including a question about training topics that they would like …

Published: 2023

Sensory Features in Autism: Findings From a Large Population-based Surveillance System

Sensory features (i.e., atypical responses to sensory stimuli) are included in the current diagnostic criteria for autism spectrum disorder. Yet, large population-based studies have not examined …

Published: 1/18/2022

Autism Spectrum Disorder (ASD) Prevalence in Somali and Non-Somali children

The current study presents results from an autism spectrum disorder (ASD) public health surveillance project conducted in Minneapolis. The study was designed to compare ASD prevalence in Somali …

Published: 2016

Prevalence of autism spectrum disorder among children aged 8 years: Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2016

Description of System: The Autism and Developmental Disabilities Monitoring (ADDM) Network is an active surveillance program that provides estimates of the prevalence of ASD among children aged 8 …

Published: 2020-03-27

Concerns about the Sustainability of Self-Direction

In 2020, people participating in New York State’s self-direction plan were surveyed about their experiences with self-direction. One of the goals of the survey was to learn about the concerns …

Published: 2023

Phenotypic Characteristics of Autism Spectrum Disorder in a Diverse Sample of Somali and Other Children

The potential for culture to impact diagnosis of autism spectrum disorder (ASD) is high, yet remains largely unstudied. This study examined differences across racial/ethnic groups in ASD symptoms, …

Published: 07/08/2017

The Prevalence and Characteristics of Children With Profound Autism, 15 Sites, United States, 2000-2016

Objectives: Autism spectrum disorder (autism) is a heterogeneous condition that poses challenges in describing the needs of individuals with autism and making prognoses about future outcomes. We …

Published: 2023

Factors influencing low prevalence of neurodevelopmental disabilities among US Hispanic/Latino children

Objectives: Hispanic/Latino (H/L) children have lower prevalence of neurodevelopmental disabilities (NDD) than other groups. The explanations for this are complex, but may be related to nativity, …

Published: 2019-07-01