Residential Information Systems Project (RISP)

Description

Examines the status of, and longitudinal trends in, provision of institutional and home and community based long-term supports and services for people with intellectual and developmental disabilities (IDD). The project, which began in 1977, collects annual data from state IDD agencies about state and non-state operated services, residential setting types and sizes, Medicaid and other funding authorities, and recipient age. It describes state and national trends in where LTSS recipients live, examines the impact of Medicaid and other Federal policies on state systems, and informs research, legislation, litigation, and policy.

Contact
Sheryl A Larson
Director
Sheryl A Larson
Website
risp.umn.edu/
Funder
Administration on Disabilities, U.S. Department of Health and Human Services, Research and Training Center on Community Living, College of Education and Human Development, University of Minnesota
Collaborators
National Association of State Directors of Developmental Disabilities Services

Staff

Sheryl A Larson :: Research Manager


Jon Neidorf :: Researcher 5


Sandra L Pettingell :: Research Associate


Brian C Begin :: Education Program Specialist


Staff

Sarah L Curtner :: Graphic and Multimedia Designer


Kristin Dean :: Director of Information Technology


Shawn C Lawler :: Web Developer


Staff

Jonathon P Walz :: Software Engineer


Product

In-Home and Residential Long-Term Supports and Services for Persons with Intellectual or Developmental Disabilities: Status and Trends Through 2016

A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2016. It is based on an annual …

Published: 2018

Study of Medicaid Funded In-home and Residential Long-term Supports and Services for Persons with Intellectual or Developmental Disabilities (RISP) Website

A website presenting the Study of Medicaid Funded In-home and Residential Long-term Supports and Services for Persons with Intellectual or Developmental Disabilities project (RISP), which gathers,...

Published: 2012

In-Home and Residential Long-Term Supports and Services for Persons with Intellectual or Developmental Disabilities: Status and Trends through 2014

A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2014. It is based on an annual …

Published: 2017

In-Home and Residential Long-Term Supports and Services for Persons with Intellectual or Developmental Disabilities: Status and Trends Through 2015

A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2015. It is based on an annual...

Published: 2017

RISP Data Bytes: Jails, Prisons, and Large State Institutions

Many people with intellectual and developmental disabilities (IDD) who live in state-run facilities of 16 or more people have had previous criminal involvement. In 2019, 29% of people admitted to …

Published: 2024

RISP Data Bytes: More People with IDD get Services in Homes Shared by Three or Fewer People

ICI's Residential Information Systems Project (RISP) gets information each year from state IDD agencies about the places where people with IDD live. In 1977, 247,780 people with IDD lived in large …

Published: 2023

RISP Data Bytes: Changes in Spending for Long-term Services and Supports between 1982 and 2019

Since 1982, the number of individuals with Intellectual and Developmental Disabilities (IDD) receiving services in community settings has surged, while those in Medicaid-funded IDD institutions …

Published: 2024

RISP Data Bytes: Most People in Large IDD Facilities Now Live in Settings Operated by Nonstate Providers

In 1967, almost 200,000 people with intellectual and developmental disabilities (IDD) lived in large state institutions. Initially, those leaving state facilities moved to non-state ones. Starting …

Published: 2023

Topics

  • Community life
    • Community supports and services
    • Person-centered planning and practices
    • Quality outcomes
  • Housing and residential services
    • Community group residential
    • Consumer/self-directed services
    • Family supports/in-home services
    • Institutions and deinstitutionalization
    • Medicaid services (residential)
  • Specific disability
    • Intellectual/developmental disability (IDD)