FISP: Supporting Individuals and Families Information Systems Project (FISP)

Description

Establishes and refines a comprehensive program of annual data collection from states on family support, and conducts longitudinal data analysis, policy studies, and dissemination activities to better understand and promote effective supports for families and individuals with intellectual and/or developmental disabilities (IDD) who direct their own support. The data gathered will be used to help federal and state agencies understand the current status and emerging trends in supporting families and individuals with IDD living in homes of their own or with family members (including consumer direction). It will also be used to compare and contrast services and expenditures targeting the person with IDD versus those targeting the family members with whom they reside, and to compare services for children versus services for adults with IDD.

This project was archived on 2017-05-08T00:00:00-05:00

Contact
Lynda L Lahti Anderson
Director
Sheryl A Larson
Website
fisp.umn.edu/
Funder
Administration on Intellectual and Developmental Disabilities, U.S. Department of Health and Human Services
Collaborators
National Association of State Directors of Developmental Disabilities Services
Human Services Research Institute

Staff

Staff

Lynda L Lahti Anderson :: Researcher VI


Staff

Kristin Dean :: Information Technology Manager


Staff

Shawn C Lawler :: Web UI Developer


Heidi Eschenbacher :: Researcher


Sheryl A Larson :: Research Manager 3


Staff

Sandra L Pettingell :: Research Associate


Amy S Hewitt :: Director, Institute on Community Integration


Partner staff

Partner staff

Yoshiko Kardell :: Policy Analyst


Product

Supporting Individuals with Intellectual or Developmental Disabilities and their Families: Status and Trends through 2014

A report summarizing statistics that were gathered and analyzed for the Supporting Individuals and Families Information Systems Project (FISP). It includes information about the numbers of, and…

Published: 2016

Supporting Individuals and Families Information Systems Project (FISP) Website

A website presenting documents and resources from this project that gathers data to help federal and state agencies understand the current status and emerging trends in supporting families and...

Published: 2012

Topics

  • Community life
    • Parenting and family relationships
    • Housing and residential services
      • Consumer/self-directed services
        • Family supports/in-home services
          • Institutions and deinstitutionalization
            • Medicaid services (residential)
            • Specific disability
              • Intellectual/developmental disability (IDD)
              • Specific life stage
                • Adolescents and young adults
                  • Adults
                    • Children
                      • Early childhood
                        • Seniors

                        Activities

                        • Dissemination
                          • Research
                            • Technical assistance