Family & Individual Needs for Disability Support (FINDS) Community Report 2017

Report description

A report presenting the results of the Family & Individual Needs for Disability Supports (FINDS) survey, launched in 2017 by ICI's Research and Training Center on Community Living in collaboration with The Arc of the United States to assess the status of caregivers of individuals with intellectual and developmental disabilities (I/DD) in the United States. The survey and resulting Community Report shed light on the experiences of families who provide supports to a family member with I/DD. They are a follow up to the first FINDS survey, which was conducted in 2010 and released in 2011.

Survey participants reflect the ever-increasing reliance on families to provide the bulk of supports to individuals with IDD. The workforce crisis and lack of supports such as respite challenges both the caregivers and the individuals receiving supports. Caregivers report economic impacts such as needing to quit work, reduce hours, or turn down promotions in order to provide care, as well as impacts on their own health and well-being. Paired with the reliance on families to provide long-term supports is the aging population of caregivers; this all adds challenge for families.

Report details