Reports

Publication prices current through September 30, 2013

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Residential Services

cover of FINDS Survey report2010 FINDS National Survey: Family and Individual Needs for Disability Supports (Technical Report Part 1)
By L. Anderson, S. A. Larson, and A. Wuorio
A report documenting the findings of a national Internet survey that The Arc of the United States conducted in 2010 to capture the perspectives of people with intellectual and developmental disabilities (ID/DD) and their family caregivers. The Family and Individual Needs for Disability Supports (FINDS) survey focused on issues including educational, housing, employment and support needs of people with ID/DD and their families. Data analysis was conducted by the Institute's Research and Training Center on Community Living (RTC), and this is the technical report on the survey published by the RTC. The Arc report, "Out of the Shadows… Into the Light" based on this survey can be downloaded from the FINDS Web site. (2011) • Cost: Free, available only on the Web

Twin Cities and Zambia Disability Connection – Final Report
A report providing an overview of the Twin Cities and Zambia Disability Connection, outlining the project’s preliminary outcomes, and identifying ongoing needs for individuals with disabilities in Zambia, which may provide the focus for future work. The project was created to meet an acute need to develop more community services and supports for people with disabilities in Zambia. It is a collaboration involving the Institute on Community Integration, Arc Greater Twin Cities, Opportunity Partners, Fraser, Inc., and government and community leaders in Zambia. Published by the Institute’s Research and Training Center on Community Living. (2009) • Cost: Free, available only on the Web

Residential Services for Persons with Intellectual or Developmental Disabilities: Status and Trends Through Fiscal Year 2011
Edited by S. Larson, P. Salmi, D. Smith, L. Anderson, and A. Hewitt
A report providing statistics by state for the fiscal year ending June 30, 2011, with long-term trends on residential services, settings, populations and expenditures for persons with developmental disabilities in state, nonstate and Medicaid-funded residential programs in the U.S. Resident characteristics, movement and staffing patterns in large state residential facilities are included. Published by the Institute's Research and Training Center on Community Living. (2013) • Cost: Free, available on the Web

An Independent Evaluation of the Quality of Services and System Performance of Minnesota's Medicaid HCBS for Persons with Mental Retardation and Related Conditions
By A. Hewitt, S. Larson, and K. C. Lakin
A report describing the findings of a study commissioned by the Minnesota Department of Human Services to gather information on the status of current Home and Community-Based Services (HCBS) program implementation, identify challenges in meeting program goals, and assist in strategic planning. Published by the Institute's Research and Training Center on Community Living. (2000) • Cost: Free, available only on the Web

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Transition

Cover to 2010 FAST Family Support Survey report2010 FAST Family Support Survey: National Results
By S. A. Larson, P. Goldberg, S. McDonald, D. Leuchovius, V. Richardson, and K. C. Lakin
A report describing a national survey developed in conjunction with PACER Center's Family Advocacy and Support Training Project (FAST) to increase understanding of the key information needs, unmet service needs, and service quality for youth and young adults with disabilities in transition from school to adulthood (defined for this effort as ages 12 to 22 years). This report summarizes the results of a 2010 national Internet survey of 2,416 parents or relatives of children and youth ages 11 years to 39 years with disabilities from 54 U.S. states and territories. Published by PACER Center and the Institute's Research and Training Center on Community Living. (2011)

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Social Inclusion

Community Members’ Perspectives on Inclusion: Membership of Persons with Developmental Disabilities in Community Organizations
By A. Amado, C. Boice, and M. DeGrande
A report documenting a study about the degree of membership of people with intellectual/developmental disabilities in community organizations, and community members' perceptions of such inclusion. Efforts to increase the social inclusion of individuals with intellectual/developmental disabilities have included recommendations to support membership in community groups and organizations. However, while such recommendations have been made for more than 20 years, there is virtually no information regarding the extent of current membership of such individuals in these community groups and organizations. In this study, surveys were sent to community groups in four states in four different regions of the U.S. inquiring about group membership of individuals with disabilities in general, group members’ experiences with individuals with developmental disabilities in their groups, and the benefits and challenges of having individuals with developmental disabilities as members. Published by the Institute’s Research and Training Center on Community Living (2012) • Cost: Free, available only on the Web

Impact of Two National Congregational Programs on the Social Inclusion of Individuals with Intellectual/Developmental Disabilities
By A. Amado, M. DeGrande, C. Boice, and S. Hutcheson
A report documenting the results of a study of two national congregational efforts for inclusion of people with intellectual/developmental disabilities. The two programs were the Accessible Congregations Campaign of the National Organization on Disability, and the Befrienders Ministry. The report compares the impact on relationships and inclusion of people with intellectual/developmental disabilities through these two different types of efforts. Published by the Institute’s Research and Training Center on Community Living (2011) • Cost: Free, available only on the Web

Agency Factors and Structures Which Increase Successful Outcomes in Community Participation and Socially Valued Roles
By A. Amado
A report documenting the results of a five-year project with Lutheran Social Services in Minnesota to impact the social relationships of individuals with intellectual/developmental disabilities (ID/DD) have with other members of their communities. The project identified agency factors that help explain why some individuals with ID/DD who receive services feel a greater sense of community belonging and social inclusion than others. The report summarizes the results of the project in three areas: friendships, community group/organization membership, and valued community social roles. Published by the Institute’s Research and Training Center on Community Living (2010) • Cost: Free, available only on the Web

Connecting People to People: Report for MSOCS on 2003-08 Project
By A. Amado
A report documenting the results of a five-year project with Minnesota State-Operated Community Services (MSOCS) to impact the social relationships of individuals with intellectual/developmental disabilities have with other members of their communities. The project developed numerous strategies to foster a greater sense of community belonging and social inclusion. The report summarizes the results of the project in three areas: friendships, community group/organization membership, and valued community social roles. Published by the Institute’s Research and Training Center on Community Living (2010) • Cost: Free, available only on the Web

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Direct Support Professionals

Final Report: National Training Institute For Frontline Supervisors
By M. Taylor, S. Larson, A. Hewitt, N. McCulloh, and J. Sauer
A report describing a project that refined, tested, and delivered a "Train-the-Trainer" model to the National Training Institute for Frontline Supervisors. The project also provided a distributed learning, technical assistance and consulting model to assist community human service employers, families and consumers nationwide to recruit, retain, and train direct support professionals and frontline supervisors. Published by the Institute’s Research and Training Center on Community Living. (2007) • Cost: Free, available only on the Web

National Validation Study of Competencies For Frontline Supervisors and Direct Support Professionals
By S. A. Larson, R. Doljanac, D. Nord, P. Salmi, A. Hewitt, and S. O’Nell
A study examining organizational workforce outcomes; characteristics of and differences between managers, Frontline Supervisors (FLS) and Direct Support Professionals (DSPs); and workplace competencies, training needs, and timing of training for FLS and DSPs. Using survey methodologies, the study validated nationally the results of two comprehensive Minnesota analyses of competencies needed by DSPs and FLS, extending the existing analyses by sampling DSPs, FLS and managers in 77 agencies in five states. Published by the Institute’s Research and Training Center on Community Living. (2007) • Cost: Free, available only on the Web

NOLAYou Know That it’s Got to be Dedication That I am Still Here: The Experiences of Direct Support Professionals During Hurricanes Katrina and Rita, and Aftermath
By T. LaLiberte, A. Hewitt, J. Hall Lande, and S. A. Larson
A report describing the experiences of Direct Support Professionals (DSPs) who worked in New Orleans between August 2005 and May 2006 – before, during, and after Hurricanes Katrina and Rita. In 2006, the University of Minnesota was asked to conduct a series of interviews and focus groups with staff from two programs of the Volunteers of America (VOA) of Greater New Orleans: Supported Living Services (offering family and semi-independent living supports to adults and children with disabilities) and Community Living Services (offering group homes for adults and children with developmental disabilities). The purpose of the interviews was to learn what happened during the hurricanes, what worked and didn’t work for DSPs and those they supported in relation to the evacuation, why the DSPs returned to New Orleans, and DSP recommendations for future disaster preparation and response. Published by the Institute’s Research and Training Center on Community Living. (2007) • Cost: Free, available only on the Web

Higher Ground: The Dedication of Direct Support Professionals During and After Hurricanes Katrina and Rita
By T. LaLiberte, A. Hewitt, J. Hall Lande, and S. A. Larson
A synopsis of the above report, You Know That it’s Got to be Dedication That I am Still Here: The Experiences of Direct Support Professionals During Hurricanes Katrina and Rita, and Aftermath. Published by the Institute’s Research and Training Center on Community Living. (2007) • Cost: Free, available only on the Web

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End of Reports section