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Feature Issue on Aging and People with Intellectual and Developmental Disabilities

Published by the Institute on Community Integration (UCEDD) and the Research and Training Center on Community Living, College of Education and Human Development, University of Minnesota • Volume 23 • Number 1 • Winter 2010

From the Editors

“What can be done today to support people with intellectual and developmental disabilities who are aging?” That’s the focus of this issue of Impact. The articles in these pages give a variety of responses to the question. From self-advocates we hear of the importance of having opportunities to be active participants in their communities, to be listened to as they speak up for themselves, and to continue to pursue their own goals and dreams for their lives. From siblings we hear about the necessity to respond to the concerns that keep them awake at night as they deal with the aging of all their family members, including parents who may have been primary caregivers for their brothers or sisters with disabilities. From researchers we hear of the policy and service issues that need to be addressed as the number of adults with intellectual and developmental disabilities over 60 years of age is projected to grow to 1.2 million in the next 20 years. And we hear from practitioners as they describe some of the promising approaches to ensuring quality service and supports that address the physical, social, emotional, and spiritual dimensions of aging with intellectual and developmental disabilities. Our hope is that readers of this issue will find some fresh perspectives and information that will be useful to them as they journey with the aging adults with disabilities who are in their lives.

What's Inside

Articles

Make Your Voice Heard Until the Very End

People with Intellectual and Developmental Disabilities Growing Old: An Overview

What Does Growing Older Mean to Me? Some Thoughts From Adults with Disabilities

My Thoughts About Being 50: Samuel O. Jenkins (sidebar)

An Elder Among Self-Advocates: Cliff Poetz

There Was a Day (sidebar)

Supporting Community Inclusion of Aging Adults with Developmental Disabilities

Aging and End of Life: Helping the Spiritual Tasks of People with Disabilities Come Alive

Futures Planning for Families Supporting Adults with Life-Long Disabilities

“I’m Constantly Thinking About Bev and Her Future”: Siblings Speak About Aging

Meeting Sibling Needs: The Sibling Support Project (sidebar)

The Age Wave: What It Means for Families

Strengthening Sibling Voices: The Sibling Leadership Network

Preparing for the Future: The Lifetime Assistance Program of Arc Greater Twin Cities

“The Future is Now”: Training Individuals with Disabilities and Families in Future Planning

We Can Do More to Help One Another! Creating Networks and Cooperatives

The Role of DSPs in the Lives of Aging Adults with Intellectual and Developmental Disabilities

Caregiver: A New Paradigm in Connecticut

Ways of Thinking About Aging with Disabilities: Select Resources

Age-Related Health Changes for Adults with Developmental Disabilities

Alzheimer’s and Individuals with Intellectual and Developmental Disabilities

Aging with Developmental Disabilities: Women’s Health Issues

Prostate Cancer: Information for Men with Intellectual and Developmental Disabilities (sidebar)

Elder Abuse Programs and Elders with Intellectual and Developmental Disabilities

Resources on Aging and Individuals with Disabilities

Resources Promoting Healthy Living for Adults with Disabilities (sidebar)

Publication Information

Managing Editor: Vicki Gaylord

Issue Editors:

Tamar Heller, Rehabilitation Research and Training Center on Aging with Developmental Disabilities, University of Illinois at Chicago

Philip B. Stafford, Center on Aging and Community, Indiana Institute on Disability and Community, Indiana University, Bloomington

Leigh Ann Davis, The Arc of the United States

Lori Sedlezky, Research and Training Center on Community Living, University of Minnesota

Impact is published by the Institute on Community Integration (UCEDD), and the Research and Training Center on Community Living and Employment, College of Education and Human Development, University of Minnesota. This issue was supported, in part, by Grant #90DD0654 from the Administration on Developmental Disabilities (ADD), US Department of Health and Human Services; and Grant #H133B080005 from the National Institute on Disability and Rehabilitation Research (NIDRR), US Department of Education. Additional support was provided by Grant #H133B080009 from NIDRR to the Rehabilitation Research and Training Center on Aging with Developmental Disabilities, University of Illinois at Chicago; and by Grant #90DD0609 from ADD to the Indiana Institute on Disability and Community, Indiana University, Bloomington.

The views expressed are those of the authors and do not necessarily reflect the views of the Institute, Center or University. The content does not necessarily represent the policy of the US Department of Education or the US Department of Health and Human Services, and endorsement by the Federal Government should not be assumed.

For additional copies or information contact:

Institute on Community Integration
University of Minnesota
109 Pattee Hall
150 Pillsbury Drive SE
Minneapolis, MN 55455
612/624-4512
icipub@umn.edu
http://ici.umn.edu

Impact is available in alternative formats upon request.

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Retrieved from the Web site of the Institute on Community Integration, University of Minnesota (http://ici.umn.edu/products/impact/231). Citation: Heller, T., Stafford, P., Davis, L.A., Sedlezky, L., & Gaylord, V. (Eds.). (Winter 2010). Impact: Feature Issue on Aging and People with Intellectual and Developmental Disabilities, 23(1). [Minneapolis: University of Minnesota, Institute on Community Integration].

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Hard copies of Impact are available from the Publications Office of the Institute on Community Integration. The first copy of this issue is free; additional copies are $4 each. You can request copies by phone at 612/624-4512 or e-mail at icipub@umn.edu, or you can fax or mail us an order form. See our listing of other issues of Impact for more information.

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