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• Center for Health Care Strategies, Inc. (www.chcs.org, 609/895-8101). Offers extensive materials on topics related to improving the quality of health care services for beneficiaries of Medicaid and the State Children’s Health Insurance Program. Among its online publications is “Care Coordination in Medicaid Managed Care: A Primer for States, Managed Care Organizations, Providers, and Advocates” (July 2000), by M. L. Rosenbach & C. G. Young, Mathematica Policy Research, Inc.
• Strengthening the Community System of Care for Children and Youth with Special Health Care Needs and Their Families: Collaboration Between Health Care and Community Service Systems. (2004). By S. Bronheim & T. Tonniges. Published by Georgetown University Center for Child and Human Development. This workbook contains suggested approaches for health care professionals who want to connect better with other community services, and approaches for broader community service providers and agencies to engage health care professionals. Available online at http://gucchd.georgetown.edu/products_publications.html BSOFwkbkfinal.pdf or by phone at 202/687-5000.
• Best Practices in Coordinated Care. (2000). By Chen, A., Brown, R., Archibald, N., Aliotta, S., & Fox, P., Mathematica Policy Research Inc. A report describing lessons learned from current best practices in coordinated care for persons with chronic illness. Available online at http://www.mathematica-mpr.com/publications/PDFs/bestpractices.pdf.
• Children’s Health: Building a Caring Community. (2001). By M.F. Mastal. Healthplan, 42(5), 58-62. A journal article describing resources needed to coordinate health and life care for children with special needs, and positive outcomes.
• Community Living Exchange Collaborative Clearinghouse (www.hcbs.org). A Web site offering a broad array of articles, reports, and resources for infrastructure development to support individuals with disabilities within the community. Includes resources related to long-term care, aging, mental health, and disabilities, among other topics.
• The Consortium for Children and Youth with Disabilities and Special Health Care Needs (http://gucchd.georgetown.edu/programs/consortium_for_children; 202/687-5000). The mission of the Consortium is to improve rehabilitation outcomes for children and youth with disabilities and special health care needs by increasing the effectiveness of service systems. It distributes an extensive array of print and online reports, briefs, and fact sheets.
• Health Care Transitions (http://hctransitions.ichp.edu). Operated by the Promising Practices in Health Care Transition Project, Institute for Child Health Policy, University of Florida. The site offers an array of training materials, listservs, publications, and events related to the transition from pediatric to adult care.
• The Provider’s Guide to Quality and Culture (http://erc.msh.org). A Web site designed to assist health care organizations in providing high quality, culturally competent services to multi-ethnic populations.
• Healthy People 2010 – People with Disabilities (www.cdc.gov/ncbddd/dh/hp2010.htm). This Web site includes data, discussion proceedings, fact sheets, a listserv, and leading health indicators related to people with disabilities and the federal Healthy People 2010 initiative.
• National Survey of Children with Special Health Care Needs: Chartbook 2001. By the Maternal and Child Health Bureau, U.S. Department of Health and Human Services. A report presenting major findings of the National Survey of Children with Special Health Care Needs; provides data on the prevalence of special health care needs among children nationally and within each state, and on access to and satisfaction with care among the children and their families. Available online at http://mchb.hrsa.gov/chscn or in print from 888/ASK-HRSA.
• National Center of Medical Home Initiatives for Children with Special Needs, American Academy of Pediatrics (www.medicalhomeinfo.org, 847/434-4000). Offers medical home tools, resources, training materials, state contacts, and funding opportunities.
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Retrieved from the Web site of the Institute on Community Integration, University of Minnesota (http://ici.umn.edu). Citation: Gaylord, V., Abery, B., Cady, R., Simunds, E., & Palsbo, S. (Eds.) (2005). Impact: Feature Issue on Enhancing Quality and Coordination of Health Care for Persons with Chronic Illness and/or Disabilities 18(1). Minneapolis: University of Minnesota, Institute on Community Integration. Available at http://ici.umn.edu/products/impact/181/default.html.
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Hard copies of Impact are available from the Publications Office of the Institute on Community Integration. The first copy of this issue is free; additional copies are $4 each. You can request copies by phone at 612/624-4512 or e-mail at icipub@umn.edu, or you can fax or mail us an order form. See our listing of other issues of Impact for more information.
The PDF version of this Impact, with photos and graphics, is also online at http://ici.umn.edu/products/impact/181/default.html.
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