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Impact 17(1)

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Feature Issue on Consumer-Controlled Budgets and Persons with Disabilities

Published by the Institute on Community Integration (UCEDD) and the Research and Training Center on Community Living, College of Education and Human Development, University of Minnesota • Volume 17• Number 1 • Spring 2004

From the Editors

Nearly 150 years ago John Stuart Mill, in “On Liberty,” made the simple observation that “liberty consists of doing what one desires.” In a nation founded on the promise of securing “the blessing of liberty” for all, people with disabilities have found themselves often forced to exchange their personal freedoms for the services and support they need. Unwilling to accept that the need for support is incompatible with personal freedom, growing legions of individuals with disabilities, their families, advocates, public officials, and service providers have developed and promoted new ways of increasing the control that people with disabilities have over their own lives and futures. This issue of Impact focuses on various aspects of and experiences with supporting personal freedom through self-directed supports and individually managed budgets. It includes articles from policy, service, and individual/ family perspectives illustrating what is possible when self-determination guides service provision. While control over one’s own services and supports and the resources that finance them does not directly and unequivocally yield liberty, in these pages readers will find evidence of the enormous contributions that such approaches to human services can make to lives of greater independence and personal satisfaction.

What's Inside

Overview Articles

My Life and Consumer-Directed Community Supports

The Impact of Self-Determination on Services and Supports

Individual Budgeting, Control and Support: What Systems Need to Tell People

Pointers for Families and Individuals Who Want to Manage Their Own Services

Finding, Keeping, and Training Staff When Individuals and Families Control the Budget

Program Profiles

Choices and Connections Via the Web - www.LifePages.org

Self-Directed Support Corporations: What a Difference They Can Make

Joyful Care, Inc.: Tennessee's First Microboard

Beyond Traditional: The Arc of North Carolina's Employer of Record Service

An Alternative to Traditional Community Support: My Experiences with The Arc of NC

QualityMall.org: Offering Free Resources on Consumer-Directed Supports

Listening, Learning, and Leading: Community Involvement Programs

Consumer-Directed Community Supports: A County Perspective on a New Service Option

Fighting for Richard: A Mother's Story

The Vermont Way: Evolution of Consumer-Controlled Budgets in Vermont

What Lisa Wants (sidebar)

The Role of Community Living Facilitators in British Columbia's System Change Initiative

Resources

Resources on Supporting Self-Determination

Resources on Systems Change Supporting Consumer Control

Resources on SDSCs and Microboards

Publication Information

Managing Editor: Vicki Gaylord

Issue Editors:

Chas Moseley National Association of State Directors of Developmental Disabilities Services

Charlie Lakin Research and Training Center on Community Living Institute on Community Integration University of Minnesota

Amy Hewitt Research and Training Center on Community Living Institute on Community Integration University of Minnesota

Impact is published quarterly by the Institute on Community Integration (UCE), and the Research and Training Center on Community Living, College of Education and Human Development, University of Minnesota.

This issue was supported, in part, by Grant #90DD0579/01 from the Administration on Developmental Disabilities, US Department of Health and Human Services; and Grant #H133B031116 from the National Institute on Disability and Rehabilitation Research, US Department of Education.

The opinions expressed are those of the authors and do not necessarily reflect the views of the Institute, College, University, or their funding sources.

For additional copies or information contact:

Institute on Community Integration University of Minnesota 109 Pattee Hall, 150 Pillsbury Drive SE Minneapolis, MN 55455 612/624-4512 icipub@umn.edu

Impact is available in alternative formats upon request.

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Retrieved from the Web site of the Institute on Community Integration, University of Minnesota (http://ici.umn.edu). Citation: Gaylord, V., Moseley, C., Lakin, C. & Hewitt, A. (Eds.). (2004). Impact: Feature Issue on Consumer-Controlled Budgets and Persons with Disabilities 17(1). Minneapolis: University of Minnesota, Institute on Community Integration. Available from http://ici.umn.edu/products/impact/171.

Hard copies of Impact are available from the Publications Office of the Institute on Community Integration. The first copy of this issue is free; additional copies are $4 each. You can request copies by phone at 612/624-4512 or e-mail at icipub@umn.edu, or you can fax or mail us an order form. See our listing of other issues of Impact for more information.

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